Literature DB >> 26485696

Mindfulness as a Protective Factor for the Burden of Caregivers of Amyotrophic Lateral Sclerosis Patients.

Francesco Pagnini1,2,3, Deborah Phillips2, Colin M Bosma2, Andrew Reece2, Ellen Langer2.   

Abstract

OBJECTIVES: Caregivers of people with severe chronic conditions, such as amyotrophic lateral sclerosis (ALS), are at risk of developing depression and anxiety and reduced quality of life. Few studies have explored protective factors in this population and none investigated the role of mindfulness. The study aimed to examine the relationship between mindfulness and health-related outcomes in a population of ALS caregivers.
METHODS: We conducted an online survey with ALS caregivers, and again at 4-month follow-up, to assess mindfulness, burden, quality of life, anxiety, and depression. The associations between mindfulness and the other outcomes were evaluated both cross-sectionally and longitudinally.
RESULTS: Mindfulness correlated negatively with burden, depression, and anxiety and positively with quality of life, maintaining stability through time.
CONCLUSION: Our results showed that mindfulness is positively related to quality of life and negatively related to level of burden. We suggest that this construct can represent a preventative factor toward the negative effects of caregiving.
© 2015 Wiley Periodicals, Inc.

Entities:  

Keywords:  amyotrophic lateral sclerosis; burden; caregiver; coping; mindfulness; resilience

Mesh:

Year:  2015        PMID: 26485696     DOI: 10.1002/jclp.22235

Source DB:  PubMed          Journal:  J Clin Psychol        ISSN: 0021-9762


  12 in total

1.  Longitudinal predictors of caregiver burden in amyotrophic lateral sclerosis: a population-based cohort of patient-caregiver dyads.

Authors:  Tom Burke; Orla Hardiman; Marta Pinto-Grau; Katie Lonergan; Mark Heverin; Katy Tobin; Anthony Staines; Miriam Galvin; Niall Pender
Journal:  J Neurol       Date:  2018-02-02       Impact factor: 4.849

2.  Baseline resilience and depression symptoms predict trajectory of depression in dyads of patients and their informal caregivers following discharge from the Neuro-ICU.

Authors:  Emma Meyers; Ann Lin; Ethan Lester; Kelly Shaffer; Jonathan Rosand; Ana-Maria Vranceanu
Journal:  Gen Hosp Psychiatry       Date:  2019-12-20       Impact factor: 3.238

3.  Langerian mindfulness, quality of life and psychological symptoms in a sample of Italian students.

Authors:  Francesco Pagnini; Katherine E Bercovitz; Deborah Phillips
Journal:  Health Qual Life Outcomes       Date:  2018-02-06       Impact factor: 3.186

4.  Effectiveness and usability of a web-based mindfulness intervention for caregivers of people with mental or somatic illness. A randomized controlled trial.

Authors:  Sigrid Stjernswärd; Lars Hansson
Journal:  Internet Interv       Date:  2018-03-26

5.  Mindful Learning Improves Positive Feelings of Cancer Patients' Family Caregivers.

Authors:  Liuna Geng; Jian Wang; Liping Cheng; Binbin Zhang; Hui Shen
Journal:  Int J Environ Res Public Health       Date:  2019-01-16       Impact factor: 3.390

6.  Caregiver burden in amyotrophic lateral sclerosis: A systematic review.

Authors:  Jessica de Wit; Leonhard A Bakker; Annerieke C van Groenestijn; Leonard H van den Berg; Carin D Schröder; Johanna M A Visser-Meily; Anita Beelen
Journal:  Palliat Med       Date:  2017-07-03       Impact factor: 4.762

7.  Effectiveness and Usability of a Web-Based Mindfulness Intervention for Families Living with Mental Illness.

Authors:  Sigrid Stjernswärd; Lars Hansson
Journal:  Mindfulness (N Y)       Date:  2016-12-08

8.  Validation of the Persian Version of the Langer Mindfulness Scale.

Authors:  Fatemeh Moafian; Francesco Pagnini; Hooshang Khoshsima
Journal:  Front Psychol       Date:  2017-03-30

9.  A blended psychosocial support program for partners of patients with amyotrophic lateral sclerosis and progressive muscular atrophy: protocol of a randomized controlled trial.

Authors:  Jessica de Wit; Anita Beelen; Constance H C Drossaert; Ruud Kolijn; Leonard H van den Berg; Johanna M A Visser-Meily; Carin D Schröder
Journal:  BMC Psychol       Date:  2018-05-02

10.  Group interventions for amyotrophic lateral sclerosis caregivers in Ireland: a randomised controlled trial protocol.

Authors:  Tom Burke; Jennifer Wilson O'Raghallaigh; Sinead Maguire; Miriam Galvin; Mark Heverin; Orla Hardiman; Niall Pender
Journal:  BMJ Open       Date:  2019-09-20       Impact factor: 2.692

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