Literature DB >> 26758255

"Be Prepared if I Bring It Up:" Patients' Perceptions of the Utility of Religious and Spiritual Discussion During Genetic Counseling.

Amanda Bartenbaker Thompson1, Deborah Cragun2, J E Sumerau3, Ryan T Cragun3, Vanessa De Gifis4, Angela Trepanier5.   

Abstract

As debates continue about the relevance of religion to health care, research is needed to guide decisions about whether genetic counselors (GCs) should routinely address religious and/or spiritual (R/S) issues with their patients. We conducted an online survey to gauge patient perspectives on this issue. Among the 70 respondents, frequencies of closed-ended responses and thematic analyses of open-ended responses revealed multiple patient concerns related to R/S discussions with GCs. Although 60 respondents reported being R/S, only a small minority would want to discuss R/S issues if it meant less time discussing medical information. Most respondents also expressed opinions that: 1) genetic counseling should be about science; 2) GCs are not qualified to discuss R/S issues; 3) other outlets are available to meet the needs of patients who want R/S counseling; and/or 4) R/S discussions are more likely to be acceptable if patients broach the topic or in specific circumstances (e.g., when patients are facing end-of life issues). Overall, responses suggest routine or comprehensive R/S assessments or discussions are not necessary and that GCs would be best equipped to help all their patients if they were prepared to listen, be supportive, and make referrals when R/S issues arise in clinic.

Entities:  

Keywords:  Genetic counseling content; Patient perspectives; Qualitative research; Religion and health; Religion and spirituality

Mesh:

Year:  2016        PMID: 26758255     DOI: 10.1007/s10897-015-9922-9

Source DB:  PubMed          Journal:  J Genet Couns        ISSN: 1059-7700            Impact factor:   2.537


  9 in total

1.  Ethical and religious directives for Catholic health care services.

Authors: 
Journal:  Origins       Date:  2001-07-19

2.  A new definition of Genetic Counseling: National Society of Genetic Counselors' Task Force report.

Authors:  Robert Resta; Barbara Bowles Biesecker; Robin L Bennett; Sandra Blum; Susan Estabrooks Hahn; Michelle N Strecker; Janet L Williams
Journal:  J Genet Couns       Date:  2006-04       Impact factor: 2.537

3.  Spiritual assessment in genetic counseling.

Authors:  Linda M Reis; Robert Baumiller; William Scrivener; Geoffrey Yager; Nancy Steinberg Warren
Journal:  J Genet Couns       Date:  2007-02       Impact factor: 2.537

4.  Genetic counselors' religiosity & spirituality: are genetic counselors different from the general population?

Authors:  Ryan T Cragun; Amelia R Woltanski; Melanie F Myers; Deborah L Cragun
Journal:  J Genet Couns       Date:  2009-10-03       Impact factor: 2.537

5.  Grounded theory in genetic counseling research: an interpretive perspective.

Authors:  Robin E Grubs; Maria Piantanida
Journal:  J Genet Couns       Date:  2010-02-02       Impact factor: 2.537

6.  Religious traditions and prenatal genetic counseling.

Authors:  Rebecca Rae Anderson
Journal:  Am J Med Genet C Semin Med Genet       Date:  2009-02-15       Impact factor: 3.908

7.  Making sense of genetic uncertainty: the role of religion and spirituality.

Authors:  Mary T White
Journal:  Am J Med Genet C Semin Med Genet       Date:  2009-02-15       Impact factor: 3.908

8.  Spirituality and health: the development of a field.

Authors:  Christina M Puchalski; Benjamin Blatt; Mikhail Kogan; Amy Butler
Journal:  Acad Med       Date:  2014-01       Impact factor: 6.893

9.  Patient preference for physician discussion and practice of spirituality.

Authors:  Charles D MacLean; Beth Susi; Nancy Phifer; Linda Schultz; Deborah Bynum; Mark Franco; Andria Klioze; Michael Monroe; Joanne Garrett; Sam Cykert
Journal:  J Gen Intern Med       Date:  2003-01       Impact factor: 5.128

  9 in total
  1 in total

1.  The Relationship Among Spirituality, Self-Efficacy, COVID-19 Anxiety, and Hopelessness During the COVID-19 Process in Turkey: A Path Analysis.

Authors:  Figen Kasapoğlu
Journal:  J Relig Health       Date:  2022-01-06
  1 in total

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