Joany K Millenaar1, Marjolein E de Vugt2, Christian Bakker3, Deliane van Vliet4, Yolande A L Pijnenburg5, Raymond T C M Koopmans6, Frans R J Verhey2. 1. School for Mental Health and Neuroscience, Alzheimer Center Limburg, Maastricht University Medical Center, Maastricht, The Netherlands. Electronic address: joany.millenaar@maastrichtuniversity.nl. 2. School for Mental Health and Neuroscience, Alzheimer Center Limburg, Maastricht University Medical Center, Maastricht, The Netherlands. 3. Florence Mariahoeve Center for Specialized Care in Young-Onset Dementia, Den Haag, the Netherlands; Department of Primary and Community Care: Center for Family Medicine, Geriatric Care and Public Health, Radboud University Medical Center, Nijmegen, the Netherlands. 4. Alzheimer Center Nijmegen, Radboud University Medical Center, Nijmegen, the Netherlands. 5. Alzheimer Centre and Department of Neurology, VU University Medical Centre, Amsterdam, the Netherlands. 6. Department of Primary and Community Care: Center for Family Medicine, Geriatric Care and Public Health, Radboud University Medical Center, Nijmegen, the Netherlands; Alzheimer Center Nijmegen, Radboud University Medical Center, Nijmegen, the Netherlands; Joachim en Anna Centre for Specialized Geriatric Care, Nijmegen, the Netherlands.
Abstract
OBJECTIVES: The impact of the dementia might be more severe for caregivers of people with young onset dementia (YOD) compared with those who care for someone with late onset dementia (LOD), as a young age among caregivers has been identified as a predictor of increased burden. The present study compares well-being between LOD and YOD caregivers longitudinally because this knowledge is essential in order to develop adequate support programs. DESIGN, SETTING, AND PARTICIPANTS: 220 YOD and 108 LOD patient-caregiver dyads were included from two prospective cohorts with a 2-year follow up. To assess well-being we used the Short Sense of Competence Questionnaire, the RAND-36, the Symptom Checklist 90, and the Montgomery Asberg Depression Rating Scale. The severity and the course of the different measures used to describe caregiver burden were analyzed with linear mixed models. RESULTS: Caregivers in both groups experienced high levels of physical and psychological complaints, mild depressive symptoms, lower health-related quality of life (HRQoL), and decreased feelings of competence. The severity and the course of most measures were similar in both groups, although HRQoL on both the physical and the mental domain was lower for the YOD caregivers. CONCLUSIONS: The number of actual psychological and physical complaints does not differ between YOD and LOD caregivers. YOD caregivers have greater perceived difficulties in daily life because of these complaints, however.
OBJECTIVES: The impact of the dementia might be more severe for caregivers of people with young onset dementia (YOD) compared with those who care for someone with late onset dementia (LOD), as a young age among caregivers has been identified as a predictor of increased burden. The present study compares well-being between LOD and YOD caregivers longitudinally because this knowledge is essential in order to develop adequate support programs. DESIGN, SETTING, AND PARTICIPANTS: 220 YOD and 108 LOD patient-caregiver dyads were included from two prospective cohorts with a 2-year follow up. To assess well-being we used the Short Sense of Competence Questionnaire, the RAND-36, the Symptom Checklist 90, and the Montgomery Asberg Depression Rating Scale. The severity and the course of the different measures used to describe caregiver burden were analyzed with linear mixed models. RESULTS: Caregivers in both groups experienced high levels of physical and psychological complaints, mild depressive symptoms, lower health-related quality of life (HRQoL), and decreased feelings of competence. The severity and the course of most measures were similar in both groups, although HRQoL on both the physical and the mental domain was lower for the YOD caregivers. CONCLUSIONS: The number of actual psychological and physical complaints does not differ between YOD and LOD caregivers. YOD caregivers have greater perceived difficulties in daily life because of these complaints, however.
Authors: Lizzy Mm Boots; Marjolein E de Vugt; Claudia Mj Smeets; Gertrudis Ijm Kempen; Frans Rj Verhey Journal: J Med Internet Res Date: 2017-12-19 Impact factor: 5.428
Authors: María Dolores Ruiz-Fernández; José Manuel Hernández-Padilla; Rocío Ortiz-Amo; Cayetano Fernández-Sola; Isabel María Fernández-Medina; José Granero-Molina Journal: Int J Environ Res Public Health Date: 2019-10-07 Impact factor: 3.390