Literature DB >> 26536503

Unleashing the power of administrative health data: the Scottish model.

Stephen Pavis1, Andrew D Morris2.   

Abstract

Data and information generated through the provision and administration of health and social care provide potentially valuable untapped resources that can contribute to the development of effective and efficient services. We describe the Scottish system, which seeks to unleash, at scale, the power of administrative and health service data as part of the UK-wide Farr Institute of Health Informatics Research program. The 'Scottish model' balances current public attitudes and views around the use of administrative and health data for research purposes with researchers' data requirements, and does so within Scotland's legal framework. The past 3 years has seen the completion of more than 150 projects by researchers from industry (17%), academia (53%) and health service providers (30%). In the future, the aim will be to ensure that research findings are disseminated widely and used to both improve health service provision and further develop public trust.

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Year:  2015        PMID: 26536503     DOI: 10.17061/phrp2541541

Source DB:  PubMed          Journal:  Public Health Res Pract        ISSN: 2204-2091


  11 in total

1.  Human Papilloma Virus (HPV) Oral Prevalence in Scotland (HOPSCOTCH): A Feasibility Study in Dental Settings.

Authors:  David I Conway; Chris Robertson; Heather Gray; Linda Young; Lisa M McDaid; Andrew J Winter; Christine Campbell; Jiafeng Pan; Kimberley Kavanagh; Sharon Kean; Ramya Bhatia; Heather Cubie; Jan E Clarkson; Jeremy Bagg; Kevin G Pollock; Kate Cuschieri
Journal:  PLoS One       Date:  2016-11-18       Impact factor: 3.240

Review 2.  Balancing the local and the universal in maintaining ethical access to a genomics biobank.

Authors:  Catherine Heeney; Shona M Kerr
Journal:  BMC Med Ethics       Date:  2017-12-28       Impact factor: 2.652

3.  Exploration of haplotype research consortium imputation for genome-wide association studies in 20,032 Generation Scotland participants.

Authors:  Reka Nagy; Thibaud S Boutin; Jonathan Marten; Jennifer E Huffman; Shona M Kerr; Archie Campbell; Louise Evenden; Jude Gibson; Carmen Amador; David M Howard; Pau Navarro; Andrew Morris; Ian J Deary; Lynne J Hocking; Sandosh Padmanabhan; Blair H Smith; Peter Joshi; James F Wilson; Nicholas D Hastie; Alan F Wright; Andrew M McIntosh; David J Porteous; Chris S Haley; Veronique Vitart; Caroline Hayward
Journal:  Genome Med       Date:  2017-03-07       Impact factor: 11.117

4.  Electronic health record and genome-wide genetic data in Generation Scotland participants.

Authors:  Shona M Kerr; Archie Campbell; Jonathan Marten; Veronique Vitart; Andrew M McIntosh; David J Porteous; Caroline Hayward
Journal:  Wellcome Open Res       Date:  2017-09-18

5.  Non drug-related and opioid-specific causes of 3262 deaths in Scotland's methadone-prescription clients, 2009-2015.

Authors:  Lu Gao; J Roy Robertson; Sheila M Bird
Journal:  Drug Alcohol Depend       Date:  2019-02-19       Impact factor: 4.492

6.  Evaluation of a national complex oral health improvement programme: a population data linkage cohort study in Scotland.

Authors:  Jamie Br Kidd; Alex D McMahon; Andrea Sherriff; Wendy Gnich; Ahmed Mahmoud; Lorna Md Macpherson; David I Conway
Journal:  BMJ Open       Date:  2020-11-24       Impact factor: 2.692

7.  Data Resource Profile: the Scottish Social Care Survey (SCS) and the Scottish Care Home Census (SCHC).

Authors:  D Henderson; J K Burton; E Lynch; D Clark; J Rintoul; N Bailey
Journal:  Int J Popul Data Sci       Date:  2019-09-02

8.  Risk-factors for methadone-specific deaths in Scotland's methadone-prescription clients between 2009 and 2013.

Authors:  Lu Gao; Polyxeni Dimitropoulou; J Roy Robertson; Stuart McTaggart; Marion Bennie; Sheila M Bird
Journal:  Drug Alcohol Depend       Date:  2016-08-29       Impact factor: 4.492

9.  Childhood adversity, mental health and suicide (CHASE): a methods protocol for a longitudinal case-control linked data study.

Authors:  N Dougall; J Savinc; M Maxwell; T Karatzias; R C O'Connor; B Williams; G Grandison; A John; H Cheyne; C Fyvie; J I Bisson; C Hibberd; S Abbott-Smith; L Nolan
Journal:  Int J Popul Data Sci       Date:  2019-04-02

10.  Scotland's 2009-2015 methadone-prescription cohort: Quintiles for daily dose of prescribed methadone and risk of methadone-specific death.

Authors:  Lu Gao; J Roy Robertson; Sheila M Bird
Journal:  Br J Clin Pharmacol       Date:  2020-07-06       Impact factor: 4.335

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