Literature DB >> 26857773

Cystic Fibrosis Transitions of Care: Lessons Learned and Future Directions for Cystic Fibrosis.

Megumi J Okumura1, Mary Ellen Kleinhenz2.   

Abstract

Advances in cystic fibrosis (CF) care transformed the condition from one considered lethal by age 7 into a chronic illness (median lifespan, >40 years). With the growing numbers of adults with CF voicing their preference for care in age appropriate settings, the CF community met the challenge by developing an adult-focused care system modeled on the highly successful pediatric CF centers. Adult CF programs ensure lifelong CF specialty care. Preparation for transfer occurs in a process of "transition." This article reviews progress in transition-related care and provides recommendations for research and clinical practice to improve the transition process.
Copyright © 2016 Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Adolescents; Adult CF care; Cystic fibrosis; Pediatric CF care; Transition; Young adults

Mesh:

Year:  2015        PMID: 26857773     DOI: 10.1016/j.ccm.2015.11.007

Source DB:  PubMed          Journal:  Clin Chest Med        ISSN: 0272-5231            Impact factor:   2.878


  7 in total

1.  Can an epilepsy transfer clinic be sustained in the United States?

Authors:  W Allen Hauser; Carol S Camfield; Peter R Camfield
Journal:  Neurol Clin Pract       Date:  2020-08

2.  Evaluation of spina bifida transitional care practices in the United States.

Authors:  Maryellen S Kelly; Judy Thibadeau; Sara Struwe; Lisa Ramen; Lijing Ouyang; Jonathan Routh
Journal:  J Pediatr Rehabil Med       Date:  2017-12-11

3.  Moving up: Healthcare transition experiences of adolescents and young adults with cystic fibrosis.

Authors:  Katherine South; Maureen George; Hossein Sadeghi; Victoria Piane; Arlene Smaldone
Journal:  J Pediatr Nurs       Date:  2022-03-30       Impact factor: 2.523

4.  Canadian Consensus Statements on the Transition of Adolescents and Young Adults with Inflammatory Bowel Disease from Pediatric to Adult Care: A Collaborative Initiative Between the Canadian IBD Transition Network and Crohn's and Colitis Canada.

Authors:  Nancy Fu; Natasha Bollegala; Kevan Jacobson; Karen I Kroeker; Karen Frost; Waqqas Afif; Wael El-Matary; Sharyle A Fowler; Anne M Griffiths; Hien Q Huynh; Prévost Jantchou; Ahmer Karimuddin; Geoffrey C Nguyen; Anthony R Otley; Christina Pears; Cynthia H Seow; Alene Toulany; Claudia Tersigni; Joanne Tignanelli; John K Marshall; Monica Boctor; Tawnya Hansen; Chandni Pattni; Andrew Wong; Eric I Benchimol
Journal:  J Can Assoc Gastroenterol       Date:  2022-03-26

5.  Brazilian guidelines for the diagnosis and treatment of cystic fibrosis.

Authors:  Rodrigo Abensur Athanazio; Luiz Vicente Ribeiro Ferreira da Silva Filho; Alberto Andrade Vergara; Antônio Fernando Ribeiro; Carlos Antônio Riedi; Elenara da Fonseca Andrade Procianoy; Fabíola Villac Adde; Francisco José Caldeira Reis; José Dirceu Ribeiro; Lídia Alice Torres; Marcelo Bicalho de Fuccio; Matias Epifanio; Mônica de Cássia Firmida; Neiva Damaceno; Norberto Ludwig-Neto; Paulo José Cauduro Maróstica; Samia Zahi Rached; Suzana Fonseca de Oliveira Melo
Journal:  J Bras Pneumol       Date:  2017 May-Jun       Impact factor: 2.624

6.  Hospital Readmission of Adolescents and Young Adults With Complex Chronic Disease.

Authors:  Peter Dunbar; Matt Hall; James C Gay; Clarissa Hoover; Jessica L Markham; Jessica L Bettenhausen; James M Perrin; Karen A Kuhlthau; Morgan Crossman; Brigid Garrity; Jay G Berry
Journal:  JAMA Netw Open       Date:  2019-07-03

7.  Controlled evaluation of a transition clinic for Dutch young people with cystic fibrosis.

Authors:  Mariëlle A C Peeters; Jane N T Sattoe; AnneLoes van Staa; Simone E Versteeg; Inge Heeres; Niels W Rutjes; Hettie M Janssens
Journal:  Pediatr Pulmonol       Date:  2019-08-19
  7 in total

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