Literature DB >> 26358611

Developments in Genetic and Epigenetic Data Protection in Behavioral and Mental Health Spaces.

Nicolas Terry.   

Abstract

The legal system has been preparing for an explosion of epigenetic issues in public health, environmental regulation and litigation. So far, this explosion has been muted, and for now epigenetic data protection merely seems to be "enjoying" the same technological and legal challenges experienced by other clinical and research data. However, three areas of development suggest where epigenetic data protection may prove problematic. This article examines these three issues, noting the rapid expansion of research based on EMR-sourced clinical data, the large number of data protection models that can apply to genetic data (including point-of-use prohibitions on discrimination and confidentiality), and the increasing and controversial dangers of deidentified information being reidentified.
Copyright © 2015 John Wiley & Sons, Ltd.

Mesh:

Year:  2015        PMID: 26358611     DOI: 10.1002/bsl.2203

Source DB:  PubMed          Journal:  Behav Sci Law        ISSN: 0735-3936


  3 in total

Review 1.  Epigenetics, ethics, law and society: A multidisciplinary review of descriptive, instrumental, dialectical and reflexive analyses.

Authors:  Charles Dupras; Katie Michelle Saulnier; Yann Joly
Journal:  Soc Stud Sci       Date:  2019-08-01       Impact factor: 3.885

2.  Epigenetic Discrimination: Emerging Applications of Epigenetics Pointing to the Limitations of Policies Against Genetic Discrimination.

Authors:  Charles Dupras; Lingqiao Song; Katie M Saulnier; Yann Joly
Journal:  Front Genet       Date:  2018-06-08       Impact factor: 4.599

3.  Ethical Issues in Research and Development of Epigenome-wide Technologies.

Authors:  Eline M Bunnik; Marjolein Timmers; Ineke Lle Bolt
Journal:  Epigenet Insights       Date:  2020-04-13
  3 in total

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