Literature DB >> 26861443

Liminality in Pediatric Palliative Care.

Brian S Carter1,2.   

Abstract

Palliative care for infants, children, and adolescents encompasses numerous transitions and thresholds of uncertainty that challenge conventional clinical medicine. Palliative care clinicians have opportunities to be more comfortable amid such challenges, or perhaps even overcome them, if they are attuned to the unique times and places in which patients, their families, and caregivers find themselves throughout illness and recovery or transitioning toward the end of life. Patient-clinician encounters often dwell in these liminal places. The concept of liminality gives validation to the patient or family's being "stuck in places betwixt and between" a past life rich with relationship and purpose and an acute, chronic, or critical illness. Or having resolved the acute crisis of hospitalization that place between the past bounds of illness and the uncertain path forward, perhaps even toward death. Liminality provides a framework for addressing the unbound spaces that patients and families occupy: What is past is behind-the present place is tenuous and temporary, and what is ahead uncertain. This place is where palliative care clinicians can offer clinicians and families guidance.

Entities:  

Keywords:  chronic care; end of life; palliative care; pediatrics; rites of passage; transitions

Mesh:

Year:  2016        PMID: 26861443     DOI: 10.1177/1049909116629758

Source DB:  PubMed          Journal:  Am J Hosp Palliat Care        ISSN: 1049-9091            Impact factor:   2.500


  3 in total

1.  Parental assessment of comfort in newborns affected by life-limiting conditions treated by a standardized neonatal comfort care program.

Authors:  E Parravicini; M Daho'; G Foe; R Steinwurtzel; M Byrne
Journal:  J Perinatol       Date:  2017-10-19       Impact factor: 2.521

2.  Building Bridges, Paediatric Palliative Care in Belgium: A secondary data analysis of annual paediatric liaison team reports from 2010 to 2014.

Authors:  Marie Friedel; Bénédicte Brichard; Christine Fonteyne; Marleen Renard; Jean-Paul Misson; Els Vandecruys; Corinne Tonon; Françoise Verfaillie; Georgette Hendrijckx; Nathalie Andersson; Ilse Ruysseveldt; Katrien Moens; Jean-Marie Degryse; Isabelle Aujoulat
Journal:  BMC Palliat Care       Date:  2018-05-22       Impact factor: 3.234

3.  Anticipation, Accompaniment, and a Good Death in Perinatal Care.

Authors:  Bryanna S Moore; Brian S Carter; Bryan Beaven; Katie House; Joel House
Journal:  Yale J Biol Med       Date:  2019-12-20
  3 in total

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