Literature DB >> 26460102

How do carers of people with multiple sclerosis engage with websites containing the personal experiences of other carers and patients?

Elizabeth Sillence1, Claire Hardy2, Pam Briggs3, Peter R Harris4.   

Abstract

The Internet supports the peer-to-peer healthcare and the promotion of shared patient narratives. Websites incorporating these narratives or personal accounts are known to offer support to carers of people with multiple sclerosis, but little is known about how carers make choices about what websites to visit and why. In total, 20 carers viewed a range of websites and online personal accounts about multiple sclerosis and subsequently took part in either a group discussion or an individual interview, followed by 2 weeks and 12 months and later by a telephone interview. Data were subjected to thematic analysis with the aim of understanding more about what drives engagement with the stories of others. We found that carers' interpersonal and coping needs shaped their selection of online narratives, and that they were most likely to engage with online personal accounts that provided a good match in terms of experience and perspective.
© The Author(s) 2015.

Entities:  

Keywords:  Internet; carers; ehealth; multiple sclerosis; peer-to-peer healthcare

Mesh:

Year:  2015        PMID: 26460102     DOI: 10.1177/1460458215607938

Source DB:  PubMed          Journal:  Health Informatics J        ISSN: 1460-4582            Impact factor:   2.681


  4 in total

1.  Social Media and Multiple Sclerosis in the Posttruth Age.

Authors:  Luigi Lavorgna; Roberta Lanzillo; Vincenzo Brescia Morra; Gianmarco Abbadessa; Gioacchino Tedeschi; Simona Bonavita
Journal:  Interact J Med Res       Date:  2017-09-27

2.  Accessing support and empowerment online: The experiences of individuals with diabetes.

Authors:  Ellen Brady; Julia Segar; Caroline Sanders
Journal:  Health Expect       Date:  2017-07-18       Impact factor: 3.377

Review 3.  Caregiver Burden in Multiple Sclerosis: Recent Trends and Future Directions.

Authors:  Rebecca Maguire; Phil Maguire
Journal:  Curr Neurol Neurosci Rep       Date:  2020-05-22       Impact factor: 5.081

Review 4.  Intertwined like a double helix: A meta-synthesis of the qualitative literature examining the experiences of living with someone with multiple sclerosis.

Authors:  Anne Parkinson; Crystal Brunoro; Jack Leayr; Vanessa Fanning; Katrina Chisholm; Janet Drew; Jane Desborough; Christine Phillips
Journal:  Health Expect       Date:  2022-02-04       Impact factor: 3.318

  4 in total

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