Literature DB >> 26436953

Using community-based participatory research in patient-centered outcomes research to address health disparities in under-represented communities.

Yewande Sofolahan-Oladeinde1, C Daniel Mullins1, Claudia R Baquet2.   

Abstract

The emergence of patient-centered outcomes research (PCOR) has created a paradigm shift in the way health outcomes research is designed, conducted and disseminated. While PCOR expands the potential for patients to play a key advisory role in every aspect of the research process, community-based participatory research (CBPR) has long provided this opportunity for engaging communities in research. CBPR is an excellent tool for achieving PCOR goals of improving the health of all people by providing them with evidence-based information for making informed healthcare decisions. We propose ways by which PCOR can effectively use CBPR principles to engage patients in general, and specifically patients from underserved communities. The hope is that this will help to reduce and eventually eliminate health disparities.

Entities:  

Keywords:  community-based participatory research; health disparities; patient-centered outcomes research; under-represented communities

Mesh:

Year:  2015        PMID: 26436953     DOI: 10.2217/cer.15.31

Source DB:  PubMed          Journal:  J Comp Eff Res        ISSN: 2042-6305            Impact factor:   1.744


  15 in total

1.  Reconciling research and community priorities in participatory trials: application to Padres Informados/Jovenes Preparados.

Authors:  Michele L Allen; Diego Garcia-Huidobro; Tiana Bastian; G Ali Hurtado; Roxana Linares; María Veronica Svetaz
Journal:  Fam Pract       Date:  2017-06-01       Impact factor: 2.267

2.  Bridging the divide: building infrastructure to support community-academic partnerships and improve capacity to conduct patient-centered outcomes research.

Authors:  Jennifer Huang; Paula Darby Lipman; C Daniel Mullins
Journal:  Transl Behav Med       Date:  2017-12       Impact factor: 3.046

3.  Centering Transgender and Nonbinary Voices in Genital Gender-Affirming Surgery Research Prioritization.

Authors:  Geolani W Dy; Gaines Blasdel; Jae M Downing
Journal:  JAMA Surg       Date:  2022-07-01       Impact factor: 16.681

Review 4.  Applying a community-based participatory research framework to patient and family engagement in the development of patient-centered outcomes research and practice.

Authors:  Simona C Kwon; Shiv Darius Tandon; Nadia Islam; Lindsey Riley; Chau Trinh-Shevrin
Journal:  Transl Behav Med       Date:  2018-09-08       Impact factor: 3.046

Review 5.  Best Practices for Community-Engaged Research with Pacific Islander Communities in the US and USAPI: A Scoping Review.

Authors:  Pearl A McElfish; Karen Yeary; Imi A Sinclair; Susan Steelman; Monica K Esquivel; Nia Aitaoto; Keawe'aimoku Kaholokula; Rachel S Purvis; Britni L Ayers
Journal:  J Health Care Poor Underserved       Date:  2019

6.  Developing and evaluating rare disease educational materials co-created by expert clinicians and patients: the paradigm of congenital hypogonadotropic hypogonadism.

Authors:  Corin Badiu; Marco Bonomi; Ivan Borshchevsky; Martine Cools; Margarita Craen; Cristina Ghervan; Michael Hauschild; Eli Hershkovitz; Erik Hrabovszky; Anders Juul; Soo-Hyun Kim; Phillip Kumanov; Beatriz Lecumberri; Manuel C Lemos; Vassos Neocleous; Marek Niedziela; Sandra Pekic Djurdjevic; Luca Persani; Franziska Phan-Hug; Duarte Pignatelli; Nelly Pitteloud; Vera Popovic; Richard Quinton; Nicos Skordis; Neil Smith; Magdalena Avbelj Stefanija; Cheng Xu; Jacques Young; Andrew A Dwyer
Journal:  Orphanet J Rare Dis       Date:  2017-03-20       Impact factor: 4.123

7.  A review protocol on research partnerships: a Coordinated Multicenter Team approach.

Authors:  Femke Hoekstra; Kelly J Mrklas; Kathryn M Sibley; Tram Nguyen; Mathew Vis-Dunbar; Christine J Neilson; Leah K Crockett; Heather L Gainforth; Ian D Graham
Journal:  Syst Rev       Date:  2018-11-30

8.  IRB Oversight of Patient-Centered Outcomes Research: A National Survey of IRB Chairpersons.

Authors:  Joel S Weissman; Eric G Campbell; I Glenn Cohen; Holly Fernandez Lynch; Emily A Largent; Avni Gupta; Ronen Rozenblum; Melissa Abraham; Karen Spikes; Maureen Fagan; Martie Carnie
Journal:  J Empir Res Hum Res Ethics       Date:  2018-06-14       Impact factor: 1.742

9.  Experiences with HPTN 067/ADAPT Study-Provided Open-Label PrEP Among Women in Cape Town: Facilitators and Barriers Within a Mutuality Framework.

Authors:  K Rivet Amico; Melissa Wallace; Linda-Gail Bekker; Surita Roux; Millicent Atujuna; Elaine Sebastian; Bonnie J Dye; Vanessa Elharrar; Robert M Grant
Journal:  AIDS Behav       Date:  2017-05

10.  Patient-centered recruitment and retention for a randomized controlled study.

Authors:  Sumedha Chhatre; Ashlie Jefferson; Ratna Cook; Caitlin R Meeker; Ji Hyun Kim; Kayla Marie Hartz; Yu-Ning Wong; Adele Caruso; Diane K Newman; Knashawn H Morales; Ravishankar Jayadevappa
Journal:  Trials       Date:  2018-03-27       Impact factor: 2.279

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