Literature DB >> 26807075

Patient Access to Personal Health Information: Regulation vs. Reality.

Kim Murphy-Abdouch1.   

Abstract

Patient-centered healthcare initiatives are underway to enable patients to take more responsibility for their healthcare. To do so, patients must be able to access, utilize, and share their health information. Access to health information through patient portals and other electronic means is increasing with the adoption of electronic health records (EHRs), but not all providers have EHRs or patient portals and not all information may be available electronically. Patients are expected to continue to request paper and electronic copies of their medical records. This research project was initiated to obtain up-to-date data regarding health information management (HIM) practices related to patients' access to their health information.

Entities:  

Keywords:  American Recovery and Reinvestment Act (ARRA); Health Information Technology for Economic and Clinical Health (HITECH) Act; Health Insurance Portability and Accountability Act (HIPAA); electronic health record (EHR); meaningful use; patient portal

Mesh:

Year:  2015        PMID: 26807075      PMCID: PMC4700868     

Source DB:  PubMed          Journal:  Perspect Health Inf Manag        ISSN: 1559-4122


  7 in total

1.  Release of information.

Authors:  Rose T Dunn
Journal:  J AHIMA       Date:  2010 Nov-Dec

2.  Patient perceptions of carrying their own health information: approaches towards responsibility and playing an active role in their own health - implications for a patient-held health file.

Authors:  Rowena Forsyth; Carol A Maddock; Rick A M Iedema; Marissa Lassere
Journal:  Health Expect       Date:  2010-12       Impact factor: 3.377

3.  Consumer-facing health information practices.

Authors:  Lydia Washington; Julie Wolter
Journal:  J AHIMA       Date:  2012-09

4.  Evolving ROI specialists into health record ambassadors.

Authors:  Rita Bowen; Alisha Smith; Keith W Thomas
Journal:  J AHIMA       Date:  2014-05

5.  The empowered patient. Preparing for a new patient interaction.

Authors:  Chris Dimick
Journal:  J AHIMA       Date:  2010-02

6.  Copy fees and patients' rights to obtain a copy of their medical records: from law to reality.

Authors:  Gianluigi Fioriglio; Peter Szolovits
Journal:  AMIA Annu Symp Proc       Date:  2005

Review 7.  Electronic patient portals: evidence on health outcomes, satisfaction, efficiency, and attitudes: a systematic review.

Authors:  Caroline Lubick Goldzweig; Greg Orshansky; Neil M Paige; Ali Alexander Towfigh; David A Haggstrom; Isomi Miake-Lye; Jessica M Beroes; Paul G Shekelle
Journal:  Ann Intern Med       Date:  2013-11-19       Impact factor: 25.391

  7 in total
  5 in total

1.  Randomized pilot trial of praise text messages to improve medication adherence among adolescents and young adults with liver transplants.

Authors:  Caitlin Sayegh; Deborah Im; Ilana K Moss; Ruby Urquiza; Shreena Patel; Dan W Thomas
Journal:  Pediatr Transplant       Date:  2022-07-19

2.  Personal health records in the Netherlands: potential user preferences quantified by a discrete choice experiment.

Authors:  Domino Determann; Mattijs S Lambooij; Dorte Gyrd-Hansen; Esther W de Bekker-Grob; Ewout W Steyerberg; Marcel Heldoorn; Line Bjørnskov Pedersen; G Ardine de Wit
Journal:  J Am Med Inform Assoc       Date:  2017-05-01       Impact factor: 4.497

3.  Comparing Characteristics of Patients Who Connect Their iPhones to an Electronic Health Records System Versus Patients Who Connect Without Personal Devices: Cohort Study.

Authors:  William J Gordon; David W Bates; Daniel Fuchs; John Pappas; Sara Silacci; Adam Landman
Journal:  J Med Internet Res       Date:  2019-08-22       Impact factor: 5.428

4.  Analysis of patient preferences on patient-provider interactions through the OpenNotes online portal in dermatology.

Authors:  Christopher Henderson; Zachary P Nahmias; Alan Fossa; Ethan Barnes; Susan Huang
Journal:  Int J Womens Dermatol       Date:  2021-10-05

5.  Assessment of US Hospital Compliance With Regulations for Patients' Requests for Medical Records.

Authors:  Carolyn T Lye; Howard P Forman; Ruiyi Gao; Jodi G Daniel; Allen L Hsiao; Marilyn K Mann; Dave deBronkart; Hugo O Campos; Harlan M Krumholz
Journal:  JAMA Netw Open       Date:  2018-10-05
  5 in total

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