Literature DB >> 26518906

Informal dementia care: Consequences for caregivers' health and health care use in 8 European countries.

Patrick Bremer1, Esther Cabrera2, Helena Leino-Kilpi3, Connie Lethin4, Kai Saks5, Caroline Sutcliffe6, Maria Soto7, Sandra M G Zwakhalen8, Ansgar Wübker9.   

Abstract

BACKGROUND: Informal (dementia) care has economic consequences throughout the health care system. Whilst the health and wellbeing of the care recipient might improve, the health of the caregiver might also change, typically for the worse. Therefore, this analysis aims to examine the association between caregiving intensity and caregivers' health and health care utilization. DATA AND METHODS: The empirical analysis is based on cross-sectional survey data generated by the European Project "RightTimePlaceCare" (RTPC). RTPC was a prospective cohort study conducted in eight European countries (Estonia, Finland, France, Germany, Netherlands, Sweden, Spain and the United Kingdom). The health status of 1029 informal caregivers was assessed by measures of psychological wellbeing (GHQ-12) and self-rated overall health (EQ-VAS). Health care utilization was measured by (i) the self-stated proportion of health care use influenced by caregiving and (ii) the probability of at least one visit to a general practitioner within in the last 30 days. The association between caregiving intensity and caregivers' health and health care utilization was assessed by descriptive analysis and multivariate OLS- and probit-models.
RESULTS: A higher amount of informal care was significantly related to negative health outcomes for informal caregivers. On average, one additional hour of informal caregiving per day was associated with a decrease of psychological wellbeing and self-rated overall health by 0.16 and 0.42 index points respectively. Furthermore, one more hour of informal caregiving corresponded with increased self-stated proportion of health care use by 0.56 percentage points. However, the claim of increased health care demand due to caregiving as measured by GP visits was only partly confirmed.
CONCLUSION: When evaluating the full economic effect of informal care, the impact of providing care on caregivers' health and health care utilization has to be taken into account.
Copyright © 2015 Elsevier Ireland Ltd. All rights reserved.

Entities:  

Keywords:  Caregivers’ health; Dementia; Europe; Health care utilization; Informal care

Mesh:

Year:  2015        PMID: 26518906     DOI: 10.1016/j.healthpol.2015.09.014

Source DB:  PubMed          Journal:  Health Policy        ISSN: 0168-8510            Impact factor:   2.980


  19 in total

1.  Comparison of Healthcare Utilization Between Informal Caregivers and Non-Caregivers: An Analysis of the Health Information National Trends Survey.

Authors:  Kelly M Shaffer; Chandylen L Nightingale
Journal:  J Aging Health       Date:  2019-02-22

2.  How relevant are social costs in economic evaluations? The case of Alzheimer's disease.

Authors:  L M Peña-Longobardo; B Rodríguez-Sánchez; J Oliva-Moreno; I Aranda-Reneo; J López-Bastida
Journal:  Eur J Health Econ       Date:  2019-07-24

3.  Older Spousal Dyads and the Experience of Recovery in the Year After Traumatic Brain Injury.

Authors:  Tiffany W Chhuom; Hilaire J Thompson
Journal:  J Neurosci Nurs       Date:  2021-04-01       Impact factor: 1.627

4.  A Systematic Review and Meta-Analysis Comparing Carer Focused and Dyadic Multicomponent Interventions for Carers of People With Dementia.

Authors:  Kate Laver; Rachel Milte; Suzanne Dyer; Maria Crotty
Journal:  J Aging Health       Date:  2016-07-25

Review 5.  How best to assess quality of life in informal carers of people with dementia; A systematic review of existing outcome measures.

Authors:  Johanne Dow; Jonah Robinson; Shannon Robalino; Tracy Finch; Elaine McColl; Louise Robinson
Journal:  PLoS One       Date:  2018-03-14       Impact factor: 3.240

6.  Survey of Current Status and Cognition of Activities of Daily Living in Dementia Patients: the 2018 "Il-sang-ye-chan" Campaign.

Authors:  Hojin Choi; Jeong Hoon Bae; Jae-Sung Lim; Yeonsil Moon; Kee Hyung Park; Seung Hyun Kim; Chan-Nyoung Lee
Journal:  Dement Neurocogn Disord       Date:  2019-04-25

Review 7.  Tip of the Iceberg: Assessing the Global Socioeconomic Costs of Alzheimer's Disease and Related Dementias and Strategic Implications for Stakeholders.

Authors:  Youssef H El-Hayek; Ryan E Wiley; Charles P Khoury; Ritesh P Daya; Clive Ballard; Alison R Evans; Michael Karran; José Luis Molinuevo; Matthew Norton; Alireza Atri
Journal:  J Alzheimers Dis       Date:  2019       Impact factor: 4.472

8.  Recruitment of caregivers into health services research: lessons from a user-centred design study.

Authors:  Myles Leslie; Akram Khayatzadeh-Mahani; Gail MacKean
Journal:  Res Involv Engagem       Date:  2019-05-20

9.  Existing Mobile Phone Apps for Self-Care Management of People With Alzheimer Disease and Related Dementias: Systematic Analysis.

Authors:  Yuqi Guo; Fan Yang; Fei Hu; Wei Li; Nicole Ruggiano; Hee Yun Lee
Journal:  JMIR Aging       Date:  2020-01-24

10.  A four-domain approach of frailty explored in the Doetinchem Cohort Study.

Authors:  Sandra H van Oostrom; Daphne L van der A; M Liset Rietman; H Susan J Picavet; Manon Lette; W M Monique Verschuren; Simone R de Bruin; Annemieke M W Spijkerman
Journal:  BMC Geriatr       Date:  2017-08-30       Impact factor: 3.921

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