Literature DB >> 26843676

Needs Assessment for Patients with Sickle Cell Disease in South Carolina, 2012.

Alyssa M Schlenz1, Andrea D Boan2, Daniel T Lackland3, Robert J Adams3, Julie Kanter1.   

Abstract

OBJECTIVE: We conducted a needs assessment for patients with sickle cell disease (SCD) in South Carolina using statewide administrative data to examine acute care utilization during a defined 12-month period. The data were collected to provide information for state and regional service providers, managed care companies, and policy makers to identify demographic gaps in care and inform policy and educational efforts to improve care.
METHODS: We obtained records on emergency department visits and hospitalizations through patient-based uniform billing data. We stratified analyses of acute care utilization and 30-day readmission rates by patient age, region, and expected payer.
RESULTS: Young adults, those with public insurance, and those who resided in a region with the largest number of patients had the highest rates of acute care utilization and 30-day readmissions. Patients who resided in a largely rural area without access to comprehensive care also had high rates of acute care utilization and readmissions. The pattern of readmissions data suggested that data on 7- or 14-day readmission rates, in addition to data on 30-day readmission rates, could be used as benchmarks of quality of care for adult patients with SCD.
CONCLUSION: Administrative datasets can provide important information on demographic gaps in care for patients with SCD. The results highlight both national and regional issues in the provision of health-care services for patients with SCD.

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Mesh:

Year:  2016        PMID: 26843676      PMCID: PMC4716478          DOI: 10.1177/003335491613100117

Source DB:  PubMed          Journal:  Public Health Rep        ISSN: 0033-3549            Impact factor:   2.792


  17 in total

1.  Rural/urban differences in access to and utilization of services among people in Alabama with sickle cell disease.

Authors:  Joseph Telfair; Akhlaque Haque; Marc Etienne; Shenghui Tang; Sheryl Strasser
Journal:  Public Health Rep       Date:  2003 Jan-Feb       Impact factor: 2.792

2.  Population estimates of sickle cell disease in the U.S.

Authors:  Kathryn L Hassell
Journal:  Am J Prev Med       Date:  2010-04       Impact factor: 5.043

3.  Sickle cell disease: a question of equity and quality.

Authors:  Lauren A Smith; Suzette O Oyeku; Charles Homer; Barry Zuckerman
Journal:  Pediatrics       Date:  2006-05       Impact factor: 7.124

4.  Acute care utilization and rehospitalizations for sickle cell disease.

Authors:  David C Brousseau; Pamela L Owens; Andrew L Mosso; Julie A Panepinto; Claudia A Steiner
Journal:  JAMA       Date:  2010-04-07       Impact factor: 56.272

5.  Pain in sickle cell disease. Rates and risk factors.

Authors:  O S Platt; B D Thorington; D J Brambilla; P F Milner; W F Rosse; E Vichinsky; T R Kinney
Journal:  N Engl J Med       Date:  1991-07-04       Impact factor: 91.245

6.  Risk factors for hospital readmission within 30 days: a new quality measure for children with sickle cell disease.

Authors:  Melissa J Frei-Jones; Joshua J Field; Michael R DeBaun
Journal:  Pediatr Blood Cancer       Date:  2009-04       Impact factor: 3.167

7.  The cost of health care for children and adults with sickle cell disease.

Authors:  Teresa L Kauf; Thomas D Coates; Liu Huazhi; Nikita Mody-Patel; Abraham G Hartzema
Journal:  Am J Hematol       Date:  2009-06       Impact factor: 10.047

8.  Transition of patients with sickle cell disease from pediatric to adult care: Assessing patient readiness.

Authors:  Marianne McPherson; Lisa Thaniel; Caterina P Minniti
Journal:  Pediatr Blood Cancer       Date:  2009-07       Impact factor: 3.167

Review 9.  Systematic review of transition from adolescent to adult care in patients with sickle cell disease.

Authors:  Lanetta Jordan; Paul Swerdlow; Thomas D Coates
Journal:  J Pediatr Hematol Oncol       Date:  2013-04       Impact factor: 1.289

Review 10.  A biopsychosocial model for the management of patients with sickle-cell disease transitioning to adult medical care.

Authors:  Lori E Crosby; Charles T Quinn; Karen A Kalinyak
Journal:  Adv Ther       Date:  2015-04-02       Impact factor: 3.845

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  3 in total

1.  Incomplete implementation of guideline-based stroke prevention therapy in sickle cell disease.

Authors:  Alyssa M Schlenz; Joannie Hayes; Martina Mueller; Shannon Phillips; Robert J Adams; Julie Kanter
Journal:  Am J Hematol       Date:  2018-08-06       Impact factor: 10.047

2.  Building access to care in adult sickle cell disease: defining models of care, essential components, and economic aspects.

Authors:  Julie Kanter; Wally R Smith; Payal C Desai; Marsha Treadwell; Biree Andemariam; Jane Little; Diane Nugent; Susan Claster; Deepa G Manwani; Judith Baker; John J Strouse; Ifeyinwa Osunkwo; Rosalyn W Stewart; Allison King; Lisa M Shook; John D Roberts; Sophie Lanzkron
Journal:  Blood Adv       Date:  2020-08-25

3.  Emergency department utilization for sickle cell disease in St. Vincent and the Grenadines.

Authors:  Shelly-Ann Williams; Shakel Henson; Shenese Trimmingham; Jill Newman; Julie Kanter
Journal:  Pan Afr Med J       Date:  2021-01-29
  3 in total

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