Literature DB >> 26596125

Data sharing for public health research: A qualitative study of industry and academia.

Pamela A Saunders, Erin E Wilhelm, Sinae Lee, Elizabeth Merkhofer, Ira Shoulson.   

Abstract

Data sharing is a key biomedical research theme for the 21st century. Biomedical data sharing is the exchange of data among (non)affiliated parties under mutually agreeable terms to promote scientific advancement and the development of safe and effective medical products. Wide sharing of research data is important for scientific discovery, medical product development, and public health. Data sharing enables improvements in development of medical products, more attention to rare diseases, and cost-efficiencies in biomedical research. We interviewed 11 participants about their attitudes and beliefs about data sharing. Using a qualitative, thematic analysis approach, our analysis revealed a number of themes including: experiences, approaches, perceived challenges, and opportunities for sharing data.

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Year:  2014        PMID: 26596125     DOI: 10.1558/cam.v11i2.18310

Source DB:  PubMed          Journal:  Commun Med        ISSN: 1612-1783


  3 in total

1.  Use of the National Heart, Lung, and Blood Institute Data Repository.

Authors:  Sean A Coady; George A Mensah; Elizabeth L Wagner; Miriam E Goldfarb; Denise M Hitchcock; Carol A Giffen
Journal:  N Engl J Med       Date:  2017-03-29       Impact factor: 91.245

2.  Population health science as a unifying foundation for translational clinical and public health research.

Authors:  Mark R Cullen; Michael Baiocchi; Lisa Chamberlain; Isabella Chu; Ralph I Horwitz; Michelle Mello; Amy O'Hara; Sam Roosz
Journal:  SSM Popul Health       Date:  2022-03-01

3.  A qualitative analysis of the information science needs of public health researchers in an academic setting.

Authors:  Shanda L Hunt; Caitlin J Bakker
Journal:  J Med Libr Assoc       Date:  2018-04-01
  3 in total

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