Literature DB >> 26566037

Women's experience of HIV as a chronic illness in South Africa: hard-earned lives, biographical disruption and moral career.

Edwin Wouters1, Katinka De Wet2.   

Abstract

This article presents findings from a longitudinal qualitative study (48 in-depth interviews with 12 women on antiretroviral treatment (ART)) exploring the experience of living with HIV as a chronic illness in South Africa by applying the structural and interactionist perspectives on chronic illness. The structural perspective indicates that the illness experience needs to be contextualised within the wider framework of the women's hard-earned lives: throughout the interviews, the women tended to refuse singularising HIV/AIDS and continuously framed the illness within the context of general hardship and adversity. Employing an interactionist perspective, the repeated interviews demonstrated the partial applicability of the concept of biographical disruption to the illness experience: most women experienced feelings of denial and disbelief upon diagnosis, but the availability of ART clearly mitigated the impact of HIV on their biographies. In addition, our findings demonstrate that the interaction between structural aspects, (stigmatising) social relations, and the illness (and its treatment) determines the never-ending cycle of identity appraisals, revisions and improvements, rendering the moral career of the HIV-positive women on ART a continuous work in progress.
© 2015 Foundation for the Sociology of Health & Illness.

Entities:  

Keywords:  AIDS/HIV; biographical disruption; chronic illness; long-term illness; qualitative methods generally; women's health

Mesh:

Year:  2015        PMID: 26566037     DOI: 10.1111/1467-9566.12377

Source DB:  PubMed          Journal:  Sociol Health Illn        ISSN: 0141-9889


  7 in total

1.  Clinical ethics issues in HIV care in Canada: an institutional ethnographic study.

Authors:  Chris Kaposy; Nicole R Greenspan; Zack Marshall; Jill Allison; Shelley Marshall; Cynthia Kitson
Journal:  BMC Med Ethics       Date:  2017-02-06       Impact factor: 2.652

2.  Being HIV positive and staying on antiretroviral therapy in Africa: A qualitative systematic review and theoretical model.

Authors:  Ingrid Eshun-Wilson; Anke Rohwer; Lynn Hendricks; Sandy Oliver; Paul Garner
Journal:  PLoS One       Date:  2019-01-10       Impact factor: 3.240

3.  "It Was as Though My Spirit Left, Like They Killed Me": The Disruptive Impact of an HIV-Positive Diagnosis among Women in the Dominican Republic.

Authors:  Denise Diaz Payán; Kathryn Pitkin Derose; María Altagracia Fulcar; Hugo Farías; Kartika Palar
Journal:  J Int Assoc Provid AIDS Care       Date:  2019 Jan-Dec

4.  Experiences of patients with primary HIV diagnosis in Kermanshah-Iran regarding the nature of HIV/AIDS: A qualitative study.

Authors:  Fatemeh Gh Barkish; Rostam Jalali; Amir Jalali
Journal:  Heliyon       Date:  2019-08-29

5.  'The spiral just keeps on going': Cascading health and social issues for women living and aging with HIV.

Authors:  Lisa-Maree Herron; Allyson Mutch; Melania Mugamu; Chris Howard; Lisa Fitzgerald
Journal:  Womens Health (Lond)       Date:  2022 Jan-Dec

6.  Probing the Processes: Longitudinal Qualitative Research on Social Determinants of HIV.

Authors:  Clare Barrington; Alana Rosenberg; Deanna Kerrigan; Kim M Blankenship
Journal:  AIDS Behav       Date:  2021-03-27

7.  A cross-cultural adaptation and validation of a scale to assess illness identity in adults living with a chronic illness in South Africa: a case of HIV.

Authors:  Neo Phyllis Sematlane; Lucia Knight; Caroline Masquillier; Edwin Wouters
Journal:  AIDS Res Ther       Date:  2022-08-21       Impact factor: 2.846

  7 in total

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