Belinda J Gabbe1, Heather Cleland2, Dina M Watterson3, Rebecca Schrale4, Sally McRae5, Christine Parker6, Susan Taggart6, Dale W Edgar7. 1. Department of Epidemiology and Preventive Medicine, Monash University, The Alfred Centre, Commercial Road, Melbourne 3004, Australia; Farr Institute - CIPHER, College of Medicine, Swansea University, Singleton Park, Swansea, Wales SA28PP, United Kingdom. Electronic address: belinda.gabbe@monash.edu. 2. Victorian Adult Burns Service, The Alfred, Commercial Road, Melbourne 3004, Australia; Department of Surgery, Monash University, The Alfred Centre, Commercial Road, Melbourne 3004, Australia. 3. Department of Epidemiology and Preventive Medicine, Monash University, The Alfred Centre, Commercial Road, Melbourne 3004, Australia; Occupational Therapy Department, Alfred Health, Commercial Road, Melbourne 3004, Australia. 4. Tasmanian Burns Unit, Royal Hobart Hospital, Burns & Surgical Specialities Unit 5A, GPO Box 1061, 7001, Hobart, Australia. 5. Burns Unit, Royal Adelaide Hospital, North Terrace, Adelaide, Australia. 6. Burns Unit, Concord Repatriation General Hospital, Missenden Road, Camperdown 2050, Australia. 7. Burn Injury Research Node, The University of Notre Dame, 19 Mouat Street, Fremantle 6959, Australian; Fiona Wood Foundation, Fiona Stanley Hospital, 11 Warren Drive, Murdoch 6150, Australia; State Adult Burn Unit, Fiona Stanley Hospital, 11 Warren Drive, Murdoch 6150, Australia.
Abstract
BACKGROUND: Incorporating routine and standardised collection of long term outcomes following burn into burn registries would improve the capacity to quantify burn burden and evaluate care. AIMS: To evaluate methods for collecting the long term functional and quality of life outcomes of burns patients and establish the feasibility of implementing these outcomes into a multi-centre burns registry. METHODS: Five Burns Registry of Australia and New Zealand (BRANZ) centres participated in this prospective, longitudinal study. Patients admitted to the centres between November 2009 and November 2010 were followed-up at 1, 6, 12 and 24-months after injury using measures of burn specific health, health status, fatigue, itch and return to work. Participants in the study were compared to BRANZ registered patients at the centres over the study timeframe to identify participation bias, predictors of successful follow-up were established using a Generalised Estimating Equation model, and the completion rates by mode of administration were assessed. RESULTS: 463 patients participated in the study, representing 24% of all BRANZ admissions in the same timeframe. Compared to all BRANZ patients in the same timeframe, the median %TBSA and hospital length of stay was greater in the study participants. The follow-up rates were 63% at 1-month, 47% at 6-months; 40% at 12-months, and 21% at 24-months after injury, and there was marked variation in follow-up rates between the centres. Increasing age, greater %TBSA and opt-in centres were associated with greater follow-up. Centres which predominantly used one mode of administration experienced better follow-up rates. CONCLUSIONS: The low participation rates, high loss to follow-up and responder bias observed indicate that greater consideration needs to be given to alternative models for follow-up, including tailoring the follow-up protocol to burn severity or type.
BACKGROUND: Incorporating routine and standardised collection of long term outcomes following burn into burn registries would improve the capacity to quantify burn burden and evaluate care. AIMS: To evaluate methods for collecting the long term functional and quality of life outcomes of burns patients and establish the feasibility of implementing these outcomes into a multi-centre burns registry. METHODS: Five Burns Registry of Australia and New Zealand (BRANZ) centres participated in this prospective, longitudinal study. Patients admitted to the centres between November 2009 and November 2010 were followed-up at 1, 6, 12 and 24-months after injury using measures of burn specific health, health status, fatigue, itch and return to work. Participants in the study were compared to BRANZ registered patients at the centres over the study timeframe to identify participation bias, predictors of successful follow-up were established using a Generalised Estimating Equation model, and the completion rates by mode of administration were assessed. RESULTS: 463 patients participated in the study, representing 24% of all BRANZ admissions in the same timeframe. Compared to all BRANZ patients in the same timeframe, the median %TBSA and hospital length of stay was greater in the study participants. The follow-up rates were 63% at 1-month, 47% at 6-months; 40% at 12-months, and 21% at 24-months after injury, and there was marked variation in follow-up rates between the centres. Increasing age, greater %TBSA and opt-in centres were associated with greater follow-up. Centres which predominantly used one mode of administration experienced better follow-up rates. CONCLUSIONS: The low participation rates, high loss to follow-up and responder bias observed indicate that greater consideration needs to be given to alternative models for follow-up, including tailoring the follow-up protocol to burn severity or type.
Authors: Cate M Cameron; Jodie M Osborne; Anneliese B Spinks; Tamzyn M Davey; Neil Sipe; Roderick J McClure Journal: BMJ Open Date: 2017-06-30 Impact factor: 2.692
Authors: Samantha Teague; George J Youssef; Jacqui A Macdonald; Emma Sciberras; Adrian Shatte; Matthew Fuller-Tyszkiewicz; Chris Greenwood; Jennifer McIntosh; Craig A Olsson; Delyse Hutchinson Journal: BMC Med Res Methodol Date: 2018-11-26 Impact factor: 4.615
Authors: Quirine M J van der Vliet; Abhiram R Bhashyam; Falco Hietbrink; R Marijn Houwert; F Cumhur Öner; Luke P H Leenen Journal: Qual Life Res Date: 2019-05-16 Impact factor: 4.147
Authors: Juan Pablo Herrera-Escobar; Manuel A Castillo-Angeles; Samia Y Osman; Claudia P Orlas; Mahin B Janjua; Muhammad Abdullah-Arain; Emma Reidy; Molly P Jarman; Michelle A Price; Eileen M Bulger; Deepika Nehra; Adil H Haider Journal: Trauma Surg Acute Care Open Date: 2020-05-28
Authors: H Goei; B F M Wijnen; S Mans; M A C de Jongh; C H van der Vlies; S Polinder; N E E van Loey; M E van Baar Journal: Burns Trauma Date: 2017-11-08