Elin Öst1,2, Maria Öjmyr Joelsson3,4, Carmen Mesas Burgos3,4, Björn Frenckner3,4. 1. Department of Women's and Children's Health, Karolinska Institutet, 171 77, Stockholm, Sweden. elin.ost@ki.se. 2. Pediatric Surgery Unit, Karolinska University Hospital, Astrid Lindgren Children's Hospital, 171 76, Stockholm, Sweden. elin.ost@ki.se. 3. Department of Women's and Children's Health, Karolinska Institutet, 171 77, Stockholm, Sweden. 4. Pediatric Surgery Unit, Karolinska University Hospital, Astrid Lindgren Children's Hospital, 171 76, Stockholm, Sweden.
Abstract
PURPOSE: The aim of this long-term follow-up study was to investigate the current self assessed physical health in a CDH birth cohort at a single center. METHODS: Between 1990 and 2009, 195 children born with CDH were treated at Astrid Lindgren Children's Hospital. The primary survival rate was 85 %, and in 2010, 78 % were still alive. Data from medical records were supplemented by a questionnaire consisting of questions about perceived physical function. Patients were divided into groups according to time for intubation and need for extracorporeal membrane oxygenation. RESULTS: Children born with CDH reported themselves to be having greater problems with asthma, developmental delay, seizure disorder, poor vision, and scoliosis in comparison with normal Swedish children. They also described a sense of having less strength and becoming breathless more often than healthy friends. Symptoms of gastroesophageal reflux and abdominal pain were also reported. CONCLUSIONS: The majority of the children perceived their physical health as being overall good, but there was an increase of reported symptoms correlating with the severity of the malformation.
PURPOSE: The aim of this long-term follow-up study was to investigate the current self assessed physical health in a CDH birth cohort at a single center. METHODS: Between 1990 and 2009, 195 children born with CDH were treated at Astrid Lindgren Children's Hospital. The primary survival rate was 85 %, and in 2010, 78 % were still alive. Data from medical records were supplemented by a questionnaire consisting of questions about perceived physical function. Patients were divided into groups according to time for intubation and need for extracorporeal membrane oxygenation. RESULTS:Children born with CDH reported themselves to be having greater problems with asthma, developmental delay, seizure disorder, poor vision, and scoliosis in comparison with normal Swedish children. They also described a sense of having less strength and becoming breathless more often than healthy friends. Symptoms of gastroesophageal reflux and abdominal pain were also reported. CONCLUSIONS: The majority of the children perceived their physical health as being overall good, but there was an increase of reported symptoms correlating with the severity of the malformation.
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