Literature DB >> 26331187

What Should Be the Character of the Researcher- Participant Relationship? Views of Participants in a Long-standing Cancer Genetic Registry.

Celeste M Condit, Diane M Korngiebel, Lesley Pfeifer, Anne D Renz, Deborah J Bowen, David Kaufman, Laura Min Mercer Kollar, Karen L Edwards.   

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Year:  2015        PMID： 26331187

Source DB:  PubMed          Journal:  IRB        ISSN： 0193-7758


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  6 in total

1.  Views of Cohort Study Participants about Returning Research Results in the Context of Precision Medicine.

Authors:  Travis Hyams; Deborah J Bowen; Celeste Condit; Jeremy Grossman; Megan Fitzmaurice; Deborah Goodman; Lari Wenzel; Karen L Edwards
Journal:  Public Health Genomics       Date:  2016-08-24       Impact factor: 2.000

2.  De-identified genomic data sharing: the research participant perspective.

Authors:  Deborah Goodman; Catherine O Johnson; Deborah Bowen; Megan Smith; Lari Wenzel; Karen Edwards
Journal:  J Community Genet       Date:  2017-04-05

3.  A comparison of views regarding the use of de-identified data.

Authors:  Deborah Goodman; Catherine O Johnson; Deborah Bowen; Megan Smith; Lari Wenzel; Karen L Edwards
Journal:  Transl Behav Med       Date:  2018-01-29       Impact factor: 3.046

4.  Consent Issues in Genetic Research: Views of Research Participants.

Authors:  Deborah Goodman; Catherine O Johnson; Lari Wenzel; Deborah Bowen; Celeste Condit; Karen L Edwards
Journal:  Public Health Genomics       Date:  2016-07-05       Impact factor: 2.000

5.  The Underdeveloped "Gift": Ethics in Implementing Precision Medicine Research.

Authors:  Amy A Blumling; Kristin E Childers-Buschle; John A Lynch; Melanie F Myers; Michelle L McGowan
Journal:  Am J Bioeth       Date:  2021-04       Impact factor: 11.229

6.  Participant Engagement in Translational Genomics Research: Respect for Persons-and Then Some.

Authors:  Janet E Childerhose; Candice R Finnila; Joon-Ho Yu; Barbara A Koenig; Jean McEwen; Stacey L Berg; Benjamin S Wilfond; Paul S Appelbaum; Kyle B Brothers
Journal:  Ethics Hum Res       Date:  2019-09
  6 in total

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