Martin Nikolaus Dichter1, Christian G G Schwab2, Gabriele Meyer3, Sabine Bartholomeyczik4, Margareta Halek2. 1. German Center for Neurodegenerative Diseases (DZNE), Stockumer Straße 12, 58453 Witten, Germany; School of Nursing Science, Witten/Herdecke University, Stockumer Straße 12, 58453 Witten, Germany. Electronic address: Martin.Dichter@dzne.de. 2. German Center for Neurodegenerative Diseases (DZNE), Stockumer Straße 12, 58453 Witten, Germany; School of Nursing Science, Witten/Herdecke University, Stockumer Straße 12, 58453 Witten, Germany. 3. School of Nursing Science, Witten/Herdecke University, Stockumer Straße 12, 58453 Witten, Germany; Institute for Health and Nursing Science, Medical Faculty, Martin Luther University Halle-Wittenberg, Magdeburger Straße 8, 06112 Halle (Saale), Germany. 4. School of Nursing Science, Witten/Herdecke University, Stockumer Straße 12, 58453 Witten, Germany.
Abstract
OBJECTIVE: For people with dementia, the concept of quality of life (Qol) reflects the disease's impact on the whole person. Thus, Qol is an increasingly used outcome measure in dementia research. This systematic review was performed to identify available dementia-specific Qol measurements and to assess the quality of linguistic validations and reliability studies of these measurements (PROSPERO 2013: CRD42014008725). STUDY DESIGN AND SETTING: The MEDLINE, CINAHL, EMBASE, PsycINFO, and Cochrane Methodology Register databases were systematically searched without any date restrictions. Forward and backward citation tracking were performed on the basis of selected articles. RESULTS: A total of 70 articles addressing 19 dementia-specific Qol measurements were identified; nine measurements were adapted to nonorigin countries. The quality of the linguistic validations varied from insufficient to good. Internal consistency was the most frequently tested reliability property. Most of the reliability studies lacked internal validity. CONCLUSION: Qol measurements for dementia are insufficiently linguistic validated and not well tested for reliability. None of the identified measurements can be recommended without further research. The application of international guidelines and quality criteria is strongly recommended for the performance of linguistic validations and reliability studies of dementia-specific Qol measurements.
OBJECTIVE: For people with dementia, the concept of quality of life (Qol) reflects the disease's impact on the whole person. Thus, Qol is an increasingly used outcome measure in dementia research. This systematic review was performed to identify available dementia-specific Qol measurements and to assess the quality of linguistic validations and reliability studies of these measurements (PROSPERO 2013: CRD42014008725). STUDY DESIGN AND SETTING: The MEDLINE, CINAHL, EMBASE, PsycINFO, and Cochrane Methodology Register databases were systematically searched without any date restrictions. Forward and backward citation tracking were performed on the basis of selected articles. RESULTS: A total of 70 articles addressing 19 dementia-specific Qol measurements were identified; nine measurements were adapted to nonorigin countries. The quality of the linguistic validations varied from insufficient to good. Internal consistency was the most frequently tested reliability property. Most of the reliability studies lacked internal validity. CONCLUSION: Qol measurements for dementia are insufficiently linguistic validated and not well tested for reliability. None of the identified measurements can be recommended without further research. The application of international guidelines and quality criteria is strongly recommended for the performance of linguistic validations and reliability studies of dementia-specific Qol measurements.
Authors: Stefan Sniatecki; Gabriele Meyer; Anna Renom-Guiteras; Martin N Dichter; Herbert Mayer; Astrid Stephan Journal: Z Gerontol Geriatr Date: 2016-05-12 Impact factor: 1.281
Authors: Bernhard Michalowsky; Wolfgang Hoffmann; Wiebke Mohr; Anika Rädke; Feng Xie Journal: Health Qual Life Outcomes Date: 2022-10-05 Impact factor: 3.077