Literature DB >> 26842815

An Innovative Educational Program for International Hematopoietic Cell Transplant Pediatric Patients.

MariaEugenia Álvarez MacWilliams1, Estela Cabrera Lunar2, Ellen M Denzen3.   

Abstract

Pediatric patients and their families confront a difficult journey with hematopoietic cell transplantation. Understanding complex information, navigation, and coping with emotional, physical, and social changes in the patient, parents and family nucleus life could be quite challenging for all. In Spanish-speaking countries where transplant is emerging as an available treatment option, healthcare professionals encounter the lack or limited quality resources to educate pediatric patients and their families on a complex treatment process. Also, the level of literacy of each family varies widely, making transplant education very difficult to address in a simple and engaging way that could benefit all levels of literacy and foster well-being in the family as a whole, so they are prepared to make better informed decisions and decrease stress in all members. Super Sam versus the Marrow Monsters is a DVD resource made by the National Marrow Donor Program® (NMDP)/Be The Match® intended as an educational tool, to be shared with our U.S. network transplant centers to use when educating their pediatric patients. Hospital Angeles Lomas in the State of Mexico-member of the NMDP international network-has adopted the DVD with their pediatric audience, with very successful results, and demonstrates the benefits of expanding the initial intended use.

Entities:  

Keywords:  Hematopoietic cell transplant; Patient education; Pediatric; Spanish language resource

Mesh:

Year:  2017        PMID: 26842815     DOI: 10.1007/s13187-016-0989-2

Source DB:  PubMed          Journal:  J Cancer Educ        ISSN: 0885-8195            Impact factor:   2.037


  5 in total

1.  Psychosocial consequences of bone marrow transplantation in donor and nondonor siblings.

Authors:  W L Packman; M R Crittenden; E Schaeffer; B Bongar; J B Fischer; M J Cowan
Journal:  J Dev Behav Pediatr       Date:  1997-08       Impact factor: 2.225

2.  Pediatric hematopoietic SCT in Mexico: recent activity and main problems.

Authors:  L Rodríguez-Romo; O González-Llano; C Mancias-Guerra; J C Jaime-Pérez; A Gómez-Peña; G Ruíz-Arguelles; G Ruíz-Delgado; A Olaya; A del Campo; I Montero; O González-Ramella; A Sandoval; G González; T Pompa; C Galindo; D Gómez-Almaguer
Journal:  Bone Marrow Transplant       Date:  2010-06-21       Impact factor: 5.483

3.  Bone marrow donation from the perspective of sibling donors.

Authors:  Erika Arantes de Oliveira-Cardoso; Manoel Antônio dos Santos; Ana Paula Mastropietro; Júlio César Voltarelli
Journal:  Rev Lat Am Enfermagem       Date:  2010 Sep-Oct

Review 4.  Family crisis in the context of bone marrow transplantation: an integrative review.

Authors:  Tatiana Camila Matsubara; Emilia Campos de Carvalho; Silvia Rita Marin da Silva Canini; Namie Okino Sawada
Journal:  Rev Lat Am Enfermagem       Date:  2007 Jul-Aug

5.  Longitudinal study of adaptation to the stress of bone marrow transplantation.

Authors:  B L Fife; G A Huster; K G Cornetta; V N Kennedy; L P Akard; E R Broun
Journal:  J Clin Oncol       Date:  2000-04       Impact factor: 44.544

  5 in total

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