Literature DB >> 26893061

Social Media and the Adolescent and Young Adult (AYA) Patient with Cancer.

Miguel-Angel Perales1,2, Emily K Drake3, Naveen Pemmaraju4, William A Wood5.   

Abstract

Over 70,000 adolescent and young adults (AYA) aged 15 to 39 years are diagnosed with cancer each year in the US. The National Cancer Institute (NCI) has identified AYA cancer patients as a unique population. The most common cancers in this age group include tumors typically seen in pediatric patients such as acute lymphoblastic leukemia (ALL) and brain tumors, as well as cancers more typically seen in adult patients such as breast cancer and melanoma. In addition, some cancers have their highest incidence in AYA patients, such as Hodgkin Lymphoma, testicular cancer, and bone tumors. AYA patients face additional unique issues due to their age, not just questions about treatment choices due to lack of data but also questions about fertility, relationships, loss of autonomy, and interruptions in school/work with potentially significant financial complications. This age group also has very high rates of social media usage with up to 90 % of adults aged 18 to 29 using social networking sites. In this review, we will describe the use of social media in AYAs with cancer and highlight some of the online resources for AYAs.

Entities:  

Keywords:  Adolescent and young adult; Cancer; Education; Facebook; Social media; Twitter

Mesh:

Year:  2016        PMID: 26893061      PMCID: PMC4990505          DOI: 10.1007/s11899-016-0313-6

Source DB:  PubMed          Journal:  Curr Hematol Malig Rep        ISSN: 1558-8211            Impact factor:   3.952


  26 in total

1.  Social Media Listening for Routine Post-Marketing Safety Surveillance.

Authors:  Gregory E Powell; Harry A Seifert; Tjark Reblin; Phil J Burstein; James Blowers; J Alan Menius; Jeffery L Painter; Michele Thomas; Carrie E Pierce; Harold W Rodriguez; John S Brownstein; Clark C Freifeld; Heidi G Bell; Nabarun Dasgupta
Journal:  Drug Saf       Date:  2016-05       Impact factor: 5.606

Review 2.  Cancer in 15- to 29-year-olds by primary site.

Authors:  Archie Bleyer; Aaron Viny; Ronald Barr
Journal:  Oncologist       Date:  2006-06

Review 3.  The importance of assessing priorities of reproductive health concerns among adolescent and young adult patients with cancer.

Authors:  Devin Murphy; James L Klosky; Damon R Reed; Amanda M Termuhlen; Susan V Shannon; Gwendolyn P Quinn
Journal:  Cancer       Date:  2015-06-05       Impact factor: 6.860

4.  Implementing a systematic approach to meeting patients' cancer and fertility needs: a review of the Fertile Hope Centers Of Excellence program.

Authors:  Joyce D Reinecke; Joanne F Kelvin; Sarah R Arvey; Gwendolyn P Quinn; Jennifer Levine; Lindsay N Beck; Andy Miller
Journal:  J Oncol Pract       Date:  2012-05-08       Impact factor: 3.840

Review 5.  Infertility in reproductive-age female cancer survivors.

Authors:  Jennifer M Levine; Joanne Frankel Kelvin; Gwendolyn P Quinn; Clarisa R Gracia
Journal:  Cancer       Date:  2015-02-03       Impact factor: 6.860

Review 6.  Social Media and the Practicing Hematologist: Twitter 101 for the Busy Healthcare Provider.

Authors:  Michael A Thompson; Navneet S Majhail; William A Wood; Miguel-Angel Perales; Mélanie Chaboissier
Journal:  Curr Hematol Malig Rep       Date:  2015-12       Impact factor: 3.952

Review 7.  Chronic myeloid leukemia in adolescents and young adults: patient characteristics, outcomes and review of the literature.

Authors:  Naveen Pemmaraju; Jorge Cortes
Journal:  Acta Haematol       Date:  2014-09-10       Impact factor: 2.195

8.  Young and uninsured: Insurance patterns of recently diagnosed adolescent and young adult cancer survivors in the AYA HOPE study.

Authors:  Helen M Parsons; Susanne Schmidt; Linda C Harlan; Erin E Kent; Charles F Lynch; Ashley W Smith; Theresa H M Keegan
Journal:  Cancer       Date:  2014-06-04       Impact factor: 6.921

9.  What young people want from health-related online resources: a focus group study.

Authors:  Gillian Fergie; Kate Hunt; Shona Hilton
Journal:  J Youth Stud       Date:  2012-11-15

10.  Twitter Social Media is an Effective Tool for Breast Cancer Patient Education and Support: Patient-Reported Outcomes by Survey.

Authors:  Deanna J Attai; Michael S Cowher; Mohammed Al-Hamadani; Jody M Schoger; Alicia C Staley; Jeffrey Landercasper
Journal:  J Med Internet Res       Date:  2015-07-30       Impact factor: 5.428

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  27 in total

1.  Current Social Media Conversations about Genetics and Genomics in Health: A Twitter-Based Analysis.

Authors:  Caitlin G Allen; Brittany Andersen; Muin J Khoury; Megan C Roberts
Journal:  Public Health Genomics       Date:  2018-11-22       Impact factor: 2.000

2.  Social Media and Myeloproliferative Neoplasms (MPN): Analysis of Advanced Metrics From the First Year of a New Twitter Community: #MPNSM.

Authors:  Naveen Pemmaraju; Audun Utengen; Vikas Gupta; Jean-Jacques Kiladjian; Ruben Mesa; Michael A Thompson
Journal:  Curr Hematol Malig Rep       Date:  2016-12       Impact factor: 3.952

Review 3.  Social Media and Internet Resources for Patients with Blastic Plasmacytoid Dendritic Cell Neoplasm (BPDCN).

Authors:  Naveen Pemmaraju; Vikas Gupta; Michael A Thompson; Andrew A Lane
Journal:  Curr Hematol Malig Rep       Date:  2016-12       Impact factor: 3.952

4.  Social Media: Support for Survivors and Young Adults With Cancer

Authors:  AnnMarie L Walton; Tara A Albrecht; Lauren Lux; Sheila Judge Santacroce
Journal:  Clin J Oncol Nurs       Date:  2017-10-01       Impact factor: 1.027

5.  Prevalence and correlates of health information-seeking among Hispanic and non-Hispanic childhood cancer survivors.

Authors:  Kimberly A Miller; Cynthia N Ramirez; Katherine Y Wojcik; Anamara Ritt-Olson; Lourdes Baezconde-Garbanati; Stefanie M Thomas; David R Freyer; Ann S Hamilton; Joel E Milam
Journal:  Support Care Cancer       Date:  2017-11-09       Impact factor: 3.603

6.  Reaching Adolescent and Young Adult Cancer Patients Through Social Media: Impact of the Photographs of Meaning Program.

Authors:  Megan E Pailler; Lynda K Beaupin; Erin Brewer-Spritzer; Pei C Grant; Rachel M Depner; Kathryn Levy; Kelly E Tenzek
Journal:  J Adolesc Young Adult Oncol       Date:  2020-04-07       Impact factor: 2.223

Review 7.  The Bigger Picture: Picking the Right Soap Box-Is it Possible to Connect with Different Audience Targets (Practitioners and Patients) from the Same Platform?

Authors:  Mohammed Ali A Abbass; Hari B Keshava; Conor P Delaney
Journal:  Clin Colon Rectal Surg       Date:  2017-09-12

Review 8.  Digital Health Interventions for Adolescent and Young Adult Cancer Survivors.

Authors:  Katie A Devine; Adrienne S Viola; Elliot J Coups; Yelena P Wu
Journal:  JCO Clin Cancer Inform       Date:  2018-12

9.  Cancer-Related Internet Use and Online Social Networking Among Patients in an Early-Phase Clinical Trials Clinic at a Comprehensive Cancer Center.

Authors:  Goldy C George; Adrianna Buford; Kenneth Hess; Sarina A Piha-Paul; Ralph Zinner; Vivek Subbiah; Christina Hinojosa; Charles S Cleeland; Funda Meric-Bernstam; Elmer V Bernstam; David S Hong
Journal:  JCO Clin Cancer Inform       Date:  2018-12

10.  Analysis of the Use and Impact of Twitter During American Society of Clinical Oncology Annual Meetings From 2011 to 2016: Focus on Advanced Metrics and User Trends.

Authors:  Naveen Pemmaraju; Michael A Thompson; Ruben A Mesa; Tejas Desai
Journal:  J Oncol Pract       Date:  2017-05-17       Impact factor: 3.840

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