Literature DB >> 26895150

The Catalonian Expert Patient Programme for Chagas Disease: An Approach to Comprehensive Care Involving Affected Individuals.

Isabel Claveria Guiu1, Johanna Caro Mendivelso2, Hakima Ouaarab Essadek3, Maria Asunción González Mestre4,5, Pedro Albajar-Viñas6,7, Jordi Gómez I Prat3.   

Abstract

The Catalonian Expert Patient Programme on Chagas disease is a initiative, which is part of the Chronic Disease Programme. It aims to boost responsibility of patients for their own health and to promote self-care. The programme is based on nine sessions conducted by an expert patient. Evaluation was focusing in: habits and lifestyle/self-care, knowledge of disease, perception of health, self-esteem, participant satisfaction, and compliance with medical follow-up visits. Eighteen participants initiated the programme and 15 completed it. The participants were Bolivians. The 66.7 % of them had been diagnosed with chagas disease in Spain. The 100 % mentioned that they would participate in this activity again and would recommend it to family and friends. The knowledge about disease improve after sessions. The method used in the programme could serve as a key strategy in the field of comprehensive care for individuals with this disease.

Entities:  

Keywords:  Chagas disease; Chronic disease; Comprehensive care; Expert patient

Mesh:

Year:  2017        PMID: 26895150     DOI: 10.1007/s10903-016-0345-y

Source DB:  PubMed          Journal:  J Immigr Minor Health        ISSN: 1557-1912


  5 in total

1.  [Signs, meanings, and actions associated with Chagas disease].

Authors:  Elizabeth Uchoa; Josélia O A Firmo; Elizabeth C Dias; Maria Stella N Pereira; Eliane D Gontijo
Journal:  Cad Saude Publica       Date:  2002 Jan-Feb       Impact factor: 1.632

2.  A 12-Item Short-Form Health Survey: construction of scales and preliminary tests of reliability and validity.

Authors:  J Ware; M Kosinski; S D Keller
Journal:  Med Care       Date:  1996-03       Impact factor: 2.983

3.  [Representations, myths, and behaviors among Chagas disease patients with pacemakers].

Authors:  Claudia Magnani; Bruna Guimarães Oliveira; Eliane Dias Gontijo
Journal:  Cad Saude Publica       Date:  2007-07       Impact factor: 1.632

Review 4.  Chagas disease in Spain, the United States and other non-endemic countries.

Authors:  Joaquim Gascon; Caryn Bern; María-Jesús Pinazo
Journal:  Acta Trop       Date:  2009-07-29       Impact factor: 3.112

Review 5.  Socio-cultural aspects of Chagas disease: a systematic review of qualitative research.

Authors:  Laia Ventura-Garcia; Maria Roura; Christopher Pell; Elisabeth Posada; Joaquim Gascón; Edelweis Aldasoro; Jose Muñoz; Robert Pool
Journal:  PLoS Negl Trop Dis       Date:  2013-09-12
  5 in total
  10 in total

1.  Population movements, borders, and Chagas disease.

Authors:  Andrea Avaria; Laia Ventura-Garcia; Mariana Sanmartino; Carlos Van der Laat
Journal:  Mem Inst Oswaldo Cruz       Date:  2022-07-08       Impact factor: 2.747

2.  How people affected by Chagas disease have struggled with their negligence: history, associative movement and World Chagas Disease Day.

Authors:  Wilson Alves de Oliveira Junior; Jordi Gómez I Prat; Pedro Albajar-Viñas; Cristina Carrazzone; Simone Petraglia Kropf; Aurore Dehousse; Ana Maria de Arruda Camargo; Mariella Anselmi; Maria Cristina Parada Barba; Isabel Claveria Guiu; Maria das Neves Dantas Silveira Barros; Maria da Glória Melo Cavalvanti; Cassandra Barros Correia; Silvia Marinho Martins
Journal:  Mem Inst Oswaldo Cruz       Date:  2022-07-13       Impact factor: 2.747

3.  A Community-Based Intervention for the Detection of Chagas Disease in Barcelona, Spain.

Authors:  Jordi Gómez I Prat; Paula Peremiquel-Trillas; Isabel Claveria Guiu; Estefa Choque; Inés Oliveira Souto; Núria Serre Delcor; Elena Sulleiro; Mateu Espasa; Conxita Pastoret; Juan José de Los Santos; Hakima Ouaarab; Pedro Albajar Viñas; Carlos Ascaso Terren
Journal:  J Community Health       Date:  2019-08

4.  Healthcare Professionals and Students' Awareness of Chagas Disease: Design and Validation of Chagas Level of Knowledge Scale (ChaLKS).

Authors:  José M Ramos-Rincón; José J Mira-Solves; Violeta Ramos-Sesma; Diego Torrús-Tendero; Jara Llenas-García; Miriam Navarro
Journal:  Am J Trop Med Hyg       Date:  2020-04-23       Impact factor: 2.345

5.  Comparative evaluation of community interventions for the immigrant population of Latin American origin at risk for Chagas disease in the city of Barcelona.

Authors:  Jordi Gómez I Prat; Paula Peremiquel-Trillas; Isabel Claveria Guiu; Johanna Caro Mendivelso; Estefa Choque; Juan José de Los Santos; Elena Sulleiro; Hakima Ouaarab Essadek; Pedro Albajar Viñas; Carlos Ascaso Terren
Journal:  PLoS One       Date:  2020-07-14       Impact factor: 3.240

6.  COVID-19: an opportunity of systematic integration for Chagas disease. Example of a community-based approach within the Bolivian population in Barcelona.

Authors:  Jordi Gómez I Prat; Pedro Albajar-Viñas; Hakima Ouaarab Essadek; Juliana Esperalba; Francesc Zarzuela Serrat; Isabel Claveria Guiu; Lidia Goterris; Ricardo Zules-Oña; Estefa Choque; Conxita Pastoret; Natàlia Casamitjana Ponces; Juan José de Los Santos; Jordi Serrano Pons; Aurore Dehousse; Tomàs Pumarola; Magda Campins; Elena Sulleiro
Journal:  BMC Infect Dis       Date:  2022-03-28       Impact factor: 3.090

7.  Applying the health capability profile to empirically study chronic hepatitis B in rural Senegal: a social justice mixed-methods study protocol.

Authors:  Marion Coste; Mouhamed Ahmed Badji; Aldiouma Diallo; Marion Mora; Sylvie Boyer; Jennifer J Prah
Journal:  BMJ Open       Date:  2022-04-11       Impact factor: 2.692

8.  Challenges in the care of patients with Chagas disease in the Brazilian public health system: A qualitative study with primary health care doctors.

Authors:  Renata Fiúza Damasceno; Ester Cerdeira Sabino; Ariela Mota Ferreira; Antonio Luiz Pinho Ribeiro; Hugo Fonseca Moreira; Thalita Emily Cezário Prates; Cristina Andrade Sampaio; Desirée Sant Ana Haikal
Journal:  PLoS Negl Trop Dis       Date:  2020-11-09

9.  "We have already heard that the treatment doesn't do anything, so why should we take it?": A mixed method perspective on Chagas disease knowledge, attitudes, prevention, and treatment behaviour in the Bolivian Chaco.

Authors:  Sandra Parisi; Miriam Navarro; Jeremy Douglas Du Plessis; Jonathan Phillip Shock; Boris Apodaca Michel; Minerva Lucuy Espinoza; Carolina Terán; Nino Antonio Calizaya Tapia; Katharina Oltmanns; Abundio Baptista Mora; Claudia Saveedra Irala; Angel Alberto Rivera Rojas; Gonzalo Rubilar; Thomas Zoller; Michael Pritsch
Journal:  PLoS Negl Trop Dis       Date:  2020-10-29

10.  Mapping health behaviour related to Chagas diagnosis in a non-endemic country: Application of Andersen's Behavioural Model.

Authors:  Laura Iglesias-Rus; María Romay-Barja; Teresa Boquete; Agustín Benito; Briggitte Jordan; Teresa Blasco-Hernández
Journal:  PLoS One       Date:  2022-01-20       Impact factor: 3.240

  10 in total

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