Literature DB >> 26767472

Defining the Scope of Public Engagement: Examining the "Right Not to Know" in Public Health Genomics.

Clarissa Allen1, Karine Sénécal2, Denise Avard3.   

Abstract

In this article, we explore the concept of a "right not to know" on a population rather than individual level. We argue that a population level "right not to know" is a useful concept for helping to define the appropriate boundaries of public engagement initiatives in the emerging public health genomics context.
© 2014 American Society of Law, Medicine & Ethics, Inc.

Mesh:

Year:  2014        PMID: 26767472     DOI: 10.1111/jlme.12114

Source DB:  PubMed          Journal:  J Law Med Ethics        ISSN: 1073-1105            Impact factor:   1.718


  2 in total

1.  The Ethics of General Population Preventive Genomic Sequencing: Rights and Social Justice.

Authors:  Clair Morrissey; Rebecca L Walker
Journal:  J Med Philos       Date:  2018-01-12

2.  Genomics England's implementation of its public engagement strategy: Blurred boundaries between engagement for the United Kingdom's 100,000 Genomes project and the need for public support.

Authors:  Gabrielle Natalie Samuel; Bobbie Farsides
Journal:  Public Underst Sci       Date:  2017-12-14
  2 in total

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