Literature DB >> 26836493

"Rare" diseases: Motivated patients make the difference.

Christa E Kuck1, Steven T Heidt1, Eva Kline-Rogers2.   

Abstract

Entities:  

Keywords:  Fibromuscular dysplasia; Patient participation; Rare diseases; Registries

Mesh：

Year:  2016        PMID： 26836493     DOI： 10.1016/j.ijcard.2016.01.199

Source DB:  PubMed          Journal:  Int J Cardiol        ISSN： 0167-5273            Impact factor:   4.164


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  1 in total

1.  Collaborative Research and Development of a Novel, Patient-Centered Digital Platform (MyEyeSite) for Rare Inherited Retinal Disease Data: Acceptability and Feasibility Study.

Authors:  Rose M Gilbert; Dayyanah Sumodhee; Nikolas Pontikos; Catherine Hollyhead; Angus Patrick; Samuel Scarles; Sabrina Van Der Smissen; Rodrigo M Young; Nick Nettleton; Andrew R Webster; Jocelyn Cammack
Journal:  JMIR Form Res       Date:  2022-01-31
  1 in total

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