Literature DB >> 26582520

Web-Based Intervention for Nutritional Management in Cystic Fibrosis: Development, Usability, and Pilot Trial.

Lori J Stark1, Lisa Opipari-Arrigan2, Stephanie S Filigno2, Stacey L Simon2, Amanda Leonard3, Peter J Mogayzel3, Joseph Rausch2, Cynthia Zion2, Scott W Powers2.   

Abstract

OBJECTIVES: Usability and pilot testing of a web intervention (BeInCharge.org [BIC]) of behavior plus nutrition intervention for children with cystic fibrosis (CF) ages 4-9 years.
METHODS: Think Aloud methodology was used with five mothers to assess usability and refine the intervention. A pilot trial was then conducted with 10 mothers of children with CF ages 4-9 years randomized to the web-based BIC or a Standard Care Control (STC). Change in weight gain for each group was compared in a pre-to-post design.
RESULTS: Mothers rated the usability and clarity of BIC highly. The pilot trial showed children of mothers who received BIC had a significant change in weight pre-to-post-treatment (0.67 kg, p = .04). Change for the STC was not significant (0.41 kg, p = .10).
CONCLUSIONS: A web-based behavior plus nutrition intervention appears promising in increasing weight gain in children with CF.
© The Author 2015. Published by Oxford University Press on behalf of the Society of Pediatric Psychology. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com.

Entities:  

Keywords:  behavioral intervention; cystic fibrosis; nutrition; web intervention

Mesh:

Year:  2015        PMID: 26582520      PMCID: PMC4888111          DOI: 10.1093/jpepsy/jsv108

Source DB:  PubMed          Journal:  J Pediatr Psychol        ISSN: 0146-8693


  24 in total

Review 1.  Consensus report on nutrition for pediatric patients with cystic fibrosis.

Authors:  Drucy Borowitz; Robert D Baker; Virginia Stallings
Journal:  J Pediatr Gastroenterol Nutr       Date:  2002-09       Impact factor: 2.839

2.  A meta-analytic review of eHealth interventions for pediatric health promoting and maintaining behaviors.

Authors:  Christopher C Cushing; Ric G Steele
Journal:  J Pediatr Psychol       Date:  2010-04-14

3.  Maintenance of weight loss in overweight middle-aged women through the Internet.

Authors:  Ellen C Cussler; Pedro J Teixeira; Scott B Going; Linda B Houtkooper; Lauve L Metcalfe; Robert M Blew; Jennifer R Ricketts; J'Fleur Lohman; Vanessa A Stanford; Timothy G Lohman
Journal:  Obesity (Silver Spring)       Date:  2008-02-28       Impact factor: 5.002

4.  A behavioral approach to increasing calorie consumption in children with cystic fibrosis.

Authors:  L J Stark; A M Bowen; V L Tyc; S Evans; M A Passero
Journal:  J Pediatr Psychol       Date:  1990-06

5.  Behavioral intervention to improve calorie intake of children with cystic fibrosis: treatment versus wait list control.

Authors:  L J Stark; M M Mulvihill; S W Powers; E Jelalian; K Keating; S Creveling; B Byrnes-Collins; I Harwood; M A Passero; M Light; D L Miller; M F Hovell
Journal:  J Pediatr Gastroenterol Nutr       Date:  1996-04       Impact factor: 2.839

6.  Descriptive analysis of eating behavior in school-age children with cystic fibrosis and healthy control children.

Authors:  L J Stark; M M Mulvihill; E Jelalian; A M Bowen; S W Powers; S Tao; S Creveling; M A Passero; I Harwood; M Light; A Lapey; M F Hovell
Journal:  Pediatrics       Date:  1997-05       Impact factor: 7.124

7.  Eating in preschool children with cystic fibrosis and healthy peers: behavioral analysis.

Authors:  L J Stark; E Jelalian; M M Mulvihill; S W Powers; A M Bowen; L E Spieth; K Keating; S Evans; S Creveling; I Harwood
Journal:  Pediatrics       Date:  1995-02       Impact factor: 7.124

8.  Better nutritional status in early childhood is associated with improved clinical outcomes and survival in patients with cystic fibrosis.

Authors:  Elizabeth H Yen; Hebe Quinton; Drucy Borowitz
Journal:  J Pediatr       Date:  2012-10-11       Impact factor: 4.406

Review 9.  Evidence for success of behavior modification in weight loss and control.

Authors:  J P Foreyt; G K Goodrick
Journal:  Ann Intern Med       Date:  1993-10-01       Impact factor: 25.391

Review 10.  Evidence-based practice recommendations for nutrition-related management of children and adults with cystic fibrosis and pancreatic insufficiency: results of a systematic review.

Authors:  Virginia A Stallings; Lori J Stark; Karen A Robinson; Andrew P Feranchak; Hebe Quinton
Journal:  J Am Diet Assoc       Date:  2008-05
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