Literature DB >> 26358284

Ethical Questions in Medical Electronic Adherence Monitoring.

Jeffrey I Campbell1, Nir Eyal2, Angella Musiimenta3, Jessica E Haberer4,5.   

Abstract

Electronic adherence monitors (EAMs) record and report an array of health behaviors, ranging from taking daily medications to wearing medical devices. EAMs are utilized in research worldwide and are being investigated for clinical use. However, there is also growing popular concern about the extent to which electronic devices may be used to monitor individuals, including allegations in the media that EAMs represent a move towards "Big Brother" in medicine. Here, we highlight the unique benefits as well as the potential ethical challenges that electronic adherence monitoring generates. These challenges surround autonomy, privacy and confidentiality, trust, and ancillary care obligations. We describe key questions within each of these domains that warrant further investigation, and present potential solutions to many of the concerns raised.

Keywords:  confidentiality; electronic adherence monitoring; patient adherence; personal autonomy; privacy; research ethics

Mesh:

Year:  2015        PMID: 26358284      PMCID: PMC4762813          DOI: 10.1007/s11606-015-3502-4

Source DB:  PubMed          Journal:  J Gen Intern Med        ISSN: 0884-8734            Impact factor:   5.128


  21 in total

1.  Healthcare personnel perceptions of hand hygiene monitoring technology.

Authors:  Katherine Ellingson; Philip M Polgreen; Amy Schneider; Laura Shinkunas; Lauris C Kaldjian; Donald Wright; Geb W Thomas; Alberto M Segre; Ted Herman; L Clifford McDonald; Ronda Sinkowitz-Cochran
Journal:  Infect Control Hosp Epidemiol       Date:  2011-09-20       Impact factor: 3.254

2.  Lessons learned from an HIV adherence pilot study in the Deep South.

Authors:  Deborah J Konkle-Parker; Judith A Erlen; Patricia M Dubbert
Journal:  Patient Educ Couns       Date:  2009-06-26

3.  Feasibility, performance, and acceptability of the Wisebag™ for potential monitoring of daily gel applicator use in Durban, South Africa.

Authors:  Ariane van der Straten; Elizabeth Montgomery; Diantha Pillay; Helen Cheng; Anushka Naidoo; Zakhele Cele; Kalendri Naidoo; Miriam Hartmann; Jeanna Piper; Gonasagrie Nair
Journal:  AIDS Behav       Date:  2013-02

4.  Perceptions about the acceptability of assessments of HIV medication adherence in Lilongwe, Malawi and Chennai, India.

Authors:  Steven A Safren; N Kumarasamy; Mina Hosseinipour; Meaghan M Harwood; Irving Hoffman; Marybeth McCauley; Allan Jumbe; Christina Nyirenda; Matthew J Mimiaga; Suniti Solomon; David Celentano; Kenneth H Mayer
Journal:  AIDS Behav       Date:  2006-07

5.  Ethics in adherence promotion and monitoring.

Authors:  C S Rand; M A Sevick
Journal:  Control Clin Trials       Date:  2000-10

6.  SMS reminders improve adherence to oral medication in type 2 diabetes patients who are real time electronically monitored.

Authors:  M Vervloet; L van Dijk; J Santen-Reestman; B van Vlijmen; P van Wingerden; M L Bouvy; D H de Bakker
Journal:  Int J Med Inform       Date:  2012-05-30       Impact factor: 4.046

7.  Real-time adherence monitoring for HIV antiretroviral therapy.

Authors:  Jessica E Haberer; Josh Kahane; Isaac Kigozi; Nneka Emenyonu; Peter Hunt; Jeffrey Martin; David R Bangsberg
Journal:  AIDS Behav       Date:  2010-12

Review 8.  Adherence to antiretroviral therapy for pediatric HIV infection: a qualitative systematic review with recommendations for research and clinical management.

Authors:  Jane M Simoni; Arianna Montgomery; Erin Martin; Michelle New; Penelope A Demas; Sohail Rana
Journal:  Pediatrics       Date:  2007-05-28       Impact factor: 7.124

9.  The objective measurement of spinal orthosis use for the treatment of adolescent idiopathic scoliosis.

Authors:  G P Nicholson; M W Ferguson-Pell; K Smith; M Edgar; T Morley
Journal:  Spine (Phila Pa 1976)       Date:  2003-10-01       Impact factor: 3.468

10.  The ancillary-care obligations of medical researchers working in developing countries.

Authors: 
Journal:  PLoS Med       Date:  2008-05-20       Impact factor: 11.069

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  19 in total

1.  Short Message Service (SMS) Surveys Assessing Pre-exposure Prophylaxis (PrEP) Adherence and Sexual Behavior are Highly Acceptable Among HIV-Uninfected Members of Serodiscordant Couples in East Africa: A Mixed Methods Study.

Authors:  Timothy R Muwonge; Kenneth Ngure; Elly Katabira; Nelly Mugo; Grace Kimemia; Bridget Frances O'Rourke Burns; Nicholas Musinguzi; Felix Bambia; Jared M Baeten; Renee Heffron; Jessica E Haberer
Journal:  AIDS Behav       Date:  2019-05

2.  Opinion: Risk to study nonparticipants: A procedural approach.

Authors:  Nir Eyal; Marc Lipsitch; Till Bärnighausen; Dan Wikler
Journal:  Proc Natl Acad Sci U S A       Date:  2018-08-07       Impact factor: 11.205

Review 3.  Actionable Adherence Monitoring: Technological Methods to Monitor and Support Adherence to Antiretroviral Therapy.

Authors:  Kate M Bell; Jessica E Haberer
Journal:  Curr HIV/AIDS Rep       Date:  2018-10       Impact factor: 5.071

4.  Using Real-Time Adherence Feedback to Enhance Communication About Adherence to Antiretroviral Therapy: Patient and Clinician Perspectives.

Authors:  Lauren M Hill; Carol E Golin; Allison Pack; Jessica Carda-Auten; Deshira D Wallace; Sruthi Cherkur; Claire E Farel; Elias P Rosen; Monica Gandhi; Heather M Asher Prince; Angela D M Kashuba
Journal:  J Assoc Nurses AIDS Care       Date:  2020 Jan-Feb       Impact factor: 1.354

5.  Patient-centered mobile tuberculosis treatment support tools (TB-TSTs) to improve treatment adherence: A pilot randomized controlled trial exploring feasibility, acceptability and refinement needs.

Authors:  Sarah J Iribarren; Hannah Milligan; Cristina Chirico; Kyle Goodwin; Rebecca Schnall; Hugo Telles; Alejandra Iannizzotto; Myrian Sanjurjo; Barry R Lutz; Kenneth Pike; Fernando Rubinstein; Marcus Rhodehamel; Daniel Leon; Jesse Keyes; George Demiris
Journal:  Lancet Reg Health Am       Date:  2022-06-10

6.  The importance of how research participants think they are perceived: results from an electronic monitoring study of antiretroviral therapy in Uganda.

Authors:  Jeffrey I Campbell; Angella Musiimenta; Bridget Burns; Sylvia Natukunda; Nicholas Musinguzi; Jessica E Haberer; Nir Eyal
Journal:  AIDS Care       Date:  2018-12-09

Review 7.  Adherence Measurements in HIV: New Advancements in Pharmacologic Methods and Real-Time Monitoring.

Authors:  Jose R Castillo-Mancilla; Jessica E Haberer
Journal:  Curr HIV/AIDS Rep       Date:  2018-02       Impact factor: 5.071

8.  Using Digital Technologies in Clinical HIV Research: Real-World Applications and Considerations for Future Work.

Authors:  Jessica Andriesen; Sheana Bull; Janan Dietrich; Jessica E Haberer; Barbara Van Der Pol; Yegor Voronin; Kristin M Wall; Christopher Whalen; Frances Priddy
Journal:  J Med Internet Res       Date:  2017-07-31       Impact factor: 5.428

9.  Beyond HIV-serodiscordance: Partnership communication dynamics that affect engagement in safer conception care.

Authors:  Lynn T Matthews; Bridget F Burns; Francis Bajunirwe; Jerome Kabakyenga; Mwebesa Bwana; Courtney Ng; Jasmine Kastner; Annet Kembabazi; Naomi Sanyu; Adrine Kusasira; Jessica E Haberer; David R Bangsberg; Angela Kaida
Journal:  PLoS One       Date:  2017-09-07       Impact factor: 3.240

10.  Improving antiretroviral therapy adherence in resource-limited settings at scale: a discussion of interventions and recommendations.

Authors:  Jessica E Haberer; Lora Sabin; K Rivet Amico; Catherine Orrell; Omar Galárraga; Alexander C Tsai; Rachel C Vreeman; Ira Wilson; Nadia A Sam-Agudu; Terrence F Blaschke; Bernard Vrijens; Claude A Mellins; Robert H Remien; Sheri D Weiser; Elizabeth Lowenthal; Michael J Stirratt; Papa Salif Sow; Bruce Thomas; Nathan Ford; Edward Mills; Richard Lester; Jean B Nachega; Bosco Mwebesa Bwana; Fred Ssewamala; Lawrence Mbuagbaw; Paula Munderi; Elvin Geng; David R Bangsberg
Journal:  J Int AIDS Soc       Date:  2017-03-22       Impact factor: 5.396

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