Shayan Shirazian1, Natalie Crnosija2, Katie Weinger3, Alan M Jacobson4, Joonho Park5, Molly L Tanenbaum6, Jeffrey S Gonzalez6, Joseph Mattana5, Amy C Hammock2. 1. Department of Medicine, Winthrop University Hospital, Mineola, NY, USA sshirazian@winthrop.org. 2. Program in Public Health, Stony Brook University, Stony Brook, NY, USA. 3. Clinical, Behavioral and Outcomes Research, Joslin Diabetes Center, Harvard Medical School, Boston, MA, USA. 4. Winthrop Research Institute, Winthrop University Hospital, Mineola, NY, USA. 5. Department of Medicine, Winthrop University Hospital, Mineola, NY, USA. 6. Ferkauf Graduate School of Psychology, Yeshiva University, Bronx, NY, USA.
Abstract
BACKGROUND: The purpose of this study was to explore views related to the self-management of type 2 diabetes and chronic kidney disease. METHODS: We conducted three semi-structured focus groups in participants with type 2 diabetes and chronic kidney disease. Interviews were transcribed, coded, and analyzed using thematic analysis. Credibility was supported through triangulation of data sources and the use of multiple investigators from different disciplines. RESULTS: Twenty-three adults participated. Three major themes were identified: emotional reactions to health state, the impact of family dynamics on self-management, and the burden of self-management regimens. Family dynamics were found to be a barrier and support to self-management, while complicated self-management regimens were found to be a barrier. Additionally, participants expressed several emotional reactions related to their CKD status, including regret related to having developed CKD and distress related both to their treatment regimens and the future possibility of dialysis. CONCLUSIONS: This exploratory study of patients with type 2 diabetes and chronic kidney disease describes barriers and supports to self-management and emotional reactions to chronic kidney disease status. Future research should confirm these findings in a larger population and should include family members and/or health care providers to help further define problems with self-management in patients with type 2 diabetes and chronic kidney disease.
BACKGROUND: The purpose of this study was to explore views related to the self-management of type 2 diabetes and chronic kidney disease. METHODS: We conducted three semi-structured focus groups in participants with type 2 diabetes and chronic kidney disease. Interviews were transcribed, coded, and analyzed using thematic analysis. Credibility was supported through triangulation of data sources and the use of multiple investigators from different disciplines. RESULTS: Twenty-three adults participated. Three major themes were identified: emotional reactions to health state, the impact of family dynamics on self-management, and the burden of self-management regimens. Family dynamics were found to be a barrier and support to self-management, while complicated self-management regimens were found to be a barrier. Additionally, participants expressed several emotional reactions related to their CKD status, including regret related to having developed CKD and distress related both to their treatment regimens and the future possibility of dialysis. CONCLUSIONS: This exploratory study of patients with type 2 diabetes and chronic kidney disease describes barriers and supports to self-management and emotional reactions to chronic kidney disease status. Future research should confirm these findings in a larger population and should include family members and/or health care providers to help further define problems with self-management in patients with type 2 diabetes and chronic kidney disease.
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