Literature DB >> 26860601

BBMRI-ERIC: the novel gateway to biobanks. From humans to humans.

Michaela Th Mayrhofer1, Petr Holub2, Andrea Wutte2, Jan-Eric Litton2.   

Abstract

BBMRI-ERIC, the Biobanking and BioMolecular Resources Research Infrastructure-European Research Infrastructure Consortium, is a new form of umbrella organization for biobanking in Europe. For rare and common diseases alike, it aims at providing fair access to quality-controlled human biological samples and associated biomedical and biomolecular data. Such access enables basic mechanisms underlying diseases to be studied, which is indispensable for the development of new biomarkers and drugs. In the context of the European Research Area (ERA), biobanks, which were identified as a particular European strength, contribute to Europe's cohesion policy through capacity-building in the BBMRI-ERIC member countries.

Entities:  

Keywords:  BBMRI-ERIC; Biobanks; Europe; Governance; Research infrastructure

Mesh:

Year:  2016        PMID: 26860601     DOI: 10.1007/s00103-015-2301-8

Source DB:  PubMed          Journal:  Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz        ISSN: 1436-9990            Impact factor:   1.513


  14 in total

Review 1.  [Requirements for a cross-location biobank IT infrastructure : Survey of stakeholder input on the establishment of a biobank network of the German Biobank Alliance (GBA)].

Authors:  C Schüttler; N Buschhüter; C Döllinger; L Ebert; M Hummel; J Linde; H-U Prokosch; R Proynova; M Lablans
Journal:  Pathologe       Date:  2018-07       Impact factor: 1.011

Review 2.  [Biobanks, translational research and medical informatics].

Authors:  C Schüttler; R Jahns; U Prokosch; S Wach; B Wullich
Journal:  Urologie       Date:  2022-05-30

Review 3.  Balancing the local and the universal in maintaining ethical access to a genomics biobank.

Authors:  Catherine Heeney; Shona M Kerr
Journal:  BMC Med Ethics       Date:  2017-12-28       Impact factor: 2.652

4.  MECP2 variation in Rett syndrome-An overview of current coverage of genetic and phenotype data within existing databases.

Authors:  Gillian S Townend; Friederike Ehrhart; Henk J van Kranen; Mark Wilkinson; Annika Jacobsen; Marco Roos; Egon L Willighagen; David van Enckevort; Chris T Evelo; Leopold M G Curfs
Journal:  Hum Mutat       Date:  2018-05-21       Impact factor: 4.878

5.  The Barriers and Motivators to Using Human Tissues for Research: The Views of UK-Based Biomedical Researchers.

Authors:  Emma Lawrence; Jessica Sims; Amir Gander; Jonathan M Garibaldi; Barry Fuller; Brian Davidson; Philip R Quinlan
Journal:  Biopreserv Biobank       Date:  2020-06-17       Impact factor: 2.300

Review 6.  Biobanking in health care: evolution and future directions.

Authors:  Luigi Coppola; Alessandra Cianflone; Anna Maria Grimaldi; Mariarosaria Incoronato; Paolo Bevilacqua; Francesco Messina; Simona Baselice; Andrea Soricelli; Peppino Mirabelli; Marco Salvatore
Journal:  J Transl Med       Date:  2019-05-22       Impact factor: 5.531

7.  Data in question: A survey of European biobank professionals on ethical, legal and societal challenges of biobank research.

Authors:  Melanie Goisauf; Gillian Martin; Heidi Beate Bentzen; Isabelle Budin-Ljøsne; Lars Ursin; Anna Durnová; Liis Leitsalu; Katharine Smith; Sara Casati; Marialuisa Lavitrano; Deborah Mascalzoni; Martin Boeckhout; Michaela Th Mayrhofer
Journal:  PLoS One       Date:  2019-09-18       Impact factor: 3.240

8.  New perspectives: systems medicine in cardiovascular disease.

Authors:  Frank Kramer; Steffen Just; Tanja Zeller
Journal:  BMC Syst Biol       Date:  2018-04-25

9.  Fostering population-based cohort data discovery: The Maelstrom Research cataloguing toolkit.

Authors:  Julie Bergeron; Dany Doiron; Yannick Marcon; Vincent Ferretti; Isabel Fortier
Journal:  PLoS One       Date:  2018-07-24       Impact factor: 3.240

10.  MRC Centre Neuromuscular Biobank (Newcastle and London): Supporting and facilitating rare and neuromuscular disease research worldwide.

Authors:  Mojgan Reza; Daniel Cox; Lauren Phillips; Diana Johnson; Vaishnavi Manoharan; Michael Grieves; Becky Davis; Andreas Roos; Jennifer Morgan; Michael G Hanna; Francesco Muntoni; Hanns Lochmüller
Journal:  Neuromuscul Disord       Date:  2017-07-10       Impact factor: 4.296

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