Sarah Leggett1, Antje van der Zee-Neuen2, Annelies Boonen2, Dorcas Beaton3, Mihai Bojinca4, Ailsa Bosworth5, Sabrina Dadoun6, Bruno Fautrel6, Sofia Hagel7, Catherine Hofstetter8, Diane Lacaille9, Denise Linton3, Carina Mihai4, Ingemar F Petersson10, Pam Rogers9, Carlo Sciré11, Suzanne M M Verstappen12. 1. Arthritis Research UK Centre for Epidemiology, Centre for Musculoskeletal Research, Institute of Inflammation and Repair, The University of Manchester, Manchester Academic Health Science Centre, Manchester, UK, suzanne.verstappen@manchester.ac.uk. 2. Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Centre, and Caphri Research Institute, Maastricht University, Maastricht, the Netherlands. 3. Mobility Program Clinical Research Unit, St. Michael's Hospital, Toronto, ON, Canada. 4. Internal Medicine and Rheumatology Clinic, Dr. Ion Cantacuzino Hospital, Carol Davila University of Medicine and Pharmacy, Bucharest, Romania. 5. National Rheumatoid Arthritis Society, Maidenhead, UK. 6. Department of Rheumatology, Université Pierre et Marie Curie, Paris, France. 7. Department of Clinical Sciences Lund, Section of Rheumatology, Lund University and Skane University Hospital, Lund, Sweden. 8. Canadian Arthritis Patient Alliance, Toronto, ON. 9. Arthritis Research Centre of Canada, University of British Columbia, Vancouver, BC, Canada. 10. Orthopaedics, Clinical Sciences Lund, Lund University, Lund, Sweden. 11. Epidemiology Unit, Italian Society for Rheumatology, Milan, Italy and. 12. Arthritis Research UK Centre for Epidemiology, Centre for Musculoskeletal Research, Institute of Inflammation and Repair, The University of Manchester, Manchester Academic Health Science Centre, Manchester, UK, Arthritis Research UK/MRC Centre for Work and Health, University of Southampton, Southampton, UK.
Abstract
OBJECTIVES: To identify from a patient's perspective, difficulties and differences in the comprehension of five global presenteeism measures in patients with inflammatory arthritis and OA across seven countries. METHODS:Seventy patients with a diagnosis of inflammatory arthritis or OA in paid employment were recruited from seven countries across Europe and Canada. Patients were randomly allocated to be cognitively debriefed on 3/5 global measures [Work Productivity Scale - Rheumatoid Arthritis, Work Productivity and Activity Impairment Questionnaire (WPAI), Work Ability Index, Quality and Quantity questionnaire, and WHO Health and Work Performance Questionnaire (HPQ)], with the WPAI debriefed in all patients as a standard measure of comparison between countries and patients. NVivo was used to code the data into four themes: construct and anchor, time recall, reference frame, and attribution. RESULTS: Discrepancies were found in the interpretation of the word performance (HPQ) between countries, with Romania and Sweden relating performance to sports rather than work. Seventy percent of patients considered that a 7-day recall (WPAI) can accurately represent how their disease affects work productivity. The compared to normal reference (Quality and Quantity questionnaire) was reportedly too ambiguous, and the comparison with colleagues (HPQ), made many feel uncomfortable. Overall, 29% of patients said the WPAI was the most relevant to them, making it the most favoured measure. CONCLUSION: Overall, patients across countries agree that the construct of work productivity in the last 7 days can accurately reflect the impact of disease while at work. Some current constructs to assess at-work productivity are not interchangeable between languages.
RCT Entities:
OBJECTIVES: To identify from a patient's perspective, difficulties and differences in the comprehension of five global presenteeism measures in patients with inflammatory arthritis and OA across seven countries. METHODS: Seventy patients with a diagnosis of inflammatory arthritis or OA in paid employment were recruited from seven countries across Europe and Canada. Patients were randomly allocated to be cognitively debriefed on 3/5 global measures [Work Productivity Scale - Rheumatoid Arthritis, Work Productivity and Activity Impairment Questionnaire (WPAI), Work Ability Index, Quality and Quantity questionnaire, and WHO Health and Work Performance Questionnaire (HPQ)], with the WPAI debriefed in all patients as a standard measure of comparison between countries and patients. NVivo was used to code the data into four themes: construct and anchor, time recall, reference frame, and attribution. RESULTS: Discrepancies were found in the interpretation of the word performance (HPQ) between countries, with Romania and Sweden relating performance to sports rather than work. Seventy percent of patients considered that a 7-day recall (WPAI) can accurately represent how their disease affects work productivity. The compared to normal reference (Quality and Quantity questionnaire) was reportedly too ambiguous, and the comparison with colleagues (HPQ), made many feel uncomfortable. Overall, 29% of patients said the WPAI was the most relevant to them, making it the most favoured measure. CONCLUSION: Overall, patients across countries agree that the construct of work productivity in the last 7 days can accurately reflect the impact of disease while at work. Some current constructs to assess at-work productivity are not interchangeable between languages.
Authors: Mary Lucy Marques; Alessia Alunno; Sofia Ramiro; Polina Putrik; Annelies Boonen; Marieke M Ter Wee; Louise Falzon Journal: RMD Open Date: 2021-02
Authors: Antje van der Zee-Neuen; Polina Putrik; Sofia Ramiro; Andras P Keszei; Ihsane Hmamouchi; Maxime Dougados; Annelies Boonen Journal: Arthritis Res Ther Date: 2017-09-29 Impact factor: 5.156
Authors: James M Gwinnutt; Sarah Leggett; Mark Lunt; Anne Barton; Kimme L Hyrich; Karen Walker-Bone; Suzanne M M Verstappen Journal: Rheumatology (Oxford) Date: 2020-10-01 Impact factor: 7.580
Authors: Annelies Boonen; Polina Putrik; Mary Lucy Marques; Alessia Alunno; Lydia Abasolo; Dorcas Beaton; Neil Betteridge; Mathilda Bjørk; Maarten Boers; Boryana Boteva; Bruno Fautrel; Francis Guillemin; Elsa F Mateus; Elena Nikiphorou; Márta Péntek; Fernando Pimentel Santos; Johannes L Severens; Suzanne M M Verstappen; Karen Walker-Bone; Johan Karlsson Wallman; Marieke M Ter Wee; René Westhovens; Sofia Ramiro Journal: Ann Rheum Dis Date: 2021-04-08 Impact factor: 19.103