Literature DB >> 26865093

Hope is a four-letter word: riding the emotional rollercoaster of illness management.

Alexandra C H Nowakowski1.   

Abstract

In this autoethnography, I explore the process and emotional experience of trying a new drug to improve my quality of life. In so doing, I synthesise personal history with extant research on chronic illness by analysing ways in which my experiences reflect and reject social norms. I also incorporate perspectives from research on aspirations and attainment, and the mental health consequences of cyclical disappointment. By weaving together lessons from each of these literatures, I articulate an integrative psychosocial understanding of the micro-level processes and experiences involved in illness management as well as the ways that experiences of illness management may require integration of varied sociological insights concerning health. In closing, I draw out theoretical implications for understanding the integration and variation of insights from many areas of health research in the lived experiences of people with chronic conditions. A Virtual Abstract of this article can be seen at: https://youtu.be/5aoaWGItDgM.
© 2016 Foundation for the Sociology of Health & Illness.

Entities:  

Keywords:  aspirations; autoethnography; chronic conditions; illness management; medical care

Mesh:

Year:  2016        PMID: 26865093     DOI: 10.1111/1467-9566.12403

Source DB:  PubMed          Journal:  Sociol Health Illn        ISSN: 0141-9889


  2 in total

1.  Cystic Fibrosis Kidney Disease: 10 Tips for Clinicians.

Authors:  Alexandra C H Nowakowski
Journal:  Front Med (Lausanne)       Date:  2018-08-28

2.  Coming Full Circle: Reflections and Inspirations from a Cystic Fibrosis Patient Scientist Panel.

Authors:  Alexandra Xan C H Nowakowski; Gabriella Ella Balasa; Miriam F Figueira; Francis Tré J LaRosa; James M J Lawlor
Journal:  Inquiry       Date:  2022 Jan-Dec       Impact factor: 2.099

  2 in total

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