Maurício Aquino Paganotti1, Valéria Valim2, Érica Vieira Serrano3, Samira Tatiyama Miyamoto4, Raquel Altoé Giovelli5, Maria Carmen Lopes Ferreira Silva Santos6. 1. Universidade de Vila Velha (UVV), Vila Velha, ES, Brasil. 2. Programa de Reumatologia, Departamento de Clínica Médica, Universidade Federal do Espírito Santo (Ufes), Vitória, ES, Brasil; Comissão Brasileira de Síndrome de Sjögren, Brasil; Sociedade Brasileira de Reumatologia, Brasil. Electronic address: val.valim@gmail.com. 3. Departamento de Clínica Médica, Escola Superior de Ciências da Santa Casa de Misericórdia de Vitória (Emescam), Vitória, ES, Brasil; Hospital Universitário Cassiano Antonio Moraes (Hucam), Universidade Federal do Espírito Santo (Ufes), Vitória, ES, Brasil. 4. Curso de Fisioterapia, Universidade Federal do Espírito Santo (Ufes), Vitória, ES, Brasil. 5. Departamento de Clínica Médica, Escola Superior de Ciências da Santa Casa de Misericórdia de Vitória (Emescam), Vitória, ES, Brasil. 6. Departamento de Patologia, Universidade Federal do Espírito Santo (Ufes), Vitória, ES, Brasil; Serviço de Anatomia Patológica, Hospital Universitário Cassiano Antonio Moraes (Hucam), Universidade Federal do Espírito Santo (Ufes), Vitória, ES, Brasil.
Abstract
OBJECTIVE: To carry out the cross-cultural adaptation of Eular Sjögren's Syndrome Patient Reported Index (ESSPRI) for Portuguese language and evaluate its psychometric properties. METHOD: Cross-sectional study of patients with primary Sjögren's syndrome (SS). The psychometric properties (intraobserver reproducibility and construct validity) were studied. In construct validity, ESSPRI was compared with the Patient's Global Assessment (PGA), Profile of Fatigue and Discomfort (Profad), Sicca Symptoms Inventory (SSI) and Functional Assessment of Chronic Illness Therapy (Facit-F). Statistical tests used were:Cronbach's alpha, intraclass correlation coefficient (ICC), Bland-Altman method and Spearman coefficient. A value of p ≤ 0.05 was considered significant. RESULTS: There was no difference between versions in both languages; thus, a Brazilian consensual version was obtained. All subjects were women aged 49.4 ± 11.6 years, with onset of symptoms of 7.2 ± 5.4 years, and time of diagnosis of 3.0 ± 3.3 years. The mean ESSPRI was 6.87 ± 1.97. The intraobserver reproducibility was high and significant (0.911) and, with Bland-Altman method, there was no systematic bias in the agreement of measures among evaluations. A moderate correlation of ESSPRI with all tested instruments was observed. CONCLUSION: The Brazilian Portuguese version of ESSPRI is a valid and reproducible version.
OBJECTIVE: To carry out the cross-cultural adaptation of Eular Sjögren's Syndrome Patient Reported Index (ESSPRI) for Portuguese language and evaluate its psychometric properties. METHOD: Cross-sectional study of patients with primary Sjögren's syndrome (SS). The psychometric properties (intraobserver reproducibility and construct validity) were studied. In construct validity, ESSPRI was compared with the Patient's Global Assessment (PGA), Profile of Fatigue and Discomfort (Profad), Sicca Symptoms Inventory (SSI) and Functional Assessment of Chronic Illness Therapy (Facit-F). Statistical tests used were:Cronbach's alpha, intraclass correlation coefficient (ICC), Bland-Altman method and Spearman coefficient. A value of p ≤ 0.05 was considered significant. RESULTS: There was no difference between versions in both languages; thus, a Brazilian consensual version was obtained. All subjects were women aged 49.4 ± 11.6 years, with onset of symptoms of 7.2 ± 5.4 years, and time of diagnosis of 3.0 ± 3.3 years. The mean ESSPRI was 6.87 ± 1.97. The intraobserver reproducibility was high and significant (0.911) and, with Bland-Altman method, there was no systematic bias in the agreement of measures among evaluations. A moderate correlation of ESSPRI with all tested instruments was observed. CONCLUSION: The Brazilian Portuguese version of ESSPRI is a valid and reproducible version.
Authors: Ola Hijjaw; Mohammad Alawneh; Khaled Ojjoh; Hazem Abuasbeh; Ahmad Alkilany; Nabeel Qasem; Mohammad Al-Essa; Saif Aldeen AlRyalat Journal: Open Access Rheumatol Date: 2019-01-04