PURPOSE: A growing literature reports the benefits and challenges of patient and public involvement (PPI) in research; nevertheless, understanding PPI in research design remains under-developed. The purpose of this paper is to report learning experiences from involving service users as research partners in two projects that developed and evaluated guidelines for good practice in this regard. The main objective was to evaluate these guidelines. DESIGN/METHODOLOGY/APPROACH: PPI research guidelines were developed through five workshops involving service users/patients, carers, health and social care professionals/managers and academics. Using a participatory qualitative approach, these guidelines were evaluated through mapping them against the two service user research partners' experience within another project. FINDINGS: The guidelines were found to be fit for purpose, as they allowed problems to be easily identified and reassurance that required standards were being met. Both academic and service user research partners learned and gained relevant skills. Two service user research partners also found their daily living skills unexpectedly enhanced by project participation. ORIGINALITY/VALUE: The PPI guidelines, the authors developed were produced by consensus involving several stakeholders. Service users involved as research partners in the project experienced unanticipated personal benefits.
PURPOSE: A growing literature reports the benefits and challenges of patient and public involvement (PPI) in research; nevertheless, understanding PPI in research design remains under-developed. The purpose of this paper is to report learning experiences from involving service users as research partners in two projects that developed and evaluated guidelines for good practice in this regard. The main objective was to evaluate these guidelines. DESIGN/METHODOLOGY/APPROACH: PPI research guidelines were developed through five workshops involving service users/patients, carers, health and social care professionals/managers and academics. Using a participatory qualitative approach, these guidelines were evaluated through mapping them against the two service user research partners' experience within another project. FINDINGS: The guidelines were found to be fit for purpose, as they allowed problems to be easily identified and reassurance that required standards were being met. Both academic and service user research partners learned and gained relevant skills. Two service user research partners also found their daily living skills unexpectedly enhanced by project participation. ORIGINALITY/VALUE: The PPI guidelines, the authors developed were produced by consensus involving several stakeholders. Service users involved as research partners in the project experienced unanticipated personal benefits.
Authors: Anna Kearney; Paula Williamson; Bridget Young; Heather Bagley; Carrol Gamble; Simon Denegri; Delia Muir; Natalie A Simon; Stephen Thomas; Jim T Elliot; Helen Bulbeck; Joanna C Crocker; Claire Planner; Claire Vale; Mike Clarke; Tim Sprosen; Kerry Woolfall Journal: Health Expect Date: 2017-06-15 Impact factor: 3.377
Authors: Lauri Arnstein; Anne Clare Wadsworth; Beverley Anne Yamamoto; Richard Stephens; Kawaldip Sehmi; Rachel Jones; Arabella Sargent; Thomas Gegeny; Karen L Woolley Journal: Res Involv Engagem Date: 2020-06-24
Authors: Trisha Greenhalgh; Lisa Hinton; Teresa Finlay; Alastair Macfarlane; Nick Fahy; Ben Clyde; Alan Chant Journal: Health Expect Date: 2019-04-22 Impact factor: 3.377