Sarah Brown1, Diana Greenfield2, Joanne Thompson3. 1. Academic Unit of Primary Medical Care, University of Sheffield, Samuel Fox House (Room 212), Northern General Hospital, Herries Road, Sheffield, S5 7AU, UK. 2. Specialised Cancer Services, Sheffield Teaching Hospitals NHS FT, Weston Park Hospital, Whitham Road, Sheffield, S10 2SJ, UK. 3. Academic Unit of Primary Medical Care, University of Sheffield, Samuel Fox House (Room 212), Northern General Hospital, Herries Road, Sheffield, S5 7AU, UK. Electronic address: j.thompson1@sheffield.ac.uk.
Abstract
PURPOSE: To describe patient knowledge and awareness of long-term and late onset treatment consequences amongst colorectal cancer survivors. METHODS: Semi-structured qualitative interviews were conducted with 19 colorectal cancer survivors at least 12 months post-treatment. Interviews were audio-recorded, transcribed into NVivo 10 software and analysed using the framework method. RESULTS: Participants were aware of disease recurrence but not many other treatment consequences; change in bowel habit and impact on diet were common and had significant impact, yet many felt they had not received 'warning', considering it a gap in both information and support. Participants expressed preference to know about possible consequences early on and were willing to engage in education and support if offered. Information overload, timing of information provision and unequipped health care professionals were considered barriers to awareness. CONCLUSION: Improvement in information provision, management of expectations and support around bowel function would facilitate patient self-empowerment and could improve holistic management of health and well-being after cancer.
PURPOSE: To describe patient knowledge and awareness of long-term and late onset treatment consequences amongst colorectal cancer survivors. METHODS: Semi-structured qualitative interviews were conducted with 19 colorectal cancer survivors at least 12 months post-treatment. Interviews were audio-recorded, transcribed into NVivo 10 software and analysed using the framework method. RESULTS:Participants were aware of disease recurrence but not many other treatment consequences; change in bowel habit and impact on diet were common and had significant impact, yet many felt they had not received 'warning', considering it a gap in both information and support. Participants expressed preference to know about possible consequences early on and were willing to engage in education and support if offered. Information overload, timing of information provision and unequipped health care professionals were considered barriers to awareness. CONCLUSION: Improvement in information provision, management of expectations and support around bowel function would facilitate patient self-empowerment and could improve holistic management of health and well-being after cancer.
Authors: Mark Lawler; Deborah Alsina; Richard A Adams; Annie S Anderson; Gina Brown; Nicola S Fearnhead; Stephen W Fenwick; Stephen P Halloran; Daniel Hochhauser; Mark A Hull; Viktor H Koelzer; Angus G K McNair; Kevin J Monahan; Inke Näthke; Christine Norton; Marco R Novelli; Robert J C Steele; Anne L Thomas; Lisa M Wilde; Richard H Wilson; Ian Tomlinson Journal: Gut Date: 2018-01 Impact factor: 23.059
Authors: C M den Bakker; F G Schaafsma; J A F Huirne; E C J Consten; H B A C Stockmann; C J Rodenburg; G J de Klerk; H J Bonjer; J R Anema Journal: BMC Cancer Date: 2018-12-04 Impact factor: 4.430