Literature DB >> 26481207

Real-time Responsiveness for Ethics Oversight During Disaster Research.

Lisa Eckenwiler, John Pringle, Renaud Boulanger, Matthew Hunt.   

Abstract

Disaster research has grown in scope and frequency. Research in the wake of disasters and during humanitarian crises--particularly in resource-poor settings--is likely to raise profound and unique ethical challenges for local communities, crisis responders, researchers, and research ethics committees (RECs). Given the ethical challenges, many have questioned how best to provide research ethics review and oversight. We contribute to the conversation concerning how best to ensure appropriate ethical oversight in disaster research and argue that ethical disaster research requires of researchers and RECs a particular sort of ongoing, critical engagement which may not be warranted in less exceptional research. We present two cases that typify the concerns disaster researchers and RECs may confront, and elaborate upon what this ongoing engagement might look like--how it might be conceptualized and utilized--using the concept of real-time responsiveness (RTR). The central aim of RTR, understood here as both an ethical ideal and practice, is to lessen the potential for research conducted in the wake of disasters to create, perpetuate, or exacerbate vulnerabilities and contribute to injustices suffered by disaster-affected populations. Well cultivated and deployed, we believe that RTR may enhance the moral capacities of researchers and REC members, and RECs as institutions where moral agency is nurtured and sustained.
© 2015 John Wiley & Sons Ltd.

Keywords:  disaster; ethics oversight; low-resource settings; research ethics; vulnerability

Mesh:

Year:  2015        PMID: 26481207     DOI: 10.1111/bioe.12193

Source DB:  PubMed          Journal:  Bioethics        ISSN: 0269-9702            Impact factor:   1.898


  9 in total

1.  Descriptive study of earthquake-related spinal cord injury in Nepal.

Authors:  C C Groves; M K Poudel; M Baniya; C Rana; D R House
Journal:  Spinal Cord       Date:  2017-03-14       Impact factor: 2.772

Review 2.  Ethical Issues in Conducting Research With Children and Families Affected by Disasters.

Authors:  Regardt J Ferreira; Fred Buttell; Clare Cannon
Journal:  Curr Psychiatry Rep       Date:  2018-05-18       Impact factor: 5.285

3.  The Challenge of Timely, Responsive and Rigorous Ethics Review of Disaster Research: Views of Research Ethics Committee Members.

Authors:  Matthew Hunt; Catherine M Tansey; James Anderson; Renaud F Boulanger; Lisa Eckenwiler; John Pringle; Lisa Schwartz
Journal:  PLoS One       Date:  2016-06-21       Impact factor: 3.240

4.  Reconfiguring Social Value in Health Research Through the Lens of Liminality.

Authors:  Agomoni Ganguli-Mitra; Edward S Dove; Graeme T Laurie; Samuel Taylor-Alexander
Journal:  Bioethics       Date:  2017-02       Impact factor: 1.898

5.  Research and Global Health Emergencies: On the Essential Role of Best Practice.

Authors:  Nayha Sethi
Journal:  Public Health Ethics       Date:  2018-07-24       Impact factor: 1.940

6.  Research approvals iceberg: how a 'low-key' study in England needed 89 professionals to approve it and how we can do better.

Authors:  Mila Petrova; Stephen Barclay
Journal:  BMC Med Ethics       Date:  2019-01-25       Impact factor: 2.652

7.  Research Ethics Committees (RECs) and epidemic response in low and middle income countries.

Authors:  Luchuo Engelbert Bain; Chia Gerald Ngwain; Julius Nwobegahay; Jeffery Gabriel Sumboh; Rogers Nditanchou; Paschal Kum Awah
Journal:  Pan Afr Med J       Date:  2018-11-28

8.  A systematic literature review of the ethics of conducting research in the humanitarian setting.

Authors:  William Bruno; Rohini J Haar
Journal:  Confl Health       Date:  2020-05-24       Impact factor: 2.723

Review 9.  Bridging research integrity and global health epidemiology (BRIDGE) guidelines: explanation and elaboration.

Authors:  Sandra Alba; Annick Lenglet; Kristien Verdonck; Johanna Roth; Rutuja Patil; Walter Mendoza; Sanjay Juvekar; Susan F Rumisha
Journal:  BMJ Glob Health       Date:  2020-10
  9 in total

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