Tania Slater1, Anna Matheson2, Lis Ellison-Loschmann3, Cheryl Davies4, Ria Earp5, Kate Gellatly6, Maureen Holdaway7. 1. Research Fellow and PhD candidate. 2. Lecturer. 3. Senior Research Fellow, Public Health Research, all above at the Centre for Public Health Research, Massey University, Wellington, New Zealand. 4. Manager, Tu Kotahi Services, Kokiri Marae. 5. Chief Executive, Mary Potter Hospice, Wellington. 6. Clinical Nurse Specialist Educator, Te Omanga Hospice, Lower Hutt. 7. Associate Director, Research Centre for Māori Health and Development, Massey University, Palmerston North.
Abstract
BACKGROUND: Despite poor cancer survival statistics, Māori do not readily access hospice services. This study aims to explore how hospice services respond to Māori by investigating the different influences and interactions between three perspectives of hospice care. METHOD: The authors conducted a Māori-centred, cross-sectional qualitative study by undertaking semi-structured interviews with hospice patients and whānau (families) (n=8), hospice representatives (n=4), and representatives from three Māori health provider organisations (n=5). CONCLUSIONS: The study found that negative perceptions of hospice are being changed by hospices' relationships with other organisations and positive stories from whānau. Involvement from whānau, continuity of care and after-hours care with a greater Māori workforce and a further emphasis on culturally safe care are critical for this work to gain momentum. Findings can be of use to further develop quality of care indicators that reflect the perspectives of patients and whānau, and those who provide their care.
BACKGROUND: Despite poor cancer survival statistics, Māori do not readily access hospice services. This study aims to explore how hospice services respond to Māori by investigating the different influences and interactions between three perspectives of hospice care. METHOD: The authors conducted a Māori-centred, cross-sectional qualitative study by undertaking semi-structured interviews with hospice patients and whānau (families) (n=8), hospice representatives (n=4), and representatives from three Māori health provider organisations (n=5). CONCLUSIONS: The study found that negative perceptions of hospice are being changed by hospices' relationships with other organisations and positive stories from whānau. Involvement from whānau, continuity of care and after-hours care with a greater Māori workforce and a further emphasis on culturally safe care are critical for this work to gain momentum. Findings can be of use to further develop quality of care indicators that reflect the perspectives of patients and whānau, and those who provide their care.
Entities:
Keywords:
Cultural safety; Family; Hospice; Māori; Workforce
Authors: Shaouli Shahid; Emma V Taylor; Shelley Cheetham; John A Woods; Samar M Aoun; Sandra C Thompson Journal: BMC Palliat Care Date: 2018-05-08 Impact factor: 3.234