K Pickett1, G Frampton1, E Loveman1,2. 1. Southampton Health Technology Assessments Centre, Faculty of Medicine, University of Southampton, Southampton, SO16 7NS, U.K. 2. Effective Evidence LLP, Chandlers Ford, Hampshire, U.K.
Abstract
Patient and carer education has been proposed as a way of improving health-related quality of life (HRQoL) among people with chronic inflammatory skin conditions. This systematic review aimed to assess the effects of education that specifically addresses HRQoL among people with chronic inflammatory skin conditions. We searched 12 literature databases and other sources (up to July 2014). Seven randomized controlled trials (RCTs) met the review inclusion criteria. Data from these RCTs were extracted and critically appraised. Two RCTs showed that for psoriasis in adults, group-based and text message education (as adjuncts to usual care) resulted in better HRQoL and disease severity outcomes than comparators, respectively. One RCT found that group-based education for children with eczema (atopic dermatitis) and their parents resulted in greater improvements in parents' HRQoL and in the children's disease severity than no education at 12 months. The remaining RCTs evaluated an educational session for psoriasis, a website for carers of children with eczema, information on skincare and make-up use given to women with acne, and an itch-coping programme for a range of conditions, all as adjuncts to usual care. None of these RCTs found statistically significant effects on HRQoL or disease severity compared with usual care. Common features of the effective interventions were long delivery (over 6 weeks to 3 months) and delivery by a multidisciplinary team. Overall, the evidence base is currently limited and generally has an unclear risk of bias. There is a need for more large RCTs evaluating piloted and theory-based interventions.
Patient and carer education has been proposed as a way of improving health-related quality of life (HRQoL) among people with chronic inflammatory skin conditions. This systematic review aimed to assess the effects of education that specifically addresses HRQoL among people with chronic inflammatory skin conditions. We searched 12 literature databases and other sources (up to July 2014). Seven randomized controlled trials (RCTs) met the review inclusion criteria. Data from these RCTs were extracted and critically appraised. Two RCTs showed that for psoriasis in adults, group-based and text message education (as adjuncts to usual care) resulted in better HRQoL and disease severity outcomes than comparators, respectively. One RCT found that group-based education for children with eczema (atopic dermatitis) and their parents resulted in greater improvements in parents' HRQoL and in the children's disease severity than no education at 12 months. The remaining RCTs evaluated an educational session for psoriasis, a website for carers of children with eczema, information on skincare and make-up use given to women with acne, and an itch-coping programme for a range of conditions, all as adjuncts to usual care. None of these RCTs found statistically significant effects on HRQoL or disease severity compared with usual care. Common features of the effective interventions were long delivery (over 6 weeks to 3 months) and delivery by a multidisciplinary team. Overall, the evidence base is currently limited and generally has an unclear risk of bias. There is a need for more large RCTs evaluating piloted and theory-based interventions.
Authors: Katy Sivyer; Emma Teasdale; Kate Greenwell; Mary Steele; Daniela Ghio; Matthew J Ridd; Amanda Roberts; Joanne R Chalmers; Sandra Lawton; Sinead M Langan; Fiona Cowdell; Emma Le Roux; Sylvia Wilczynska; Hywel C Williams; Kim S Thomas; Lucy Yardley; Miriam Santer; Ingrid Muller Journal: Br J Gen Pract Date: 2022-05-26 Impact factor: 6.302
Authors: P A Nelson; K Kane; C J Pearce; C Bundy; A Chisholm; R Hilton; R Thorneloe; H Young; C E M Griffiths; L Cordingley Journal: Br J Dermatol Date: 2017-08-17 Impact factor: 9.302
Authors: Kate Greenwell; Daniela Ghio; Katy Sivyer; Mary Steele; Emma Teasdale; Matthew J Ridd; Amanda Roberts; Joanne R Chalmers; Sandra Lawton; Sinead Langan; Fiona Cowdell; Emma Le Roux; Sylvia Wilczynska; Hannah Jones; Emilia Whittaker; H C Williams; Kim Suzanne Thomas; Lucy Yardley; Miriam Santer; Ingrid Muller Journal: BMJ Open Date: 2022-04-20 Impact factor: 3.006