Katherine M Piderman1, Carmen Radecki Breitkopf2, Sarah M Jenkins3, Maria I Lapid4, Gracia M Kwete5, Terin T Sytsma6, Laura A Lovejoy1, Timothy J Yoder1, Aminah Jatoi7. 1. Chaplain Services, Mayo Clinic Rochester, 200 First Street SW EI 2-130, Rochester, MN, USA. 2. Division of Health Care Policy and Research, Health Sciences Research, Mayo Clinic Rochester, 200 First St. SW Charlton 6-235, Rochester, MN, USA, 55905. 3. Biostatistics and Informatics, Mayo Clinic Rochester, Rochester, MN, USA. 4. Psychiatry and Psychology, Mayo Clinic Rochester, Rochester, MN, USA. 5. Mayo Medical School, Mayo Clinic Rochester, Rochester, MN, USA. 6. Internal Medicine, Mayo Clinic Rochester, Rochester, MN, USA. 7. Medical Oncology, Mayo Clinic Rochester, Rochester, MN, USA.
Abstract
OBJECTIVE: The objectives were to assess the feasibility of using a novel, comprehensive chaplain-led spiritual life review interview to develop a personal Spiritual Legacy Document (SLD) for persons with brain tumors and other neurodegenerative diseases and to describe spiritual well-being (SWB), spiritual coping, and quality of life (QOL) of patients and their support persons (SP) before and after receipt of the SLD. METHODS: Patient-SP pairs were enrolled over a 2-year period. Assessments included the Functional Assessment of Chronic Illness Therapy-Spiritual Expanded Version, Brief Religious Coping Scale, Brief COPE Inventory, and QOL Linear Analog Scale. Baseline assessments were completed prior to an audio-recorded spiritual life review interview with a chaplain. RESULTS: Thirty-two patient/SP pairs were enrolled; 27 completed baseline assessments and the interview. Twenty-four reviewed their SLD and were eligible for follow-up. A total of 15 patients and 12 SPs completed the 1-month follow-up; 10 patients and seven SPs completed the 3-month follow-up. Patients endorsed high levels of SWB and spiritual coping at baseline. Both patients and SPs evidenced improvement on several aspects of SWB, spiritual coping, and QOL at 1 month, but patients' decreased financial well-being was also observed. Patients and SPs demonstrated favorable changes in peacefulness and positive religious coping at both time points. CONCLUSIONS: A chaplain-led spiritual life review is a feasible intervention for patients with neurodegenerative disease and results in beneficial effects on patients and SPs.
OBJECTIVE: The objectives were to assess the feasibility of using a novel, comprehensive chaplain-led spiritual life review interview to develop a personal Spiritual Legacy Document (SLD) for persons with brain tumors and other neurodegenerative diseases and to describe spiritual well-being (SWB), spiritual coping, and quality of life (QOL) of patients and their support persons (SP) before and after receipt of the SLD. METHODS:Patient-SP pairs were enrolled over a 2-year period. Assessments included the Functional Assessment of Chronic Illness Therapy-Spiritual Expanded Version, Brief Religious Coping Scale, Brief COPE Inventory, and QOL Linear Analog Scale. Baseline assessments were completed prior to an audio-recorded spiritual life review interview with a chaplain. RESULTS: Thirty-two patient/SP pairs were enrolled; 27 completed baseline assessments and the interview. Twenty-four reviewed their SLD and were eligible for follow-up. A total of 15 patients and 12 SPs completed the 1-month follow-up; 10 patients and seven SPs completed the 3-month follow-up. Patients endorsed high levels of SWB and spiritual coping at baseline. Both patients and SPs evidenced improvement on several aspects of SWB, spiritual coping, and QOL at 1 month, but patients' decreased financial well-being was also observed. Patients and SPs demonstrated favorable changes in peacefulness and positive religious coping at both time points. CONCLUSIONS: A chaplain-led spiritual life review is a feasible intervention for patients with neurodegenerative disease and results in beneficial effects on patients and SPs.
Authors: Christina M D'Angelo; Sylvie Mrug; Daniel Grossoehme; David C Schwebel; Nina Reynolds; Kimberly Guion Reynolds Journal: J Clin Psychol Med Settings Date: 2019-12
Authors: Christina M Puchalski; Andrea Sbrana; Betty Ferrell; Najmeh Jafari; Stephen King; Tracy Balboni; Guido Miccinesi; Anna Vandenhoeck; Michael Silbermann; Lodovico Balducci; Julianna Yong; Andrea Antonuzzo; Alfredo Falcone; Carla Ida Ripamonti Journal: ESMO Open Date: 2019-02-16