Holly Wei1, Cecelia I Roscigno2, Kristen M Swanson3, Beth P Black4, Diane Hudson-Barr5, Cherissa C Hanson6. 1. School of Nursing at the University of North Carolina at Chapel Hill, Carrington Hall, CB #7460, Chapel Hill, NC 27599-7460, USA. Electronic address: hongwei@email.unc.edu. 2. Family Health Division, School of Nursing at the University of North Carolina at Chapel Hill, Carrington Hall, CB #7460, Chapel Hill, NC 27599-7460, USA. 3. College of Nursing, Seattle University, 901 12th Ave., Seattle, WA 98122, USA. 4. The Adult and Geriatric Health Division, School of Nursing at the University of North Carolina at Chapel Hill, Carrington Hall, CB #7460, Chapel Hill, NC 27599-7460, USA. 5. Newborn Critical Care Center, University of North Carolina Children's Hospital, 101 Manning Drive, Chapel Hill, NC 27514, USA. 6. WakeMed Physician Practices-Pediatrics, 3024 New Bern Ave., Raleigh, NC 27610, USA.
Abstract
OBJECTIVES: To describe parents' experiences when their child with congenital heart disease (CHD) underwent heart surgery. BACKGROUND: About 40,000 children are born with CHD in the United States each year. Very few studies have explored parents' experiences when their child was diagnosed with CHD and underwent heart surgery. METHODS: Descriptive phenomenology informed this study that consisted of two interviews with 13 parents. RESULTS: Parents experienced a "rollercoaster" of emotions. Critical times were when parents received their child's diagnosis, handed their child over to the surgical team, and visited their child in the pediatric intensive care unit after surgery. Related stressors were the uncertainty of outcomes after surgery, the loss of parental control, the physical appearance of their child, and the fear of the technological atmosphere in the intensive care unit. CONCLUSIONS: The ups and downs of parents' emotions reflected their child's changing condition and parents' adjustment to the condition.
OBJECTIVES: To describe parents' experiences when their child with congenital heart disease (CHD) underwent heart surgery. BACKGROUND: About 40,000 children are born with CHD in the United States each year. Very few studies have explored parents' experiences when their child was diagnosed with CHD and underwent heart surgery. METHODS: Descriptive phenomenology informed this study that consisted of two interviews with 13 parents. RESULTS: Parents experienced a "rollercoaster" of emotions. Critical times were when parents received their child's diagnosis, handed their child over to the surgical team, and visited their child in the pediatric intensive care unit after surgery. Related stressors were the uncertainty of outcomes after surgery, the loss of parental control, the physical appearance of their child, and the fear of the technological atmosphere in the intensive care unit. CONCLUSIONS: The ups and downs of parents' emotions reflected their child's changing condition and parents' adjustment to the condition.
Authors: Jinbing Bai; Felicity W K Harper; Louis A Penner; Kristen Swanson; Sheila J Santacroce Journal: Oncol Nurs Forum Date: 2017-11-01 Impact factor: 2.172
Authors: Nadya Golfenshtein; Alexandra L Hanlon; Janet A Deatrick; Barbara Medoff-Cooper Journal: Congenit Heart Dis Date: 2019-10-27 Impact factor: 2.007
Authors: Marjorie A C P de Man; Elisabeth W Segers; Renske Schappin; Kees van der Leeden; Roelie M Wösten-van Asperen; Hans Breur; Carolina de Weerth; Agnes van den Hoogen Journal: Acta Paediatr Date: 2021-01-13 Impact factor: 2.299