Literature DB >> 26758476

Carers' and service users' experiences of early intervention in psychosis services: implications for care partnerships.

Jon Allard1, Susan Lancaster1, Sara Clayton1, Tim Amos1, Max Birchwood2.   

Abstract

AIM: To explore carers' and service users' experiences of UK Early Intervention Services following referral for first-episode psychosis.
METHODS: Thirty-two semi-structured interviews (16 interviews with service users and 16 corresponding interviews with their carers) were completed and analysed.
RESULTS: Carers spoke retrospectively and prospectively by framing their accounts into the periods before and since their engagement with Early Intervention Services. Desperation was evident as emotive experiences were recalled prior to referral. Relief then emerged as carers described support and engagement with key workers. Hope and optimism for the service user's prognosis and life trajectory were also expressed.Service users described similar positive experiences of Early Intervention Services and the support and insight they had gained through their relationships with key workers. They were however less focused on accounts of desperation and relief and more immersed in their current understanding and attempts to normalize their experiences of first-episode psychosis. Prognosis and future trajectories were only discussed tentatively.
CONCLUSION: Communication and 'partnerships' with service users and carers are essential for effective service engagement, delivery of care and the reduction in relapse following first-episode psychosis. This study highlights how key workers from Early Intervention Services are appropriately valued and situated to develop such relationships. Findings also reveal that service users' and carers' focus and expectations of recovery vary during the early stages of engagement with services. How key workers manage awareness and communication around such differing expectations is a crucial consideration for maintaining the 'partnerships' necessary for effective service provision.
© 2016 John Wiley & Sons Australia, Ltd.

Entities:  

Keywords:  early medical intervention; patient; psychosis; qualitative research; service user

Mesh:

Year:  2016        PMID: 26758476     DOI: 10.1111/eip.12309

Source DB:  PubMed          Journal:  Early Interv Psychiatry        ISSN: 1751-7885            Impact factor:   2.732


  2 in total

1.  Family Experiences Prior to the Initiation of Care for First-Episode Psychosis: A Meta-Synthesis of Qualitative Studies.

Authors:  Oladunni Oluwoye; Sunny Chieh Cheng; Elizabeth Fraser; Bryony Stokes; Michael G McDonell
Journal:  J Child Fam Stud       Date:  2019-12-25

2.  'Care co-ordinator in my pocket': a feasibility study of mobile assessment and therapy for psychosis (TechCare).

Authors:  Nadeem Gire; Neil Caton; Mick McKeown; Naeem Mohmed; Joy Duxbury; James Kelly; Miv Riley; Peter J Taylor; Christopher D J Taylor; Farooq Naeem; Imran Bashir Chaudhry; Nusrat Husain
Journal:  BMJ Open       Date:  2021-11-16       Impact factor: 2.692

  2 in total

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