Literature DB >> 26477602

"Just take your medicine and everything will be fine": Responsibilisation narratives in accounts of transitioning young people with HIV into adult care services in Australia.

Christy E Newman1, Asha Persson1, Angela Miller2,3, Rebecca J Brown1.   

Abstract

Young people who have grown up with perinatally acquired HIV in wealthy nations are increasingly transitioning into adult care settings which expect more independence and self-regulation than paediatric care. Drawing on the first qualitative study on growing up with HIV in Australia, this paper examines "responsibilisation" narratives in semi-structured interviews conducted with young people with HIV and their paediatric and adult care providers. Three dominant narratives were identified: responsibilisation as imperative, practice and contest. This suggests that while young people growing up with HIV in an advanced liberal setting such as Australia may value the independence of adult care, and appreciate the need to take responsibility for their health, the practices involved in becoming a responsible health citizen are shaped by individual histories and circumstances, and in some cases, can lead to serious contestation and conflict with care providers. Placing a stronger emphasis on what young people can gain from taking an active role in managing their health may more successfully foster responsibilisation, rather than focusing on what they will lose. Clinicians could benefit from greater support regarding how to engage young people with the elements of responsibilisation likely to resonate more meaningfully at different points in their lives.

Entities:  

Keywords:  Australia; HIV social research; Young people; antiretroviral therapy; transition to adult care

Mesh:

Substances:

Year:  2015        PMID: 26477602     DOI: 10.1080/09540121.2015.1069790

Source DB:  PubMed          Journal:  AIDS Care        ISSN: 0954-0121


  3 in total

Review 1.  A review of transition experiences in perinatally and behaviourally acquired HIV-1 infection; same, same but different?

Authors:  Phung Khanh Lam; Sarah Fidler; Caroline Foster
Journal:  J Int AIDS Soc       Date:  2017-05-16       Impact factor: 5.396

2.  Exploring the potential for introducing home monitoring of blood pressure during pregnancy into maternity care: current views and experiences of staff-a qualitative study.

Authors:  Lisa Hinton; James Hodgkinson; Katherine L Tucker; Linda Rozmovits; Lucy Chappell; Sheila Greenfield; Christine McCourt; Jane Sandall; Richard J McManus
Journal:  BMJ Open       Date:  2020-12-01       Impact factor: 2.692

3.  Healthcare retention and clinical outcomes among adolescents living with HIV after transition from pediatric to adult care: a systematic review.

Authors:  Tiarney D Ritchwood; Vincenzo Malo; Cameron Jones; Isha W Metzger; Millicent Atujuna; Rebecca Marcus; Donaldson F Conserve; Lara Handler; Linda-Gail Bekker
Journal:  BMC Public Health       Date:  2020-08-03       Impact factor: 4.135

  3 in total

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