Literature DB >> 26753106

Building capacity for birth defects surveillance in Africa: Implementation of an intermediate birth defects surveillance workshop.

Alina Flores1, Diana Valencia1, Ahlia Sekkarie2, Christina L Hillard3, Jennifer Williams1, Boris Groisman4, Lorenzo D Botto5, Juan Pablo Peña-Rosas6, Lieven Bauwens7, Pierpaolo Mastroiacovo8.   

Abstract

Each year around the world, it is estimated that 300,000 neonates are born with a neural tube defect. Many countries, however, are still lacking comprehensive birth defects surveillance registries. Comprehensive birth defects surveillance systems can help countries understand the magnitude and distribution of the problem. These systems can also provide information about biological, contextual, social and environmental determinants of birth defects. This information in turn can be used to identify effective and implementable solutions, and to evaluate prevention and management strategies to improve quality performance. This paper summarizes the development and implementation of an online pre-course training and in-person surveillance workshop conducted between 2014 December and 2015 March for representatives from six African countries. Feedback given by participants provided valuable lessons learned that can be applied to subsequent trainings and workshops.

Entities:  

Year:  2015        PMID: 26753106      PMCID: PMC4706176     

Source DB:  PubMed          Journal:  J Glob Health Perspect


  4 in total

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Authors:  Bruno de Benoist
Journal:  Food Nutr Bull       Date:  2008-06       Impact factor: 2.069

2.  Prevention of neural tube defects: results of the Medical Research Council Vitamin Study. MRC Vitamin Study Research Group.

Authors: 
Journal:  Lancet       Date:  1991-07-20       Impact factor: 79.321

3.  Prevention of neural-tube defects with folic acid in China. China-U.S. Collaborative Project for Neural Tube Defect Prevention.

Authors:  R J Berry; Z Li; J D Erickson; S Li; C A Moore; H Wang; J Mulinare; P Zhao; L Y Wong; J Gindler; S X Hong; A Correa
Journal:  N Engl J Med       Date:  1999-11-11       Impact factor: 91.245

4.  Prevention of the first occurrence of neural-tube defects by periconceptional vitamin supplementation.

Authors:  A E Czeizel; I Dudás
Journal:  N Engl J Med       Date:  1992-12-24       Impact factor: 91.245

  4 in total
  10 in total

1.  Neurosurgical management of hydrocephalus by a general surgeon in an extremely low resource setting: initial experience in North Kivu province of Eastern Democratic Republic of Congo.

Authors:  Sarah B Cairo; Justice Agyei; Kavira Nyavandu; David H Rothstein; Luc Malemo Kalisya
Journal:  Pediatr Surg Int       Date:  2018-02-16       Impact factor: 1.827

2.  Value of sharing and networking among birth defects surveillance programs: an ICBDSR perspective.

Authors:  Eva Bermejo-Sánchez; Lorenzo D Botto; Marcia L Feldkamp; Boris Groisman; Pierpaolo Mastroiacovo
Journal:  J Community Genet       Date:  2018-09-18

3.  Estimating the birth prevalence and pregnancy outcomes of congenital malformations worldwide.

Authors:  Sowmiya Moorthie; Hannah Blencowe; Matthew W Darlison; Joy Lawn; Joan K Morris; Bernadette Modell; A H Bittles; H Blencowe; A Christianson; S Cousens; M W Darlison; S Gibbons; H Hamamy; B Khoshnood; C P Howson; J Lawn; P Mastroiacovo; B Modell; S Moorthie; J K Morris; P A Mossey; A J Neville; M Petrou; S Povey; J Rankin; L Schuler-Faccini; C Wren; K A Yunnis
Journal:  J Community Genet       Date:  2018-09-14

4.  Management and outcomes of gastrointestinal congenital anomalies in low, middle and high income countries: protocol for a multicentre, international, prospective cohort study.

Authors:  Naomi Jane Wright
Journal:  BMJ Open       Date:  2019-09-03       Impact factor: 2.692

5.  A hospital-based birth defects surveillance system in Kampala, Uganda.

Authors:  Daniel Mumpe-Mwanja; Linda Barlow-Mosha; Dhelia Williamson; Diana Valencia; Robert Serunjogi; Ayoub Kakande; Joyce Namale-Matovu; Jolly Nankunda; Doreen Birabwa-Male; Margaret Achom Okwero; Jesca Nsungwa-Sabiiti; Philippa Musoke
Journal:  BMC Pregnancy Childbirth       Date:  2019-10-22       Impact factor: 3.007

6.  Why are Birth Defects Surveillance Programs Important?

Authors:  Débora Gusmão Melo; Maria Teresa Vieira Sanseverino; Thanyse de Oliveira Schmalfuss; Mariela Larrandaburu
Journal:  Front Public Health       Date:  2021-11-02

7.  Development and Utility of a Birth Defects Surveillance Toolkit.

Authors:  Alina L Flores; Khadija Turay; Diana Valencia; Christina L Hillard; Ahlia Sekkarie; Ibrahim Zaganjor; Jennifer Williams; Yan Ping Qi; Amy M Cordero; Joseph Mulinare; Lorenzo D Botto; Juan Pablo Peña-Rosas; Boris Groisman; Pierpaolo Mastroiacovo
Journal:  J Glob Health Perspect       Date:  2018-06-14

8.  Mapping the landscape of global programmes to evaluate health interventions in pregnancy: the need for harmonised approaches, standards and tools.

Authors:  Patrick L F Zuber; Allisyn C Moran; Doris Chou; Françoise Renaud; Christine Halleux; Juan Pablo Peña-Rosas; Kavitha Viswanathan; Eve Lackritz; Robert Jakob; Elizabeth Mason; Smaragda Lamprianou; Christine Guillard-Maure
Journal:  BMJ Glob Health       Date:  2018-10-15

9.  Determinants of Neural Tube Defects among Newborns in Amhara Region, Ethiopia: A Case-Control Study.

Authors:  Abay Woday Tadesse; Ayesheshim Muluneh Kassa; Setognal Birara Aychiluhm
Journal:  Int J Pediatr       Date:  2020-10-30

10.  Mortality from gastrointestinal congenital anomalies at 264 hospitals in 74 low-income, middle-income, and high-income countries: a multicentre, international, prospective cohort study.

Authors: 
Journal:  Lancet       Date:  2021-07-13       Impact factor: 202.731

  10 in total

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