Literature DB >> 26755039

Collaborative priority setting for human immunodeficiency virus rehabilitation research: A case report.

Gayle J Restall, Tara N Carnochan, Kerstin Stieber Roger, Theresa M Sullivan, Emily J Etcheverry, Pumulo Roddy.   

Abstract

BACKGROUND: The inclusion of community members and other stakeholders in the establishment of research priorities is vital to ensuring that priorities are congruent with the main concerns of affected communities.
PURPOSE: The purpose of this project was to identify priority research topics for addressing the activity and community participation needs of people living with human immunodeficiency virus (HIV) and meaningfully involve multiple stakeholders in the development of those priorities.
METHOD: We invited people living with HIV, researchers, service providers, and policy makers to a 2-day forum. Twenty-six people participated in developing priorities through the application of two methodologies, the World Café and Dotmocracy. We evaluated the forum though immediate dialogue and a postproject survey.
FINDINGS: Participants identified 10 high-priority research topics. Evaluation findings highlighted positive substantive, instrumental, personal, and normative outcomes of stakeholder involvement. IMPLICATIONS: The identified priority topics can guide future occupational therapy practice and research in this emerging area. © CAOT 2015.

Entities:  

Keywords:  Consumer participation; HIV; Knowledge translation; Occupational therapy; Social participation

Mesh:

Year:  2015        PMID: 26755039     DOI: 10.1177/0008417415577423

Source DB:  PubMed          Journal:  Can J Occup Ther        ISSN: 0008-4174            Impact factor:   1.614


  9 in total

1.  The top research questions asked by people with lived depression experience in Alberta: a survey.

Authors:  Lorraine J Breault; Katherine Rittenbach; Kelly Hartle; Robbie Babins-Wagner; Catherine de Beaudrap; Yamile Jasaui; Emily Ardell; Scot E Purdon; Ashton Michael; Ginger Sullivan; Aakai'naimsskai'piiaakii Sharon Ryder Unger; Lorin Vandall-Walker; Brad Necyk; Kiara Krawec; Elizabeth Manafò; Ping Mason-Lai
Journal:  CMAJ Open       Date:  2018-09-28

2.  Methods for Identifying Health Research Gaps, Needs, and Priorities: a Scoping Review.

Authors:  Eunice C Wong; Alicia R Maher; Aneesa Motala; Rachel Ross; Olamigoke Akinniranye; Jody Larkin; Susanne Hempel
Journal:  J Gen Intern Med       Date:  2021-11-08       Impact factor: 5.128

3.  Selection of Pediatric Mental Health Quality Measures for Health System Improvement in British Columbia Based on a Modified Delphi Approach.

Authors:  Sina Waibel; Wan Ling Wu; Michael Smith; L Kit Johnson; Rita D Janke
Journal:  Front Pediatr       Date:  2022-07-06       Impact factor: 3.569

Review 4.  Patient and public engagement in priority setting: A systematic rapid review of the literature.

Authors:  Elizabeth Manafò; Lisa Petermann; Virginia Vandall-Walker; Ping Mason-Lai
Journal:  PLoS One       Date:  2018-03-02       Impact factor: 3.240

5.  Hope, disappointment and perseverance: Reflections of people with Myalgic encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Multiple Sclerosis participating in biomedical research. A qualitative focus group study.

Authors:  Eliana M Lacerda; Clare McDermott; Caroline C Kingdon; Jack Butterworth; Jacqueline M Cliff; Luis Nacul
Journal:  Health Expect       Date:  2019-01-10       Impact factor: 3.377

6.  Supporting choices about HIV disclosure in the workplace: A cross-Canada survey of strategies.

Authors:  Gayle Restall; Alexandria Simms; Emily Etcheverry; Kerstin Roger; Dawn James; Pumulo Roddy; Wendy Porch; Jeff Potts; Dave Skitch; Tammy Yates
Journal:  Work       Date:  2019

Review 7.  Priorities of patients, caregivers and health-care professionals for health research - A systematic review.

Authors:  Michael Levelink; Mona Voigt-Barbarowicz; Anna Levke Brütt
Journal:  Health Expect       Date:  2020-07-09       Impact factor: 3.377

8.  Participatory methods for research prioritization in primary care: an analysis of the World Café approach in Ireland and the USA.

Authors:  Anne MacFarlane; Rose Galvin; Madeleine O'Sullivan; Chris McInerney; Eoghan Meagher; Daniel Burke; Joseph W LeMaster
Journal:  Fam Pract       Date:  2017-06-01       Impact factor: 2.267

9.  People with lived experience (PWLE) of depression: describing and reflecting on an explicit patient engagement process within depression research priority setting in Alberta, Canada.

Authors:  Lorraine J Breault; Katherine Rittenbach; Kelly Hartle; Robbie Babins-Wagner; Catherine de Beaudrap; Yamile Jasaui; Emily Ardell; Scot E Purdon; Ashton Michael; Ginger Sullivan; Aakai'naimsskai'piiaakii Sharon Ryder Unger; Lorin Vandall-Walker; Brad Necyk; Kiara Krawec; Elizabeth Manafò; Ping Mason-Lai
Journal:  Res Involv Engagem       Date:  2018-10-16
  9 in total

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