Literature DB >> 26530324

Development and Psychometric Evaluation of the HPV Clinical Trial Survey for Parents (CTSP-HPV) Using Traditional Survey Development Methods and Community Engagement Principles.

Jennifer Cunningham1, Kenneth A Wallston2, Consuelo H Wilkins3, Pamela C Hull4, Stephania T Miller1.   

Abstract

OBJECTIVE: This study describes the development and psychometric evaluation of HPV Clinical Trial Survey for Parents with Children Aged 9 to 15 (CTSP-HPV) using traditional instrument development methods and community engagement principles.
METHODS: An expert panel and parental input informed survey content and parents recommended study design changes (e.g., flyer wording). A convenience sample of 256 parents completed the final survey measuring parental willingness to consent to HPV clinical trial (CT) participation and other factors hypothesized to influence willingness (e.g., HPV vaccine benefits). Cronbach's a, Spearman correlations, and multiple linear regression were used to estimate internal consistency, convergent and discriminant validity, and predictively validity, respectively.
RESULTS: Internal reliability was confirmed for all scales (a ≥ 0.70.). Parental willingness was positively associated (p < 0.05) with trust in medical researchers, adolescent CT knowledge, HPV vaccine benefits, advantages of adolescent CTs (r range 0.33-0.42), supporting convergent validity. Moderate discriminant construct validity was also demonstrated. Regression results indicate reasonable predictive validity with the six scales accounting for 31% of the variance in parents' willingness.
CONCLUSIONS: This instrument can inform interventions based on factors that influence parental willingness, which may lead to the eventual increase in trial participation. Further psychometric testing is warranted.
© 2015 Wiley Periodicals, Inc.

Entities:  

Keywords:  adolescents; clinical trials; community engaged research; human papillomavirus; survey development

Mesh:

Substances:

Year:  2015        PMID: 26530324      PMCID: PMC5351134          DOI: 10.1111/cts.12347

Source DB:  PubMed          Journal:  Clin Transl Sci        ISSN: 1752-8054            Impact factor:   4.689


  23 in total

1.  Community engagement and investment in biomedical HIV prevention research for youth: rationale, challenges, and approaches.

Authors:  Jonathan M Ellen; Melissa Wallace; Fredrick K Sawe; Kevin Fisher
Journal:  J Acquir Immune Defic Syndr       Date:  2010-07       Impact factor: 3.731

2.  Participation in research studies: factors associated with failing to meet minority recruitment goals.

Authors:  Raegan W Durant; Roger B Davis; Diane Marie M St George; Ishan Canty Williams; Connie Blumenthal; Giselle M Corbie-Smith
Journal:  Ann Epidemiol       Date:  2007-05-25       Impact factor: 3.797

3.  Clinical research trials: factors that influence and hinder participation.

Authors:  Betty M Kennedy; Michael F Burnett
Journal:  J Cult Divers       Date:  2007

4.  Human papillomavirus infection among sexually active young women in the United States: Implications for developing a vaccination strategy.

Authors:  Lisa E Manhart; King K Holmes; Laura A Koutsky; Troy R Wood; Donna L Kenney; Qinghua Feng; Nancy B Kiviat
Journal:  Sex Transm Dis       Date:  2006-08       Impact factor: 2.830

5.  Factors that are associated with parental acceptance of human papillomavirus vaccines: a randomized intervention study of written information about HPV.

Authors:  Amanda F Dempsey; Gregory D Zimet; Robert L Davis; Laura Koutsky
Journal:  Pediatrics       Date:  2006-05       Impact factor: 7.124

6.  Brief report: Under-representation of African americans in autism genetic research: a rationale for inclusion of subjects representing diverse family structures.

Authors:  Claudia L Hilton; Robert T Fitzgerald; Kelley M Jackson; Rolanda A Maxim; Christopher C Bosworth; Paul T Shattuck; Daniel H Geschwind; John N Constantino
Journal:  J Autism Dev Disord       Date:  2010-05

7.  Prevalence of sexually transmitted infections among female adolescents aged 14 to 19 in the United States.

Authors:  Sara E Forhan; Sami L Gottlieb; Maya R Sternberg; Fujie Xu; S Deblina Datta; Geraldine M McQuillan; Stuart M Berman; Lauri E Markowitz
Journal:  Pediatrics       Date:  2009-11-23       Impact factor: 7.124

8.  Parental intention to have daughters receive the human papillomavirus vaccine.

Authors:  Gina S Ogilvie; Valencia P Remple; Fawziah Marra; Shelly A McNeil; Monika Naus; Karen L Pielak; Thomas G Ehlen; Simon R Dobson; Deborah M Money; David M Patrick
Journal:  CMAJ       Date:  2007-12-04       Impact factor: 8.262

9.  Factors that influence parental attitudes toward enrollment in type 1 diabetes trials.

Authors:  Daniela L Buscariollo; Mario A Davidson; Margo Black; William E Russell; Russell L Rothman; Daniel J Moore
Journal:  PLoS One       Date:  2012-08-28       Impact factor: 3.240

10.  Community Engagement Studios: A Structured Approach to Obtaining Meaningful Input From Stakeholders to Inform Research.

Authors:  Yvonne A Joosten; Tiffany L Israel; Neely A Williams; Leslie R Boone; David G Schlundt; Charles P Mouton; Robert S Dittus; Gordon R Bernard; Consuelo H Wilkins
Journal:  Acad Med       Date:  2015-12       Impact factor: 6.893

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  4 in total

1.  Factors influencing parental trust in medical researchers for child and adolescent patients' clinical trial participation.

Authors:  Jennifer Cunningham-Erves; Jason Deakings; Tilicia Mayo-Gamble; Kendria Kelly-Taylor; Stephania T Miller
Journal:  Psychol Health Med       Date:  2019-01-10       Impact factor: 2.423

2.  Adolescent and Parent Perceptions about Participation in Biomedical Sexual Health Trials.

Authors:  Sara E Landers; Jenny K R Francis; Marilyn C Morris; Christine Mauro; Susan L Rosenthal
Journal:  Ethics Hum Res       Date:  2020-05

3.  Adolescent Participation in HPV Vaccine Clinical Trials: Are Parents Willing?

Authors:  Jennifer Cunningham Erves; Tilicia L Mayo-Gamble; Pamela C Hull; Lauren Duke; Stephania T Miller
Journal:  J Community Health       Date:  2017-10

4.  Human Papillomavirus (HPV) Vaccine Knowledge, Awareness and Acceptance among Dental Students and Post-Graduate Dental Residents.

Authors:  Steven Kent Mann; Karl Kingsley
Journal:  Dent J (Basel)       Date:  2020-05-09
  4 in total

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