Literature DB >> 26688919

Sickle cell disease in adults: developing an appropriate care plan.

Nadine Matthie, Coretta Jenerette.   

Abstract

BACKGROUND: Sickle cell disease (SCD) is primarily characterized by pain. This chronic pain with acute exacerbations is the most common reason for hospital visits, admissions, and readmissions, particularly in young adults (aged 18–39 years). People who present to the hospital for pain crises often report that nurses lack knowledge of SCD and, consequently, they do not provide appropriate, timely care.
OBJECTIVES: Because pain episodes often result in hospital admissions, this article highlights prominent issues that staff nurses need to know.
METHODS: Using a review of the literature and case studies, the authors provide recommendations to improve care of adults with SCD.
FINDINGS: No objective signs of a sickle cell pain crisis exist. Patients react to pain in different ways and use various coping mechanisms in response. Suspected opioid addiction should not affect the provision of nursing care. Pain must be treated appropriately to decrease the potential for prolonged admissions and/or readmissions. Patients are to be acknowledged as experts and collaborated with in developing an appropriate plan of care. Advocacy on behalf of the patient is important for better communication with providers. With this knowledge, nurses will be better equipped to provide the appropriate and timely care required to manage pain crises experienced by individuals living with SCD.

Entities:  

Mesh:

Year:  2015        PMID: 26688919      PMCID: PMC5565201          DOI: 10.1188/15.CJON.562-567

Source DB:  PubMed          Journal:  Clin J Oncol Nurs        ISSN: 1092-1095            Impact factor:   1.027


  42 in total

1.  Coping Styles, Pain Expressiveness, and Implicit Theories of Chronic Pain.

Authors:  N C Higgins; S Jeffrey Bailey; Diane L LaChapelle; Katherine Harman; Thomas Hadjistavropoulos
Journal:  J Psychol       Date:  2014-11-14

2.  Reducing racial disparities in pain treatment: the role of empathy and perspective-taking.

Authors:  Brian B Drwecki; Colleen F Moore; Sandra E Ward; Kenneth M Prkachin
Journal:  Pain       Date:  2011-01-28       Impact factor: 6.961

Review 3.  Sickle cell disease in the United States: looking back and forward at 100 years of progress in management and survival.

Authors:  Hari Prabhakar; Carlton Haywood; Robert Molokie
Journal:  Am J Hematol       Date:  2010-05       Impact factor: 10.047

4.  Opioid pseudoaddiction--an iatrogenic syndrome.

Authors:  D E Weissman; J D Haddox
Journal:  Pain       Date:  1989-03       Impact factor: 6.961

5.  Perinatal implications of sickle cell disease.

Authors:  Nancy J MacMullen; Laura A Dulski
Journal:  MCN Am J Matern Child Nurs       Date:  2011 Jul-Aug       Impact factor: 1.412

6.  Association between elevated depressive symptoms and clinical disease severity in African-American adults with sickle cell disease.

Authors:  Brian Laurence; David George; Dexter Woods
Journal:  J Natl Med Assoc       Date:  2006-03       Impact factor: 1.798

7.  Role of self-care in sickle cell disease.

Authors:  Nadine Matthie; Coretta Jenerette; Susan McMillan
Journal:  Pain Manag Nurs       Date:  2014-10-31       Impact factor: 1.929

Review 8.  Patient-nurse partnerships.

Authors:  Sheila Doss; Peggy DePascal; Kimberly Hadley
Journal:  Nephrol Nurs J       Date:  2011 Mar-Apr       Impact factor: 0.959

9.  Treatment and prevention of pain due to vaso-occlusive crises in adults with sickle cell disease: an educational void.

Authors:  Lawrence R Solomon
Journal:  Blood       Date:  2007-10-16       Impact factor: 22.113

Review 10.  Thinking beyond sickling to better understand pain in sickle cell disease.

Authors:  Deepika S Darbari; Samir K Ballas; Daniel J Clauw
Journal:  Eur J Haematol       Date:  2014-05-16       Impact factor: 2.997

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  8 in total

1.  Understanding the Self-Management Practices of Young Adults with Sickle Cell Disease.

Authors:  Nadine Matthie; Coretta Jenerette
Journal:  J Sick Cell Dis Hemoglobinopathies       Date:  2017-05

2.  A Qualitative Study of Chronic Pain and Self-Management in Adults with Sickle Cell Disease.

Authors:  Nadine Matthie; Diana Ross; Cynthia Sinha; Kirshma Khemani; Nitya Bakshi; Lakshmanan Krishnamurti
Journal:  J Natl Med Assoc       Date:  2018-09-26       Impact factor: 1.798

3.  Eculizumab as a Treatment for Hyper-Haemolytic and Aplastic Crisis in Sickle Cell Disease.

Authors:  Ishan Patel; Mihir Odak; Steven Douedi; Abbas Alshami; Vandan D Upadhyaya; Mohammad Hossain; Madhurima Anne; Swapnil V Patel
Journal:  Eur J Case Rep Intern Med       Date:  2021-08-07

4.  Opioid Use in Adults With Sickle Cell Disease Hospitalized During Vaso-Occlusive Crisis: A Systematic Review.

Authors:  Jennel C Osborne; Zainab Osakwe; Michelle Odlum
Journal:  J Hematol       Date:  2021-04-27

Review 5.  What is appropriate care? An integrative review of emerging themes in the literature.

Authors:  Joelle Robertson-Preidler; Nikola Biller-Andorno; Tricia J Johnson
Journal:  BMC Health Serv Res       Date:  2017-06-30       Impact factor: 2.655

6.  Factors Associated with Growth Retardation in Children Suffering from Sickle Cell Anemia: First Report from Central Africa.

Authors:  Aimé Lukusa Kazadi; René Makuala Ngiyulu; Jean Lambert Gini-Ehungu; Jean Marie Mbuyi-Muamba; Michel Ntetani Aloni
Journal:  Anemia       Date:  2017-01-30

7.  Prevalence and predictors of chronic pain intensity and disability among adults with sickle cell disease.

Authors:  Nadine Matthie; Coretta Jenerette; Ashley Gibson; Sudeshna Paul; Melinda Higgins; Lakshmanan Krishnamurti
Journal:  Health Psychol Open       Date:  2020-04-28

8.  Factors Influencing Motivation and Engagement in Mobile Health Among Patients With Sickle Cell Disease in Low-Prevalence, High-Income Countries: Qualitative Exploration of Patient Requirements.

Authors:  David-Zacharie Issom; André Henriksen; Ashenafi Zebene Woldaregay; Jessica Rochat; Christian Lovis; Gunnar Hartvigsen
Journal:  JMIR Hum Factors       Date:  2020-03-24
  8 in total

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