C Petersson1, K Huus1,2, K Åkesson1,3, K Enskär2. 1. School of Health and Welfare, Research School of Health and Welfare, Jönköping University and The Jönköping Academy for Improvement of Health and welfare, CHILD Research Group, Jönköping, Sweden. 2. Department of Nursing, School of Health and Welfare, Jönköping University, Sweden. 3. The Jönköping Academy for Improvement of Health and welfare, Jönköping University and Futurum, Academy for Health and Care, Jönköping County, Sweden.
Abstract
BACKGROUND: It has been stated that care for children with chronic health conditions tends to focus on condition-specific issues rather than how these children experience their health and everyday life functioning. AIM: The aim of this study was to explore children's experiences about a structured assessment of health-related quality of life applied during a patient encounter. METHODS: Prior to the start of the study, a clinical intervention based on the questionnaire DISABKIDS Chronic Generic Measure (DCGM-37) was performed. A qualitative explorative design was chosen, and 25 children between 10-17 years of age were interviewed after the consultation at four different paediatric outpatient clinics. Data were analysed according to qualitative content analysis. RESULTS: The results were twofold: children experienced that the assessment was providing them with insights about their health, which motivated them to make lifestyle changes. When outcomes were discussed and requested, the children felt encouraged. CONCLUSIONS: The use of an assessment of health-related quality of life may promote insights about health and encourage children with chronic health conditions to discuss their outcomes with healthcare professionals.
BACKGROUND: It has been stated that care for children with chronic health conditions tends to focus on condition-specific issues rather than how these children experience their health and everyday life functioning. AIM: The aim of this study was to explore children's experiences about a structured assessment of health-related quality of life applied during a patient encounter. METHODS: Prior to the start of the study, a clinical intervention based on the questionnaire DISABKIDS Chronic Generic Measure (DCGM-37) was performed. A qualitative explorative design was chosen, and 25 children between 10-17 years of age were interviewed after the consultation at four different paediatric outpatient clinics. Data were analysed according to qualitative content analysis. RESULTS: The results were twofold: children experienced that the assessment was providing them with insights about their health, which motivated them to make lifestyle changes. When outcomes were discussed and requested, the children felt encouraged. CONCLUSIONS: The use of an assessment of health-related quality of life may promote insights about health and encourage children with chronic health conditions to discuss their outcomes with healthcare professionals.
Authors: Anna Rozensztrauch; Robert Śmigiel; Dariusz Patkowski; Sylwester Gerus; Magdalena Kłaniewska; Julia Hannah Quitmann; Michaela Dellenmark-Blom Journal: Int J Environ Res Public Health Date: 2022-06-30 Impact factor: 4.614
Authors: Vibeke Sparring; Emma Granström; Magna Andreen Sachs; Mats Brommels; Monica E Nyström Journal: BMC Health Serv Res Date: 2018-10-20 Impact factor: 2.655