Literature DB >> 26689175

Service user involvement in research may lead to contrary rather than collaborative accounts: findings from a qualitative palliative care study.

Liz Forbat1, Gill Hubbard2.   

Abstract

AIM: The aim of this study was to explore what data emerge when former carergivers (co-researchers) are trained to interview current care-givers about their experiences.
BACKGROUND: Despite a trend of involving service users in conducting research interviews, there have been few examinations of how and whether a common service user identity has an impact on the data generated.
DESIGN: Four co-researchers were recruited, trained and supported to conduct qualitative interviews with 11 current carers of people receiving palliative services. Conversation analysis was used to examine the conversational characteristics of the research interviews. Data were collected in 2010-2011.
RESULTS: Conversation analysis identified that interactional difficulties were evident across the data. When co-researchers talked about their own experiences as carers, interviewees frequently changed the topic of conversation, thereby closing-down opportunities for further disclosure or elaboration from the interviewee about the original topic.
CONCLUSION: Conversation analysis identifies how caregiving identities are co-constructed and points where there is agreement and disagreement in the co-construction.
© 2015 John Wiley & Sons Ltd.

Entities:  

Keywords:  care-givers; conversation analysis; identity; nursing; palliative care; user involvement

Mesh:

Year:  2015        PMID: 26689175     DOI: 10.1111/jan.12865

Source DB:  PubMed          Journal:  J Adv Nurs        ISSN: 0309-2402            Impact factor:   3.187


  6 in total

1.  Lay involvement in the analysis of qualitative data in health services research: a descriptive study.

Authors:  S Garfield; S Jheeta; F Husson; A Jacklin; A Bischler; C Norton; B D Franklin
Journal:  Res Involv Engagem       Date:  2016-08-20

2.  Understanding family caregivers' needs to support relatives with advanced progressive disease at home: an ethnographic study in rural Portugal.

Authors:  Maria João Cardoso Teixeira; Wilson Abreu; Nilza Costa; Matthew Maddocks
Journal:  BMC Palliat Care       Date:  2020-05-25       Impact factor: 3.234

3.  Older Adults' Conduct of Everyday Life After Bereavement by Suicide: A Qualitative Study.

Authors:  Lisbeth Hybholt; Lene Lauge Berring; Annette Erlangsen; Elene Fleischer; Jørn Toftegaard; Elin Kristensen; Vibeke Toftegaard; Jenny Havn; Niels Buus
Journal:  Front Psychol       Date:  2020-06-19

4.  Facilitating non-tokenistic user involvement in research.

Authors:  Grace Inga Romsland; Kate Louise Milosavljevic; Tone Alm Andreassen
Journal:  Res Involv Engagem       Date:  2019-06-04

Review 5.  Patient and carer involvement in palliative care research: An integrative qualitative evidence synthesis review.

Authors:  Eleni Chambers; Clare Gardiner; Jill Thompson; Jane Seymour
Journal:  Palliat Med       Date:  2019-06-28       Impact factor: 4.762

6.  Setting the research agenda for living with and beyond cancer with comorbid illness: reflections on a research prioritisation exercise.

Authors:  D Cavers; S Cunningham-Burley; E Watson; E Banks; C Campbell
Journal:  Res Involv Engagem       Date:  2020-04-29
  6 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.