Literature DB >> 26907570

'It might hurt, but you have to push through the pain': Perspectives on physical activity from children with juvenile idiopathic arthritis and their parents.

Douglas L Race1, Joanie Sims-Gould1, Lori B Tucker2, Ciaran M Duffy3,4, Debbie Ehrmann Feldman5, Michele Gibbon4, Kristin M Houghton1,2, Jennifer N Stinson6,7, Elizabeth Stringer8, Shirley Ml Tse6,7, Heather A McKay1.   

Abstract

Our primary objective was to gather perspectives of children diagnosed with juvenile idiopathic arthritis (JIA) and their parents as they relate to physical activity (PA) participation. To do so, we conducted a study on 23 children diagnosed with JIA and their parents ( N = 29). We used convenience sampling to recruit participants and qualitative method- logies (one-on-one semi-structured interviews). We adopted a five-step framework analysis to categorize data into themes. Children and their parents described factors that act to facilitate or hinder PA participation. Pain was the most commonly highlighted PA barrier described by children and their parents. However, children who were newly diagnosed with JIA and their parents were more likely to highlight pain as a barrier than were child/parent dyads where children had been previously diagnosed.

Entities:  

Keywords:  Barriers and facilitators; health promotion; juvenile idiopathic arthritis; physical activity; qualitative approaches

Year:  2016        PMID: 26907570     DOI: 10.1177/1367493516632616

Source DB:  PubMed          Journal:  J Child Health Care        ISSN: 1367-4935            Impact factor:   1.979


  6 in total

Review 1.  Bone Health in Children with Rheumatic Disorders: Focus on Molecular Mechanisms, Diagnosis, and Management.

Authors:  Francesca Di Marcello; Giulia Di Donato; Debora Mariarita d'Angelo; Luciana Breda; Francesco Chiarelli
Journal:  Int J Mol Sci       Date:  2022-05-20       Impact factor: 6.208

2.  "I just want to get better": experiences of children and youth with juvenile idiopathic arthritis in a home-based exercise intervention.

Authors:  Joanie Sims-Gould; Douglas L Race; Heather Macdonald; Kristin M Houghton; Ciarán M Duffy; Lori B Tucker; Heather A McKay
Journal:  Pediatr Rheumatol Online J       Date:  2018-09-20       Impact factor: 3.054

Review 3.  Topical Review: Basic Psychological Needs in Adolescents with Chronic Pain-A Self-Determination Perspective.

Authors:  Annina Riggenbach; Liesbet Goubert; Stijn Van Petegem; Rémy Amouroux
Journal:  Pain Res Manag       Date:  2019-01-06       Impact factor: 3.037

4.  Clinical and psychosocial stress factors are associated with decline in physical activity over time in children with juvenile idiopathic arthritis.

Authors:  Liane D Heale; Kristin M Houghton; Elham Rezaei; Adam D G Baxter-Jones; Susan M Tupper; Nazeem Muhajarine; Susanne M Benseler; Gilles Boire; David A Cabral; Sarah Campillo; Gaëlle Chédeville; Anne-Laure Chetaille; Paul Dancey; Ciaran Duffy; Karen Watanabe Duffy; Janet Ellsworth; Jaime Guzman; Adam M Huber; Roman Jurencak; Bianca Lang; Ronald M Laxer; Kimberly Morishita; Kiem G Oen; Ross E Petty; Suzanne E Ramsey; Johannes Roth; Rayfel Schneider; Rosie Scuccimarri; Lynn Spiegel; Elizabeth Stringer; Shirley M L Tse; Lori B Tucker; Stuart E Turvey; Rae S M Yeung; Alan M Rosenberg
Journal:  Pediatr Rheumatol Online J       Date:  2021-06-29       Impact factor: 3.054

5.  Physical activity in patients with oligo- and polyarticular juvenile idiopathic arthritis diagnosed in the era of biologics: a controlled cross-sectional study.

Authors:  Kristine Risum; Bjørge Herman Hansen; Anne Marit Selvaag; Øyvind Molberg; Hanne Dagfinrud; Helga Sanner
Journal:  Pediatr Rheumatol Online J       Date:  2018-10-17       Impact factor: 3.054

Review 6.  Adolescents' experiences of fluctuating pain in musculoskeletal disorders: a qualitative systematic review and thematic synthesis.

Authors:  Sonia Khanom; Janet E McDonagh; Michelle Briggs; Ebru Bakir; John McBeth
Journal:  BMC Musculoskelet Disord       Date:  2020-10-02       Impact factor: 2.362

  6 in total

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