PURPOSE: This study aimed to translate and cross-culturally adapt the Pediatric Outcome Data Collecting Instrument (PODCI) into the Dutch language and evaluate its measurement properties among children (age 3-10) with Neonatal Brachial Plexus Palsy (NBPP). METHODS: The PODCI was translated and adapted according to international guidelines and administered to 10 children with NBPP before and after surgery and thereafter twice again. Subsequently, the Mallet-score, Assisting Hand Assessment and active Range of Motion (aROM) were recorded. Cronbach's-α and correlations between the PODCI and other outcome measures were determined, as well as Intraclass Correlation Coefficients (ICC). In addition, effect sizes (ES), Standard Response Means (SRM) and change scores with the 95% Confidence Interval (95% CI) were calculated. RESULTS: The final Dutch PODCI `Upper Extremity and Physical Function' subscale and total score `Global Functioning' showed good internal consistency (Cronbach's-α 0.695/0.781) and reliability (ICC 0.97/0.80) and were significantly associated with aROM and the Mallet-score. After surgery a significant change of the total score (ES 0.57, SRM 1.23, change 4.22 points, 95% CI 1.04-7.4) was seen. CONCLUSION: The final Dutch PODCI had good measurement properties and appears useful in evaluating quality of life and functioning in children with NBPP.
PURPOSE: This study aimed to translate and cross-culturally adapt the Pediatric Outcome Data Collecting Instrument (PODCI) into the Dutch language and evaluate its measurement properties among children (age 3-10) with Neonatal Brachial Plexus Palsy (NBPP). METHODS: The PODCI was translated and adapted according to international guidelines and administered to 10 children with NBPP before and after surgery and thereafter twice again. Subsequently, the Mallet-score, Assisting Hand Assessment and active Range of Motion (aROM) were recorded. Cronbach's-α and correlations between the PODCI and other outcome measures were determined, as well as Intraclass Correlation Coefficients (ICC). In addition, effect sizes (ES), Standard Response Means (SRM) and change scores with the 95% Confidence Interval (95% CI) were calculated. RESULTS: The final Dutch PODCI `Upper Extremity and Physical Function' subscale and total score `Global Functioning' showed good internal consistency (Cronbach's-α 0.695/0.781) and reliability (ICC 0.97/0.80) and were significantly associated with aROM and the Mallet-score. After surgery a significant change of the total score (ES 0.57, SRM 1.23, change 4.22 points, 95% CI 1.04-7.4) was seen. CONCLUSION: The final Dutch PODCI had good measurement properties and appears useful in evaluating quality of life and functioning in children with NBPP.
Authors: J P Ruben Kalle; Tim F F Saris; Inger N Sierevelt; Denise Eygendaal; Christiaan J A van Bergen Journal: J Patient Rep Outcomes Date: 2022-06-02
Authors: Giovanni Trisolino; Stefano Stallone; Paola Zarantonello; Andrea Evangelista; Manila Boarini; Jacopo Faranda Cordella; Luca Lerma; Luisa Veronesi; Cosma Caterina Guerra; Luca Sangiorgi; Giovanni Luigi Di Gennaro; Renato Maria Toniolo Journal: Children (Basel) Date: 2022-06-08
Authors: Menno van der Holst; Duco Steenbeek; Willem Pondaag; Rob Ghh Nelissen; Thea Pm Vliet Vlieland Journal: J Child Health Care Date: 2018-12-28 Impact factor: 1.979