Literature DB >> 26690579

Engaging stakeholders to design a comparative effectiveness trial in children with uncontrolled asthma.

Kim Erwin1, Molly A Martin2, Tara Flippin1, Sarah Norell1, Ariana Shadlyn1, Jie Yang1, Paula Falco1, Jaime Rivera1, Stacy Ignoffo3, Rajesh Kumar4, Helen Margellos-Anast5, Michael McDermott6, Kate McMahon7, Giselle Mosnaim8, Sharmilee M Nyenhuis2, Valerie G Press9, Jessica E Ramsay5, Kenneth Soyemi10, Trevonne M Thompson2, Jerry A Krishnan2,11.   

Abstract

AIM: To present the methods and outcomes of stakeholder engagement in the development of interventions for children presenting to the emergency department (ED) for uncontrolled asthma.
METHODS: We engaged stakeholders (caregivers, physicians, nurses, administrators) from six EDs in a three-phase process to: define design requirements; prototype and refine; and evaluate.
RESULTS: Interviews among 28 stakeholders yielded themes regarding in-home asthma management practices and ED discharge experiences. Quantitative and qualitative evaluation showed strong preference for the new discharge tool over current tools.
CONCLUSION: Engaging end-users in contextual inquiry resulted in CAPE (CHICAGO Action Plan after ED discharge), a new stakeholder-balanced discharge tool, which is being tested in a multicenter comparative effectiveness trial.

Entities:  

Keywords:  asthma; health communication; patient discharge; pediatrics; stakeholder engagement; written action plan

Mesh:

Year:  2015        PMID: 26690579      PMCID: PMC4900169          DOI: 10.2217/cer.15.52

Source DB:  PubMed          Journal:  J Comp Eff Res        ISSN: 2042-6305            Impact factor:   1.744


  13 in total

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Authors:  Peyton A Eggleston; Arlene Butz; Cynthia Rand; Jean Curtin-Brosnan; Sukon Kanchanaraksa; Lee Swartz; Patrick Breysse; Timothy Buckley; Gregory Diette; Barry Merriman; Jerry A Krishnan
Journal:  Ann Allergy Asthma Immunol       Date:  2005-12       Impact factor: 6.347

2.  A health/patient education database for family practice.

Authors:  P A Gibson; C Ruby; M D Craig
Journal:  Bull Med Libr Assoc       Date:  1991-10

Review 3.  Improving comprehension for cancer patients with low literacy skills: strategies for clinicians.

Authors:  C C Doak; L G Doak; G H Friedell; C D Meade
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4.  Asthma action plans are highly variable and do not conform to best visual design practices.

Authors:  S Gupta; F T Wan; F M Ducharme; M H Chignell; M D Lougheed; S E Straus
Journal:  Ann Allergy Asthma Immunol       Date:  2012-02-23       Impact factor: 6.347

5.  Impact of inhaled antiinflammatory therapy on hospitalization and emergency department visits for children with asthma.

Authors:  R J Adams; A Fuhlbrigge; J A Finkelstein; P Lozano; J M Livingston; K B Weiss; S T Weiss
Journal:  Pediatrics       Date:  2001-04       Impact factor: 7.124

6.  Outcomes for implementation research: conceptual distinctions, measurement challenges, and research agenda.

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Review 7.  Understanding what helps or hinders asthma action plan use: a systematic review and synthesis of the qualitative literature.

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Review 8.  Geographic variability in childhood asthma prevalence in Chicago.

Authors:  Ruchi S Gupta; Xingyou Zhang; Lisa K Sharp; John J Shannon; Kevin B Weiss
Journal:  J Allergy Clin Immunol       Date:  2008-02-04       Impact factor: 10.793

9.  Lessons Learned for the Study of Childhood Asthma from the Centers for Children's Environmental Health and Disease Prevention Research.

Authors:  Peyton A Eggleston; Greg Diette; Michael Lipsett; Toby Lewis; Ira Tager; Rob McConnell; Elizabeth Chrischilles; Bruce Lanphear; Rachel Miller; Jerry Krishnan
Journal:  Environ Health Perspect       Date:  2005-10       Impact factor: 9.031

10.  Poor asthma education and medication compliance are associated with increased emergency department visits by asthmatic children.

Authors:  Saleh Al-Muhsen; Nour Horanieh; Said Dulgom; Zohair Al Aseri; Alejandro Vazquez-Tello; Rabih Halwani; Hamdan Al-Jahdali
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  7 in total

1.  Engaging end-users in intervention research study design.

Authors:  Molly A Martin; Valerie G Press; Kim Erwin; Helen Margellos-Anast; Stacy Ignoffo; Kate Sheridan McMahon; Giselle Mosnaim; Jessica Ramsay; S Margaret Paik
Journal:  J Asthma       Date:  2017-07-18       Impact factor: 2.515

2.  Design of a pragmatic trial in minority children presenting to the emergency department with uncontrolled asthma: The CHICAGO Plan.

Authors:  Jerry A Krishnan; Molly A Martin; Cortland Lohff; Giselle S Mosnaim; Helen Margellos-Anast; Julie A DeLisa; Kate McMahon; Kim Erwin; Leslie S Zun; Michael L Berbaum; Michael McDermott; Nina E Bracken; Rajesh Kumar; S Margaret Paik; Sharmilee M Nyenhuis; Stacy Ignoffo; Valerie G Press; Zachary E Pittsenbarger; Trevonne M Thompson
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3.  Childhood Asthma Disparities in Chicago: Developing Approaches to Health Inequities.

Authors:  Molly A Martin; Melissa Gutierrez Kapheim; Kim Erwin; Stacy Ignoffo; Kate McMahon; Amy OʼRourke; Lynn B Gerald; Meredith Barrett; Valerie G Press; Houshang Darabi; Jerry A Krishnan
Journal:  Fam Community Health       Date:  2018 Jul/Sep

Review 4.  Care transition interventions for children with asthma in the emergency department.

Authors:  Molly A Martin; Valerie G Press; Sharmilee M Nyenhuis; Jerry A Krishnan; Kim Erwin; Giselle Mosnaim; Helen Margellos-Anast; S Margaret Paik; Stacy Ignoffo; Michael McDermott
Journal:  J Allergy Clin Immunol       Date:  2016-12       Impact factor: 10.793

Review 5.  Effects of consumers and health providers working in partnership on health services planning, delivery and evaluation.

Authors:  Dianne Lowe; Rebecca Ryan; Lina Schonfeld; Bronwen Merner; Louisa Walsh; Lisa Graham-Wisener; Sophie Hill
Journal:  Cochrane Database Syst Rev       Date:  2021-09-15

6.  Optimizing a Nurse-led Transitional Home Visit Program in Preparation for a Randomized Control Trial.

Authors:  Hadley S Sauers-Ford; Heather Tubbs-Cooley; Angela M Statile; Rita H Pickler; Christine M White; Susan Wade-Murphy; Jennifer M Gold; Samir S Shah; Jeffrey M Simmons; Katherine A Auger; JoAnne Bachus; Andrew F Beck; Monica L Borell; Stephanie A Brunswick; Lenisa Chang; Judy A Heilman; Joseph A Jabour; Jane C Khoury; Margo J Moore; Susan N Sherman; Lauren G Solan; Heidi J Sucharew; Karen P Sullivan
Journal:  Pediatr Qual Saf       Date:  2017-01-25

7.  Engaging patients to improve quality of care: a systematic review.

Authors:  Yvonne Bombard; G Ross Baker; Elaina Orlando; Carol Fancott; Pooja Bhatia; Selina Casalino; Kanecy Onate; Jean-Louis Denis; Marie-Pascale Pomey
Journal:  Implement Sci       Date:  2018-07-26       Impact factor: 7.327

  7 in total

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