Jennifer Poole1, Jennifer Ward2, Enza DeLuca3, Margrit Shildrick4, Susan Abbey5, Oliver Mauthner6, Heather Ross3. 1. School of Social Work, Faculty of Community Services, Ryerson University, 350 Victoria Street, Toronto, Ontario M5B 2K3, Canada. Electronic address: jpoole@ryerson.ca. 2. School of Social Work, Faculty of Community Services, Ryerson University, 350 Victoria Street, Toronto, Ontario M5B 2K3, Canada. 3. Division of Cardiology and Transplant, University Health Network, 585 University Avenue, PMB 11-137, Toronto, Ontario M5G 2N2, Canada. 4. Tema Genus, Linkoping University, Linkoping 58183, Sweden. 5. Department of Psychiatry, University Health Network, 585 University Avenue, PMB 11-100D, Toronto, Ontario M5G 2N2, Canada. 6. Institute of Nursing Science, Faculty of Medicine, University of Basel, Bernoullistrasse 28, 4056 Basel, Switzerland.
Abstract
OBJECTIVES: The purpose of the study was to examine the loss and grief experiences of patients waiting for and living with new hearts. BACKGROUND: There is much scholarship on loss and grief. Less attention has been paid to these issues in clinical transplantation, and even less on the patient experience. METHODS: Part of a qualitative inquiry oriented to the work of Merleau-Ponty, a secondary analysis was carried out on audiovisual data from interviews with thirty participants. RESULTS: Patients experience loss and three forms of grief. Pre-transplant patients waiting for transplant experience loss and anticipatory grief related to their own death and the future death of their donor. Transplanted patients experience long-lasting complicated grief with respect to the donor and disenfranchised grief which may not be sanctioned. CONCLUSIONS: Loss as well as anticipatory, complicated and disenfranchised grief may have been inadvertently disregarded or downplayed. More research and attention is needed.
OBJECTIVES: The purpose of the study was to examine the loss and grief experiences of patients waiting for and living with new hearts. BACKGROUND: There is much scholarship on loss and grief. Less attention has been paid to these issues in clinical transplantation, and even less on the patient experience. METHODS: Part of a qualitative inquiry oriented to the work of Merleau-Ponty, a secondary analysis was carried out on audiovisual data from interviews with thirty participants. RESULTS:Patients experience loss and three forms of grief. Pre-transplant patients waiting for transplant experience loss and anticipatory grief related to their own death and the future death of their donor. Transplanted patients experience long-lasting complicated grief with respect to the donor and disenfranchised grief which may not be sanctioned. CONCLUSIONS: Loss as well as anticipatory, complicated and disenfranchised grief may have been inadvertently disregarded or downplayed. More research and attention is needed.
Authors: Margrit Shildrick; Andrew Carnie; Alexa Wright; Patricia McKeever; Emily Huan-Ching Jan; Enza De Luca; Ingrid Bachmann; Susan Abbey; Dana Dal Bo; Jennifer Poole; Tammer El-Sheikh; Heather Ross Journal: Med Humanit Date: 2017-09-28
Authors: Catharina Lindberg; Matilda Almgren; Annette Lennerling; Anna Forsberg Journal: Int J Environ Res Public Health Date: 2020-07-28 Impact factor: 3.390