Literature DB >> 26880526

Development of a patient decision aid for the treatment of localised prostate cancer: a participatory design approach.

Hoda H M Al-Itejawi1, Cornelia F van Uden-Kraan2,3, André N Vis1, Jakko A Nieuwenhuijzen1, Myrna J A Hofstee3, Reindert Jeroen A van Moorselaar1, Irma M Verdonck-de Leeuw2,3.   

Abstract

AIMS AND
OBJECTIVES: To develop a patient decision aid and to prepare an overview of requirements for implementation.
BACKGROUND: We developed a decision aid that fits the preferences of patients and health care professionals to ensure adequate uptake in clinical practice.
DESIGN: A participatory design approach was used to acquire insight into preferences regarding the content and design of a decision aid and into barriers and aspects of the decision aid that facilitate implementation in clinical practice.
METHODS: Three focus group interviews with patients, their partners and health care professionals were conducted. A prototype of the decision aid was developed and presented to patients (n = 14) and health care professionals (n = 13) in semi-structured interviews. Patients (n = 5) participated in a usability study. Data were analysed by two independent coders.
RESULTS: Health care professionals considered medical information on treatments and side effects as the most important aspect to be included in the decision aid. Patients also focused on nonmedical considerations, such as location. Both expected the decision aid to support patients in making a treatment choice. According to health care professionals, the oncology nurse was the most suitable to discuss the decision aid with patients, while some patients preferred to discuss the patient decision aid with the urologist. The main barrier to implementation of the decision aid was said to be the expectation that it is time and money consuming, while the incorporation of the decision aid into clinical guidelines and basing the content on these guidelines, would promote implementation.
CONCLUSIONS: By using a participatory design approach a patient decision aid was designed to meet patients' and health care professionals' needs. Insight was also gained on requirements for implementation. RELEVANCE TO CLINICAL PRACTICE: Wide-scale implementation of decision aids is desirable. An overview is provided of requirements for implementation to successfully incorporate a decision aid into clinical practice.
© 2016 John Wiley & Sons Ltd.

Entities:  

Keywords:  decision aid; implementation; participatory design; prostate cancer; shared decision-making

Mesh:

Year:  2016        PMID: 26880526     DOI: 10.1111/jocn.13120

Source DB:  PubMed          Journal:  J Clin Nurs        ISSN: 0962-1067            Impact factor:   3.036


  6 in total

1.  Introducing Decision Aids into Routine Prostate Cancer Care in The Netherlands: Implementation and Patient Evaluations from the Multi-regional JIPPA Initiative.

Authors:  Maarten Cuypers; Hoda H M Al-Itejawi; Cornelia F van Uden-Kraan; Peep F M Stalmeier; Romy E D Lamers; Inge M van Oort; Diederik M Somford; Reindert Jeroen A van Moorselaar; Irma M Verdonck-de Leeuw; Lonneke V van de Poll-Franse; Julia J van Tol-Geerdink; Marieke de Vries
Journal:  J Cancer Educ       Date:  2020-12       Impact factor: 2.037

Review 2.  Methods for Human-Centered eHealth Development: Narrative Scoping Review.

Authors:  Hanneke Kip; Julia Keizer; Marcia C da Silva; Nienke Beerlage-de Jong; Nadine Köhle; Saskia M Kelders
Journal:  J Med Internet Res       Date:  2022-01-27       Impact factor: 5.428

3.  User-centered development of a hypospadias decision aid prototype.

Authors:  Katherine H Chan; Rosalia Misseri; Aaron Carroll; Richard Frankel; Courtney M Moore; Brandon Cockrum; Sarah E Wiehe
Journal:  J Pediatr Urol       Date:  2020-08-11       Impact factor: 1.830

4.  Systematic Development of Patient Decision Aids: An Update from the IPDAS Collaboration.

Authors:  Holly O Witteman; Kristin G Maki; Gratianne Vaisson; Jeanette Finderup; Krystina B Lewis; Karina Dahl Steffensen; Caroline Beaudoin; Sandrine Comeau; Robert J Volk
Journal:  Med Decis Making       Date:  2021-06-19       Impact factor: 2.583

5.  "Thanks for Letting Us All Share Your Mammogram Experience Virtually": Developing a Web-Based Hub for Breast Cancer Screening.

Authors:  Adam Galpin; Joanne Meredith; Cathy Ure; Leslie Robinson
Journal:  JMIR Cancer       Date:  2017-10-27

6.  Effectiveness, cost-utility and implementation of a decision aid for patients with localised prostate cancer and their partners: study protocol of a stepped-wedge cluster randomised controlled trial.

Authors:  Hoda H M Al-Itejawi; Cornelia F van Uden-Kraan; Peter M van de Ven; Veerle M H Coupé; André N Vis; Jakko A Nieuwenhuijzen; Jeroen A van Moorselaar; Irma M Verdonck-de Leeuw
Journal:  BMJ Open       Date:  2017-09-15       Impact factor: 2.692

  6 in total

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